I was explaining to others how the end of my patients’ lives is often such a beautiful experience. They looked back at me with utter confusion. I could tell they thought I was crazy.
Since then, I’ve been thinking of what I should have said…
2/ I should’ve explained that too often in life I feel like I hold on to things I need to let go of. That sometimes I try and force solutions in relationships and all sorts of situations when I simply need to let go.
3/ I watch my patients often try and carry the weight of circumstances way past when it’s obvious the burden is too great bear. The only logical solution is to let go of the rock that is drowning them. To let life flow and take its natural course.
4/ In the ICU during critical illnesses like #COVID19, I enter the chaos w them. Its key to recognize when technology is a false solution. To explore other avenues & life goals in dying. The senses saunter out late. I try to be sure each person hears words of love and kindness.
5/ For some, I simply want to walk with my patients and their families to help them come to restful conclusions, shifting the ladder we are climbing from a wall of cure to a wall of comfort and peace.
6/ This is when the magic happens and the real beauty at the end of life emerges. We enter a place of healing and acceptance at the bedside during the dying process.
7/ It’s paradoxical yet true that once I accept as a physician that physical cure is likely beyond reach can another type of cure enter the situation that the entire family and patient find much more healing than a futile fight to the finish.
8/ Patients often drive their own spiritual process to the end way more beautifully than I could ever orchestrate as a physician. Whatever their choices, our teams is there to support them as their life candle burns out naturally…with palliative care to help.
9/ In #EDDB on p.228, I tell a story of an atheist patient who did not believe in an afterlife and who does exactly this. Asking her family three times each, “Do you love me?” What unfolded for her and us that day was transcendent and timeless.
10/ I wish everyone knew the end of life could be this beautiful. I wish people weren’t so afraid by the stories they’ve been told or by what they’ve witnessed when successful palliation of suffering is not accomplished. It’s our failure.
11/ I wish the palliative care was carried out the way it can be/must be in all circumstances so that people never had to suffer through pain, loneliness, and abandonment at the end of their life.
12/ Unfortunately, what is possible and what I witness all the time in the ICU is not the reality in too many circumstances. We do a poor job for many people who then miss out on their beautiful end of life scenario. We must get better.
13/fin
Every person you encounter today will die. Each of these people deserves to have a powerful & peaceful end of life process. We can do better if we focus our attention and time on building great delivery of inpatient and outpatient palliative care as the norm.
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2/ Breakthrough medical: infection occurring in someone who is fully vaccinated against an infectious agent — often used before another noun (as in “breakthrough cases” or “breakthrough infection”).
3/ Super-spreader: an event or location at which a significant number of people contract the same communicable disease (as in a “super-spreader event”). The term super-spreader originally referred only to a highly contagious person.
2/ “Two little words we don’t pay enough attention to: Over & Next. When something is over, it is over. And we are on to next. I like to think about the hammock in the middle of those two words.”
I’m going to rest in the hammock today…what do this mean for me?
3/ “That’s living in the moment. That’s the moment I believe I’m living as I complete this sentence. And it couldn’t be more important to me.” #NormanLear
2/ "I feel like I'm getting the silent treatment & it's killing me," #LongCOVID pt Pamela Bishop confided in me about her months-long interactions as she tried to get answers about a strange array of symptoms that have plagued her since recovering from #Covid19.
Pam then & now…
3/ Up to1 in 3 COVID survivors report experiencing #longCovid symptoms 3 to 6 months later. Their stories give me an extreme case of déjà vu because this is playing out similarly to the problem of long-term survivorship after non-COVID critical illness.
2/ There has been a mix of results in state courts. Some judges have refused to order hospitals to give ivermectin. Others HAVE ordered medical providers to give the medication, despite concerns it could be harmful.
3/ NY State Supreme Court Judge Porzio wrote: “This court will not require a doctor to be placed in a potentially unethical position committing medical malpractice by administering a medication for an unapproved, alleged off-label purpose.”
2/ I fully believe in #LongCOVID, and patients must be validated as the experts of their own narrative. BUT, absence of a billing code sent a terrible message to clinicians & pts.
This legitimizes the #PublicHealth catastrophe & facilitates pts being HEARD & SEEN 👁.
3/ Docs “believe” better when they can charge for testing & get pts covered, too. This also allows databases to track & analyze epidemiology of #LongCOVID. That means research can be carried out to answer questions, improve care & prepare for future pandemics. Read an anecdote👇
2/ #COVID pts return home after cutting-edge medical care but many survivors are now living with massive & likely life-long disabilities that include dementia, PTSD, depression & major weakness from muscle and nerve disease. #PICS#LongCOVID
3/ These two entities, #LongCOVID and #PICS, have many overlapping forms of suffering that must be acknowledged by healthcare professionals and loved one for survivors to feel validated & heard. People throughout society in all our communities will benefit.