1) Are you taking parental leave or having a break from work to care for your children with #longcovid?

A parent asks -

“I am wondering how parents are managing their work life whilst their little ones are so poorly. So far I have juggled things and taken annual leave but
2) it’s difficult to see how this is sustainable with no end in sight.

@longcovidwork @DHSCgovuk @CitizensAdvice
are you able to help ?

#LongCovidKids
Parent

"If my husband wasn't still working at home, I'd have to give up work. Daughter 17 but needs reminded to eat, drink etc"

#LongCovidKids @longcovidwork
Parent

"A lot of juggling, working part-time, mainly from home and having a husband who works from home too. It’s exhausting"

#LongCovidKids @longcovidwork
Parent

"I'm self-employed and haven't worked since Dec, no help. Literally scrapping by on husbands wage. Our D is sent home, days in bed, medical appts, needs support, meals, meds, love. It's just not possible to commit to work, my D needs me"

#LongCovidKids @longcovidwork
Parent (GP)

"I've used all my annual leave for the year, not sustainable. Not sure what to do next"

#LongCovidKids @longcovidwork #LongCovid
Parent

"I'm self-employed and have had to take a (long) break from work. Not sustainable."

#LongCovidKids @longcovidwork #LongCovid
Parent

"I am lucky that my employer is understanding and I can work from home when my son is not well enough to go to school"

#LongCovidKids @longcovidwork #LongCovid
Parent

"I have had to take a break"

#LongCovidKids @longcovidwork #LongCovid
Parent

"Just applied for intermittent Family Leave - it was getting too much to balance it all"

#LongCovidKids @longcovidwork #LongCovid
Parent
"I managed to juggle it for 6 mths then realised we were in for the long con. I left work after taking a 2wk break and noticing a difference in my daughter when I was able to give my all to her. Not everyone is able to do this I know but it’s working for us"
#LongCovidKids
Parent

I am really lucky to be able to WFH even though I am a clinician in the #NHS. Most of my work is digital consults/workshops or telephone calls. We have enough people in the team that can cover me to see pts at home or in clinic if I am unable to go"

#LongCovidKids
Parent

"I work shifts & can switch around sometimes but parental leave and annual leave only goes so far. I felt like I was messing them about. We agreed to put it in writing that we would continue to accommodate shift changes and hold some annual leave for emergency situations"
Parent

"I stopped working went on the sick 1st - then left. I'm thinking of doing bank work on the #NHS so at least I can work when Dad is home.
It's hard because no end in sight so for us , one of us had to stay with my son so I do all the running around"

#LongCovidKids
Parent

"I took a break from work, it was getting too stressful. My son has a new auto immune condition (probably caused by covid) and we are struggling with his stability"

#LongCovidKids
Parents

"my husband had to leave the workforce. I am on FMLA but that will soon end and there is a long road ahead. it's the most awful thing ever"

#LongCovidKids @longcovidwork
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More from @LongCovidKids

May 4
Have you seen the #LongCovidKids Padlets?
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating
resources & info to help us improve recognition, support & recovery
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
Read 7 tweets
Apr 1
These children have endured chronic and disabling symptoms.

Today they handed in their letters for @BorisJohnson to share their experience, hopes & ongoing infection risk fears.

#ShiningALightOnLongCovid #LongCovid #LongCovidKids
CEO Sammie McFarland handed in the new charities NEW support guide available as a free digital resource for families, kids, schools, healthcare professionals parents and caregivers.

#ShineALightOnLongCovid #LongCovid #LongCovidKids
Founder and CEO of LCK Sammie Mcfarland "Today is an incredible testimony to all the family's children and volunteers from our organisation who have worked tirelessly throughout the pandemic to raise awareness for children living with Long Covid who have been ignored.
Read 15 tweets
Apr 1
Jacob is 11 years old & has been unwell since March 21. 2 weeks after #covid19 infection he lost mobility in his legs & required mobility aids alongside physiotherapy twice a wk ever since.

Jacob wants more support for families living with #LongCovidKids

#ShineALightOnLongCovid
Emily is 9yrs old, she contracted Covid in Sep21. She was admitted to hospital for 13dys in Nov due to severity of her #LongCovidKids symptoms.She now uses a walker as has severe pain in her back & legs.

Emily would like more funding for LC services

#ShineALightOnLongCovid
Anna is 9yrs old & has had #LongCovidKids for 2yrs.
She uses a wheelchair as has severe pain in her legs when she tries to walk. She feels people are pretending Covid is gone.

Anna is asking the PM and Scottish government to help children like her.

#ShineALightOnLongCovid
Read 9 tweets
Mar 13
Please join us in welcoming our NEW #LCKchampion Dr Anna Brooks

BCA PhD Immunologist and Senior Lecturer at the Faculty of Science, University of Auckland, New Zealand

Give her some #LCKfamily 💕@DrAnnaNZ

#LongCovidKids #NewZealand #NZ @jacindaardern
longcovidkids.org/champions/dr-a…
#LCKchampion @surf4children

Dr Danilo Buonsenso
Paediatrician Dept of Woman and Child Health and Public Health Rome

#LongCovidKids #LongCovid

longcovidkids.org/champions/dr-d…
Read 16 tweets
Feb 18
Group Post
"Spent all of Wed in hospital , to be told my child was fine - I've just had to pull her up the stairs to bed. She's too heavy to lift - couldn't even crawl up
I'm angry angry angry & feel so let down by the NHS & our Gov
Our children are like ghosts!!
#LongCovidKids
Group Post
"we got the results of S's extensive bloodwork. White blood cell count ⬇️and Iron &Vitamin D very low. Started him on Iron & Vitamin D,repeat bloods in 3 mths. It's not surprising he felt exhausted. They don't yet know why all this happened"
#LongCovidKids
Group Post
"I’m sorry that we are all here, but grateful to have a community. My 15 YO is at the beginning of her #LongCovid journey. The biggest problem is nausea … she has lost 3kg this wk. Any other advice?"
#LongCovidKids
Read 10 tweets
Feb 10
#FactCheck 1 of 3

#LongCovidKids is not a campaign group.

We are a charity that represents and supports children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.

🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🇨🇦🇬🇷🇮🇹🇦🇹
#FactCheck 2 of 3

Children's real risk of admission due to Covid increased during #Omicron

Jan 2022 3,797 child Covid admissions
Assume 53% primarily Covid = 2,012

Jan 2021 [Alpha] 1,243
80% primarily Covid = 994

Omicron TWICE as likely to hospitalise children due to Covid. Image
#FactCheck 3 of 3

Jan 2022
961,896 0-19 year olds tested positive for Covid

According to Molteni, @sunilbhop et al, prolonged illness of 56+ days can occur in 1.8% of positive cases amongst 5-17yos

= est. 17,314 0-19yo more #LongCovidKids

Source thelancet.com/journals/lanch…
Read 5 tweets

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