This month, we’re celebrating #DisabilityPride, recognizing how far we’ve come & also how far we have left to go to secure justice & equity for all people with #PWD in the U.S. Join us all month long to learn more & to celebrate the ADA anniversary later in July! #ADA2022 #C19LAP
This month, we’re celebrating the rights promised by the ADA & reflecting on what more must be done to make its promises a reality. 32 yrs later, disability remains a cause & consequence of poverty in the U.S. It’s time to secure economic justice for all disabled people! #ADA2022
According to polling from @TCFdotorg @DEJCollab & @DataProgress, 8 in 10 voters across the political spectrum support updating Supplemental Security Income’s outdated asset limit to help more people w/ disabilities thrive. Learn more:… #ADA2022
More than 3 decades ago, the ADA promised equal rights and opportunity for people w/ disabilities across the country. But today, economic security remains out of reach for far too many. Join us this month to celebrate the ADA & discuss how far we still have to go. #ADA2022
Supplemental Security Income (#SSI) provides critical support to millions of people w/ disabilities and their families. But the SSI program hasn’t been updated in nearly 40 years, consigning many to inescapable poverty. It’s time to update SSI! #ADA2022
One key step for breaking the link between disability and poverty? Updating the Supplemental Security Income program would cut the number of #SSI beneficiaries living in poverty in half, according to @UrbanInstitute:… #ADA2022
Nearly 8 million disabled people & seniors rely on Supplemental Security Income (SSI) to survive. But the program has not been updated in decades, trapping millions in poverty. #SSI beneficiaries share in their own words why we must update SSI:… #ADA2022
Nearly 40 yrs of shameful neglect of the #SSI program means it now traps millions of disabled people & seniors in poverty, when it was meant to provide a way out. Read more from @rebeccavallas on why we must bring SSI into the 21st century:… #ADA2022
Delivering on the promises of #SocialSecurity & #SSI requires adequately funding the @SocialSecurityAdministration. @kromig @bethanylilly @traceythomgron talked with @rebeccavallas about the human toll of defunding SSA:… #ADA2022

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More from @C19LH_Advocacy

Mar 2
Tonight, millions of #Longhaulers were hoping that @POTUS would become a champion for #LongCovid by utilizing his platform to create more awareness & educate the American people about the sheer devastation Long Covid has caused & will continue to cause for decades. He didn't.
We hoped @potus would continue to emphasize mitigation efforts being essential in our battle against #COVID19 & #LongCovid. Instead, Americans were told they could remove their masks as we move back towards a "safer normal" & that those vaccinated & boosted are protected.

For #Longhaulers, there is no "return to normal." We also know that people can still get infected with #COVID19 even if vaccinated. While vaccination helps prevent severe disease during acute infection, we KNOW that #LongCovid most commonly occurs in mild-moderate cases.
Read 18 tweets
Feb 28
Please check out our piece on @NBCNightlyNews tonight!

Awareness & education are key in propelling the #LongCovid & #chronicillness community forward. #Longhaulers in the millions are being failed in healthcare & social supports.

Options have run out. #LongCovidActionNow
We want to thank @NBCNightlyNews @CynthiaMcFadden & @KitRamgopal for highlighting the struggle #longhaulers face trying to access benefits.

We hope to see @POTUS address the devastation of #LongCovid in the upcoming #SOTU address & take immediate action to help millions.
Our founder & president (featured in the story @K_Bishof ) can be reached at or you may check out & contact us through our website or on Facebook
Read 5 tweets
Jan 27
We want to thank MN Governor @GovTimWalz for his latest supplemental budget recommendations which include approximately $3 million per year to establish a permanent state office for #LongCOVID!

We are unsure if this is a result of a request we and 2 other orgs sent a few months ago, but we are eager to collaboratively work together on this and help educate those who will be involved, once this budget is approved and the program is in place.

In order for it to go into effect, the Minnesota state legislature must pass an authorizing bill and appropriate money during it's 2022 legislative session,which runs from January 31 to May 23.


Read 7 tweets
Nov 17, 2021
For those who asked, this study is accepting those hot local to Miami whether you are still in Fl or are willing to travel to participate
(see parts 2-5 for more info)
Mention my name when reaching out (Karyn).
For those new to this. This is my myocarditis doc at university of Miami doing this study.
-Covid attacks our endothelium, which we have in every aspect of our body. We complain of blood pooling, bad veins, easy brushing, poor circulation, hr and bp issues.
A lot of this is likely from endothelial dysfunction which I believe *may* be the trigger of pots or dysautonomia in many of us.
- I only grew 1 of 6 tubes back showing endothelial dysfunction.
Read 5 tweets

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