One of the shifts in my social media since my mother passed away is to engage in ways that people who are human, results-oriented, genuine can interact.. while recognizing there will always be the folks here for optics. It's a reminder to spend my time, energy, care for results.
You'll find threads on how I learned strength from my late mother

Is what I relied on when she was in the ICU or when we were living in a war zone

That's in contrast to the fragile & "threat!" approach that was on display with the Amy Cooper incident

bet.com/news/national/…
Keeping in mind that Amy Cooper campaigned/fundraised for Obama

yet, when, from the looks of it the black man was not important enough or she may have felt no one would find out

she threatened a black man in a mechanism of white power: "vulnerability"

discourseblog.substack.com/p/amy-cooper-i…
This is a racist trope that plays out against black women as well as was used against #DrSusanMoore - a hospital executive put in an official statement that her knowledge was "intimiating" to nurses caring for her. This was a patient dying of COVID.

Keep in mind what #COVID19 does to you
A frequent manifestation is #ARDS
=your own lungs waterboarding/drowning you
=torture

Yet we expect such patients, especially if they are doctors + black to be able to not "intimidate" while experiencing this?:
mayoclinic.org/diseases-condi…
You'll have to pardon me if I don't trust people whose pain IS seen to be the spokesperson

for those whose pain is either denied or justified

Some of us "want" pain?

Not a doctor/nurse thing

This is a racism, implicit bias, structural racism thing

insidehighered.com/news/2017/10/2…
The last moments my mother was conscious they were still thinking she had a simple pneumonia (I asked about ARDS, told no). No CT to check for PE. Told we could wait to talk to her.

Until she was suddenly intubated

Suddenly she was ARDS and we were being pushed to agree to DNR.
I too can "intimidate":
-I have knowledge
-am a doctor
-ask questions like "If she is COVID+ and she has bilateral infiltrates, could this be ARDS?"

I'm also Muslim
Waterboarding is seen as valid when done to Muslims
My mother was Muslim
"Despite" that she deserved humanity
I am a factual person
I will not claim if/then when there is too much complexity

Fact is my WOC Muslim >65 mother was also in a state with this kind of staffing issues on nursing. The ICU patient to nurse ration was 3:1 or 4:1 despite vents & drips

mediakit.nurse.com/texas-nursing-…
Race aside, there is also flagrant ageism in #COVID19 added to existing ageism. "High risk" is used to justify "don't even try" or "already dead "in some people's minds. So I can't, with any validity, tell you the true cause(s) when it is so multifactoral

thelancet.com/journals/lanhl…
The push for DNR, at times, was fairly transparently communicated as reducing liability to the clinicians and hospital in a high risk patient

DNR may not be the wrong thing to do

Fact is, good communication on DNR, is a massive mess, as we experienced

journalofethics.ama-assn.org/article/do-not…
Am thankful every single day for my late mother for having her brain, her training to emotionally regulate, faith she taught me, and the ability to navigate spaces full of -isms as a woman, WOC, daughter of >65 parents so I can process all this logically, all while grieving.
I am trying to imagine what it would be like to be able to be "fragile", "delicate"

Meh, why waste energy on something irrelevant to me?

Amid that will be those who will engage out of fragile ego, optics, need to be important, need to "save" me or communities to which I belong
I've said it before, I will say it again: I am grateful for this resource that @RobinCogan shared with me.

It's been my roadmap for navigating now that my pillar of strength, my mother, is gone from this world and I can only have her in my own heart:

mayoclinic.org/diseases-condi…
White nurses like @RobinCogan absolutely have a role to play. We CAN play together in one sandbox

The number of people who have reached out via various media to offer substantive, actionable support or unobtrusive "I am here for you" is innumerable. I won't be able to name all
Did I feel most comfortable with it was black female nurses and black respiratory therapists caring for my mother when I could not be at her side?

Yes

Is that racist?

No, because centering (on) black women ensures quality for all in any domain

marketplace.org/2020/09/01/why…
Are doctors part of the problem? Of course. As a WOC physician, my experience or the experiences of black women, BIPOC physicins is denied by our own peers, our own profession.

That does not mean we should be invalidated externally too as doctors.

medpagetoday.com/publichealthpo…
It means there is a lot of work to be done for an interdisciplinary approach that centers black women

We must work through conceptual models that account for the structural and policy drivers of these results, even for black women who seem "privileged."

npr.org/2017/12/07/568…
Who gets the progressive deprioritization? I had crossposted this to @LinkedIn

My mother, who used to read all my posts there, and I had an in depth discussion. She said how it made her understand a lot of things about race and racism in America

Am grateful to @TamorahLewisMD sharing her wisdom. Was one of my favorite last conversations with my late mother. It has allowed me to explain this to many others as well. The thread demonstrates why we should let black women speak for their own selves, not label "intimidating"
My mother did have awareness of colorism from South Asia.

From a #globalhealth perspective, colorism and antiblackness is not always the driving factor, though, like the xenophobia towards refugees.

This is some of my multidisciplinary work on that:

mededportal.org/doi/10.15766/m…
Today in the car back from a park, my almost 6-year old nephew was asking when coronavirus will end. I used the analogy of how often he and his 5 siblings agreed on the same thing?

He pointed out that they all agreed they wanted to visit "Nani" at the cemetery. Okay, true...
Sometimes trying to use a modified Socratic method with a 6-year old backfires.

Well, besides that one time yesterday...

My point was that for the pandemic to end, we need cooperation across many people, cities, states, countries. How easy is that?
There is an immorality of empathy that drives advocacy storytelling in the U.S. & other spaces.

