Misinformation & propaganda is being disseminated by the government and still floods the media. The #Gaslighting of America has been extremely effective. dovepress.com/misinterpretat…
Individuals with incurable chronic illnesses, #RareDiseases#Disabilities that involve severe pain as a component are being deprived of appropriate medical treatment.
Physician autonomy has been undermined by insurance companies, politicians, state medical boards, law enforcement, special interest groups, and non-medical administrators
at healthcare facilities. Most, if not all use algorithms based on a subjective definition of legitimate medical treatment. Clinicians are being coerced and even paid more/incentivized to not prescribe controlled substances.
Unlike with Gender Affirming Care, #Abortion, and #SUD few Legislators or Medical professionals have stepped up to speak up to advocate for either themselves or for the Patient's who are being forced to go without effective medical treatment.
Nor has most of the general public or the mainstream media given the issue much attention.
The disinformation campaign has been extremely effective. The false narrative that the #OverdoseCrisis is/was driven by prescription pain medication has convinced people that limiting
medical access will help reduce #Addiction & thus save lives.
Of course, no one is considering the lives of the people who have been left without medical access and what their options are now. The government touts RX reduction as a success. But the only thing they are measuring
is reduction in prescribing.
They are not measuring patient outcomes.
When patients quality of life deteriorates to the point they are no longer able to function without assistance & the pain becomes unbearable, they are left without any good options
Most patients with incurable chronic illnesses have already exhausted all other treatment options prior to beginning #Opioid therapy.
Claims that opioids are a 1st line treatment for #ChronicPain are false. They are rarely if ever a 1st line treatment. The only time they are
when there's been a traumatic injury, pain can not be managed with a lesser treatment modality or RX are medically contraindicated.
With both #Abortion & #PainManagment na individual's rights to Bodily Autonomy & Patient Autonomy are at issue.
However, policy makers, and the majority of the media, the medical community & the public choose to ignore the fact. Preferring to do adopt the more comfortable false
belief that denying individuals with incurable #pain conditions access to #opioid analgesics, or limiting dosages to a subtherapeutic level will prevent #addiction & it's *for their own good*.
Most people don't realized that patients are being forced to play a potentially deadly
game of Medical Roulette.
Where they have to choose *which* medical condition will be left untreated.
And, if medically documented, they are unable to discontinue either treatment plan, instead of accommodating their disability, patients are discharged from medical practices.
Patients' Informed Consent is frequently violated & they are coerced into involuntarily consenting to repeated invasive medical procedures that have provided no benefit as a condition of receiving the prescription medication that does improve function & their quality of life.
Most courts have based a right to refuse treatment either solely on the common law right to informed consent or on both the common law right and a constitutional privacy right.
"As a pure legal issue, forcing treatment on an unwilling person is no different from attacking that person with a knife. The legal term for a harmful or offensive touching without permission is battery. Battery is a criminal offense,
and it can also be the basis of a civil lawsuit.
The key element of battery is that the touching be unauthorized, not that it be intended to harm the person."
Most individuals however, will not file a complaint or even speak up. They are so terrified of losing what little care they are currently receiving.
Or, they are concerned about being blackballed with other providers in the area and being unable to locate any other
medical treatment.
So, instead, most remain silent. Not unlike victims of domestic violence who are continuously subjected to abuse, yet see no way to escape their abuser.
When the abuse is being inflicted by the health care system and medical professionals
attempting to avoid unwarranted targeting by law enforcement for providing #PatientCenteredCare, there are no truly safe viable options for patients with complex chronic illnesses & disabilities with #pain as a component.
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The options for patients deprived of medical assistance to maintain their health are untenable.
For patients in my daughter's situation where her Seizure RX is involved the outlook is bleak. With less than 10-days remaining to resolve the situation her health & safety are
uncertain.
Will she survive? That's our main primary concern.
Will she die of medical neglect or be forced to attempt to self-medicate via the illicit market.
Forced to play a deadly game where all potential *options* may be cost her her life.
🧵The narrative that opioids aren't effective for chronic pain is false.
They manipulate perception by relying only on Randomized Controlled Trials (RTC) & excluding all Observational Studies (OS).
And by perpetuating the logical logical fallacy that Cancer & Non-Cancer
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pain a biophysical difference between them.
"The problem with this distinction is that there is very little evidence to support a difference between these two broad categories. As Peppin and @headdock point out: ~ @ewidera
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“These claims are primarily philosophical, rather than medical or physiologic. As mentioned, pain mechanisms do not discriminate between cancer and noncancer pathophysiology. Patients with cancer or those without cancer have essentially identical pain-generating
The ONLY way to prevent future occurrences is to understand WHY it is happening & avoid Fear Mongering & casting aspersions on a population of patients who are experiencing Systemic #Discrimination.
Under & Untreated patients experiencing unremitting pain are more likely to
Three cases of people committing such an extreme act of violence is NOT a trend & is NOT reflective of the #PainPatient population as a whole.
There are an estimated 50 million people living with #ChronicPain.
These cases are anomalies, the Root Cause needs to be addressed
Doctors can’t help people in pain because of restrictive opioid policy. ~ @dr4liberty@RMengerMD
ITHERETWEETER1://reason.com/2022/06/07/americas-failed-opioid-policy-drove-the-tulsa-shooter-to-violence/ via @reason
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There is no clear definition of overprescribing. Yet policy makers keep doubling down on a misguided mission to reduce or eliminate opioid prescribing, putting patients back in miserable pain and mental anguish, driving some to suicide and others to the black market.
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Now, it may have driven one person to homicide.
All the while, overdoses soar among the population of nonmedical users who long ago moved on to heroin and fentanyl.
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The protections for individuals with disabilities under the American's with Disabilities Act are not being enforced when patients with painful diseases report experiencing discrimination.
To influence lawmakers we need everyone to get involved.
Here’s what you can do!
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Take Action 🗣️ 📢
Send an Inquiry to the Justice Department Civil Rights Division on the Status of Guidance for the Protection of Patients With Painful Diseases Pain, Policy Modification Requirements Under the Americans with Disabilities Act
2/
and Request Immediate Action be taken!
A sample inquiry is attached that can be personalized for your own use to copy & paste into the web portal and/or modified to send to your Congressional Reps.