My patient, now a #LongCOVID survivor & mentor to young Black boys told me…
“I was getting so sick w #COVID, & there was not a bed. They called everywhere & suddenly that night they said the VA got a bed.
2/ So somebody had to die that day, you know, so I’m just saying, wow, you know. But I told my wife, when I left here, I’m in God’s hands, you know, and I don’t know why I said it, but there was nothing she could do for me. (Pics w perm)
3/ So many things fell into place, it’s just not a coincidence. I thank God every day. I’m a different kind of guy, you know. I had to change a lot of my life. I got involved w young men to try to change the trajectory of their lives. That changed me & became therapy for me.
4/ Being a mentor you know, talking to the boys whose dads are in prison, explaining the meaning of life, you know, the meaning of, justice, peace, courage. Nobody came to me when I was a kid, you know, I had to learn the hard way.
He give up his retirement fund to help 20 boys.
5/ So I just thank God that I’m here today. But I’m not where I want to be. I’ll be honest w you doctor, I have my days. I’m still having difficulty (#LongCOVID x1.5 years). Sometimes just walking from the bathroom, making it to bed and then being winded & tired.
6/fin
“You can’t give up, you know. My wife has to remind me, and I remind myself that TOO MANY PEOPLE did TOO MUCH WORK for me to just give in, you know, to this [#LongCOVID], and I refuse to do that.”
2/ These elevated brain biomarkers indicate disease to different types of brain cells (eg, astrocytes, glial cells, neurons) in COVID patients. These were early unvaccinated pandemic patients. Vaccinated people will be less prone. WHY?
3/ There isn’t a ton of brain invasion by COVID. We think most of the 🧠 injury is INDIRECT. Meaning downstream injury from 1. upstream inflammation 2. blood clotting & 3. heavy sedation causing #delirium, which we proved to be a #dementia risk factor!
2/ It makes sense to me that it’s unhealthy to keep waking up people who are trying to get rest & heal.
If the body needs 7 hours #sleep a night when NOT sick (see 🧵 in tweet above), is it anti-medicine to prevent us from even more sleep when so much repair is needed?
1/🧵🎥 A young mom suffering #COVID. Her husband is scared.
We need to prevent serious long-term complications. Her new normal will likely include PTSD, Dementia, Depression & severe physical disability. (shown w Perm)
2/ what you need to know about ICUs, #PICS and #LongCOVID prevention:
I wrote this @thedailybeast piece👇 to help empower you as patients & families. It’ll tell you what you need to know & ask your team for amid the chaos and confusion.
3/ This patient on 100% O2 and high-dose propofol & fentanyl did not need both agents. When able, we try to avoid prop & benzos. We stopped Prop, continued Fentanyl & added dexmedetomidine because it’s shorter acting & won’t build up so much in her brain.
3/ That’s who was studied. The Paxlovid study is not out yet so I’m waiting to read the list of risk factors but it’s stuff like obesity, immunosuppression, diabetes, asthma & hypertension.
Will this drug benefit people at less risk? Probably but we don’t know yet definitively.