The fact that #drsusanmoore was vilified for self-advocating is why POC in the U.S. need/rely on white allies, storytellers whose pain/distress is believed

qz.com/1024303/empath…
If we want to end a pandemic, we actually have to start to care about ALL people

We can't simply align with racism of who is the right storyteller to be heard to try to get things done

Xenophobia wins elections but it does not end pandemics
khou.com/article/news/h…
And it is already starting in Texas. POC can't always conveniently line up behind a "valid" (white) advocate to speak for us. Sometimes we will have to say things ourselves, like this Mexican restaurant using "choice" on masks. Is "choice" for POC?

thehill.com/homenews/state…
Many of us brown & black folk would like to be allowed the humanity, "vulnerability" & fragility others are allowed. Am grateful for what black women teach us in America. My mother's context sometimes centered on Pakistan or England (colonial history)

bbc.com/news/av/explai…
Whereas in America it is black women who can teach us the most important lessons about structural inequity at the intersection of race, gender & various other factors. It's these same black women who win elections and flip states with voter suppression

greatergood.berkeley.edu/article/item/h…
Which brings me back to that scary word that tends to trigger & offend the "optics" types:

results

Black women & WOC deliver results
Being effective can intimidate those who are fragile
We need to get over such barriers

lareviewofbooks.org/article/on-the…

pcpcc.org/resource/white…
I don't think a lot of things that are needed are going to happen in my lifetime, given the awfully flat slope of that "arc or justice" in the U.S. (& significant backsliding)

So what I have during my lifetime is all of you who are rainbows in my clouds

Thank you to each of you who brings an authentic intellectual curiosity, able to manage your ego, can play well in a sandbox, and are results-oriented to work on multi-sector, multi-institutional, multidisciplinary solutions - is the way we can help keep others' mothers alive.
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More from @usnehal

21 Mar
This is beautiful. The masjid/Islamic center of Colorado served the neighborhood, reducing barriers for all, regardless of faith.
The U.S. government is responsible for the this vaccine hesitancy from these past ethics violations that abused the hard work of humanity public health workers who had painstakingly gained trust over years. Trust takes time to rebuild.

npr.org/sections/thetw…
That’s why I’ve been working with various Muslim groups to spread factual, trustworthy information to communities on #COVID19, #VaccinesWork

Read 4 tweets
21 Mar
@rezaaslan Honestly, we are past a point of thinking all brown is the same. There is tremendous diversity in South Asia.

The accent. The way of talking. The head movements. None of it is remotely Afghan. There was a way to actually represent Afghan or Pathan culture beyond casting.
@rezaaslan Asking the people whose identity is being used to either play the part or at least inform the character development is essential to moving past caricatures to representation.

As for brown savior: Mammies often “saved” their mistresses/masters.

harpersbazaar.com/culture/film-t…
@rezaaslan Key part of the article on way Mammies are portrayed.

I’d like to see how this sitcom would be different.

I get the argument that it is important to get sympathetic/likable Muslim characters on the screen. Maybe this is the extent of progress possible.
But was it? Image
Read 11 tweets
20 Mar
Am grateful my #endometriosis and #fibroids only affects me severely one day a cycle and is not severe every cycle. Still that one day can make me unable to get out of bed or sit up without passing out. Severity worsens with stress.

Today I feel have my life back. Thank God.
Mind you, my definition of severe is “I pass out from pain.” I don’t know if it is really a good thing I self suppress so well that I don’t even feel or react to pain until it threatens my ability to stay conscious. I don’t glamorize “grit” that is a lack of self compassion
It is an accommodation to the pathology in the world we live that was apparent with the events this week. 6 Asian women killed but the compassion was for the killer who “had a bad day” by authorities while the women were mislabeled as sex workers to validate their deaths.
Read 31 tweets
18 Mar
Sometimes you need a physician-child to physician-child call. “I hope you know none of this is your fault.”

Thankfully I have been really effective at not going down dark paths of coulda shoulda woulda.

I helped Daddy stay in right frame of mind.

We live in shaming society.
Still, it meant a lot that someone I went to school with called with that, likely sharing what he knows from loss of a parent as well.

The people who have lost a parent get it.

I can see why there are grief circles.

Some people get it.
People outside of clinical medicine (or even in it) also can assume doctors have unending power, privilege, access.

One auntie “with your girls as daughters I assumed she had the best of everything.” She likely did not hear what she said to a grieving daughter. Implies failure.
Read 8 tweets
18 Mar
My mother’s aunt just passed away. That was the last of the old guard. Please pray for her soul.
Thank you for the condolences.

Without going into too many details, we had always lived in different countries and I knew of her more than knew her.

There is an awareness of loss because South Asian and Muslim women do not often tell their stories.
I am disrupting (yet again) with all my social media posting because it goes against so many cultural and family values.

So many ppl have asked me when I will publish a book, novel. I can’t tell “my” stories without affecting others.

And no, that is not always oppression.
Read 20 tweets
18 Mar
On reading this my thoughts:
-not a primary care field
-two-specialist couple
-focus in procedures and lucrative call, not humans being treated
-these “options” possible if one has chronic illness, elder care, etc
-derisive towards colleagues
-no interest in equity

Realistic?
It’s great that doctor made it work to retire at 43 and have gotten the math right all along. If one is going to judge colleagues, though, be ready for the reverse. We have a rising maternal mortality rate and increasing disparity. IUDs are an important part of reducing that, yes
Even if we stick just to ob/gyn field: some may wish to not only be the “IUD queen” (birth control is SUPER important - not at all discounting it), what about the ob/gyn who chooses to live in NYC and focus in whole person care for WOC who do give birth?

health.ny.gov/community/adul… ImageImageImageImage
Read 18 tweets

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