Arianne Profile picture
Jan 27 23 tweets 7 min read
I hear a public comment period is coming next week on CDC opioid 'guideline' revisions. This link shows who was involved in the 'opioid' revision workgroup, and what topics of concern were discussed. 😔
#GetLawEnforcementOutofHealthcare
#ChronicPain
cdc.gov/injury/pdfs/bs…
2-Listed in this thread the people who are influencing 'guidelines' for chronic pain treatment and pain treatment in general.
Dr. Wilson M. Compton serves as the Deputy Director of the National Institute on Drug Abuse.
nida.nih.gov/about-nida/org…
3-Anne Burns, BSPharm Vice President, Professional Affairs, at the American Pharmacists Association
Responsible for the Association’s strategic initiatives focused on advancing pharmacists’ patient care services in team-based care delivery models,
ahip.org/speaker/anne-l…
4-Beth Darnall, Phd A psychologist and 'Pain Scientist'. stanfordhealthcare.org/doctors/d/beth…
5-Frank Floyd, MD, FACP
An Internal Med doctor and CDC committee member, the same committee where Roger Chou, MD also sits.
cdc.gov/injury/pdfs/bs…
6-Neeraj Gandotra, MD
Chief Medical Officer for SAMHSA. (Substance Abuse and Mental Health Services Administration.
samhsa.gov/about-us/who-w…
7-Christine Goertz, DC, PhD
Chairperson, PCORI Board of Governors
PCORI is directly involved in funding Dr. Beth Darnall's research on opioid tapering. Compassionately of course.
pcori.org/people/christi…
8-Elizabeth Habermann, PhD
Conducting research on post surgical pain care at Mayo Clinic.
eurekalert.org/news-releases/…
9- Joseph Hsu, MD
Atrium Health Orthopaedics Surgery, a facility of Carolinas Medical Center

atriumhealth.org/provider-profi…
Marjorie Meyer, MDProfessor, Director of Maternal-Fetal Medicine Division
Vice Chair for Obstetrics
Department of Obstetrics, Gynecology and Reproductive Sciences
Dr. Meyer’s interests are medical complications of pregnancy and substance abuse.
comis.med.uvm.edu/bioviewer/WebB…
11-Paul A. Moore DMD, PhD, MPH
Professor: Pharmacology and Anesthesiology
pcssnow.org/wp-content/upl…
12-Aimee Moulin, MD, MAS
Emergency Physician, Assistant Residency Director, UC Davis calhospital.org/wp-content/upl…
13-Mallika Mundkur, MD, MPH studying post opioid 'outcomes'. ncbi.nlm.nih.gov/pmc/articles/P…
14-Kate Nicholson, JD
katemnicholson.com
15-I'm not sure but I believe this MD is the Ted Park, MD listed in the workgroup committee.
Tae Woo Ted Park, MD
Addiction Psychiatry psychiatry.pitt.edu/about-us/our-p…
16-Jeanmarie Perrone, MD
Founding Director of the Penn Center for Addiction Medicine and Policy. Dr. Perrone has led multiple initiatives in opioid stewardship and leads a program for the ED treatment of Opioid Use Disorder (OUD)
penncamp.org/bio/jeanmarie-…
17-Travis Rieder, PhD, MA
After a motorcycle accident and his struggle with withdrawals from rx Opiates the Yale Program in Addiction Medicine welcomed Dr. Reider to share about his personal struggle with opioids.
medicine.yale.edu/event/finding-…
18-Stephen Rudd, MD, FAAFP, CPPS -Pain and Opioid Use Disorder.
ihs.gov/sites/opioids/…
19-Roberto Salinas, MD, CAQ, (G, HPM) *sigh* altarum.org/sites/default/…
20-Doreleena Sammons-Hackett, SM, CPM

linkedin.com/in/doreleena-s…
21-Wally Smith, MD Advocates for patients with Sickle Cell. heal.nih.gov/about/wally-sm…
22-Jennifer Waljee, MD, MPH, MS- Prescription Drug Overdose research. medicine.umich.edu/dept/pain-rese…
23-Mark Wallace, MD board-certified anesthesiologist who wants to 'deemphasize role of opioids in pain management.' hcpsocal.org/wp-content/upl…

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More from @ravensspirit68

Jan 26
Petition to Congress.
Public Comments (15,444)
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #Veterans #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-
This comment was posted 3 years ago.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Petition to Congress.
Public Comments (15,444)-circa 2019.
Things have only gotten worse.
#RxOpioidsSaveLives #GetLawEnforcementOutofHealthcare Image
Read 4 tweets
Jan 26
And I want to RT this to stand on it's own merit.
Just in case it gets buried in the thread.
#ChronicPain #Addiction #DrugUseForGrownUps
#Overdose #Opioids
2-A patients need for opiate pain meds should not be determined on addiction treatment issues. Nor should it necessitate recreational drug advocacy. Those are NOT our fights.
People in pain have been deemed acceptable collateral damage in an ongoing, doomed to fail drug war.
3-And here we are. Tens of millions of people in pain told that we should be helping get access to #MAT for thoes w/addiction issues, and help legalize recreational drugs, all while we watch our frends in the pain community dying due to lack of needed legal/safe MEDICINES.
Read 4 tweets
Jan 26
This was the "Pain Patients Bill of Rights" in 1997.
Let me repeat that date.
1997.
MDs already had the right to REFUSE pain meds-
LE to go after illegal use.
The whole 'everyone getting opioids like candy' is & was BS.
#GetLawEnforcementOutofHealthcare
search-california-law.com/research/ca/HS…
2-This is the business code info referenced in the above linked 'Patients Bill of Rights'-Cal. Health & Safety Code §124960.
Yet today, few can get proper pain care in CA to literally save their lives.
#StopPainParole #GetLawEnforcementOutofHealthcare
leginfo.legislature.ca.gov/faces/codes_di….
3-Most #chronicpain pts are told to just 'follow the rules' and/or agree to go to 'pain management' clinics to get care, yet Pain Clinics are targeted by LE/DEA & shuttered.
Patients abandoned.
'No opioid Interventional Medicine' has become standard of tx.
visaliatimesdelta.com/story/news/202…
Read 5 tweets
Jan 16
Covid #LongHaulers please take note.
Those in the #MEcfs community has been down the Post Viral Sydrome road for decades now.
The CDC is fully aware of our plight, but has done little in the way of research or help.
#ThisNeedsToChange
Thread...
2-It begins, usually, with an infection.
For the majority of #MyalgicEncephalomyelitis pts it was the Epstein Barr Virus. But there are other infections that lead to #MEcfs as well. In almost every case the person knows that from that point, they were never the same again.
3-For some the progression is slow, fits & starts of decline.
Many continue with some sense of 'normalcy' in life for years. For others the onset of their post viral syndrome happens immediately and functional decline deterioration of all body systems is rapid.
#LongCovid #MEcfs
Read 10 tweets
Jan 16
We've lost too many in this insane '#opioid' war.
The sick & injured are spending the last years of their lives fighting, suffering, begging MDs & GOV for the medicines they need to mediate their pain.
They say taking our medicines away is to 'save' people.
No one is being saved.
Death due to #Untreatedpain or #Undertreatedpain is death by a thousand cuts.

#RxOpioidsSaveLives
#PainKills
Read 10 tweets
Dec 6, 2021
How many ways can a pain patient be screwed out of getting needed medicine?
1st-By MDs.
2nd-By pharmacies.
3rd-By insurance companies.
4th-By DEA/GOV corruption/lies.
cont...
It's atrocious that this video hasn't gone viral.
#ViralVideo #Opioids #StopPainStigma
Read 6 tweets

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