An excellent podcast on #LongCovid with @ClareRayner6 talking to @m_maclennan@covidaidcharity
Key points
π #longcovidwork is a huge crisis in the making
π many people have been out of work for over 1 year
π many haven't received any medical assessment at all
π some health issues in #LongCovid can be managed with medication etc.
π yet, many patients haven't received the necessary treatment
π proper adjustment, like flexible work, can help people go back to their job
π no support will lead people being pushed out of employment
π there is already a shortage of employees in some sectors: how do we manage with the huge numbers of people with #LongCovid unable to work?
π compensation will be needed for those who cannot go back to employment
π we have an opportunity to push for better work conditions
π patient led advocacy and research has been key to identifying #LongCovid and the need of those ill
π collaborative work among advocates has put the issue in front of the @WHO
π August 2020 meeting with the WHO an important turning point in recognition
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π several neurological symptoms associated with elevation of ANA titres
π sample included both hospitalized (32%) and non-hospitalized cases, with slight predominance of females (55%)
π significant number of patients had a severely reduced quality of life
I wasn't involved in writing the guidelines and I still need to read the longer version.
Thus, I can't comment on the details.
It's a good step forward, however, that #LongCovid is reaching formal recognition in yet another country. And with the long covid name!
#LongCovid is the term patients made to indicate the long-term symptoms and sequelae of #COVID19. Initial reports claimed Covid was a respiratory illness with estimated recovery in 2--6 weeks.
Patients built a global grassroot movement and successfully challenged this narrative.
Those with #LongCovid made key contributions to knowledge via multiple media, from Twitter to informal papers. Many of these risk exploitation/dismissal because they are outside the channels through which science is usually built
Last week we had the first meeting on #LongCovid in Italy.
We were pleased to receive full support from Italy's Ministry of Health @MinisteroSalute, with a formal letter that used the patient-made term Long Covid.
@MartaEsperti and I will then detail the rise of #LongCovid as a global movement of patient-led advocacy and research, which obtained formal recognition for long covid from the @WHO