About to start watching the inspiring advocates of the #dedoc° symposium that was held earlier today at #EASD2022 🍿

Sad I couldn't watch it live. Couldn't wait to catch up here ▶️

#nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 1/n
I already know many happy tears will be shed listening to their inspiring advocacy work 🥲

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy #languagematters
@EASDnews @dedocORG 2/n
Dedoc° symposium, What we wish you knew and why:
'It's the 1st ever #dedoc° symposium at #EASD2022'. This is what I had in mind 10y ago - a panel of advocates at the world largest #diabetes conference.'

-Bastian Hauck, @dedocORG founder

#nothingaboutuswithoutus
@EASDnews 3/n
Dedoc° symposium -What we wish you knew and why:
'The #dedocvoices are at the ❤️ of everything #dedoc° does. Our scholarship brings about 150 #diabetesadvovates from around the world to conferences like this.'
- @tadorna

#EASD2022 #payitforward
@EASDnews @dedocORG 4/n
Dedoc° symposium -What we wish you knew and why:
'Prof. Chantal Mathieu, President of #EASD, has made this happen. Thank you @professorcm ❤️'
- @tadorna

[me, 🥹 already]

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 5/n
#dedoc° symposium -What we wish you knew and why:
'Welcome to the most important members of the team, people living with #diabetes. Now, you are where you should be & you need to speak up 📢'
- Prof. Chantal Mathieu

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 6/n
#dedoc° symposium -What we wish you knew and why:
'When Covid started the #DOC worked on how we could remain connected though so much had already been done. Peer support & peer to peer learning is life saving & life changing.'
-@RenzaS

Yes ❤️

#EASD2022
@EASDnews @dedocORG 7/n
#dedoc° symposium -What we wish you knew and why:
'Even b4 the Covid pandemic hit, #PwD had a couple of decades of building & expanding their peer support online. But not everyone is online.'
-@AndreaLimbourg

#EASD2022 #nothingaboutuswithoutus #diabetes
@EASDnews @dedocORG 8/n
#dedoc° symposium -What we wish you knew and why:
'FB groups & community support have been instrumental on how to build & use #DIYAID. Groups grew exponentially from local to international level.'
-@AndreaLimbourg

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 9/n
#dedoc° symposium -What we wish you knew and why:
'The #DOC enables us to find people like us all over the world. #diabetes is hard & can be quite isolating but we don't have to do this alone.'
-@AndreaLimbourg

YES 🙏

#EASD2022 #nothingaboutuswithoutus
@EASDnews @dedocORG 10/n
#dedoc° symposium -What we wish you knew and why:
'We are on our own 99.98% of the time.
"The person w/#diabetes who knows the most lives the longest" remains true today.'
-@JeffHitchcock59 @cwdiabetes

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 11/n
#dedoc° symposium -What we wish you knew and why:
'More adults with #T1D are at @cwdiabetes now than kids. Thay have found their tribe and a place where everyone knows the beeps.'
-@JeffHitchcock59

🥹🙏🙏

#EASD2022 #nothingaboutuswithoutus #PwD
@EASDnews @dedocORG 12/n
#dedoc° symposium -What we wish you knew and why:
'We never knew that #Covid would actually bring us together. Online peer support in 🇿🇦 brought the comforting realisation that you are not alone ❤️'
-@salih_hendricks

#EASD2022 #diabetesadvocacy #PwD
@EASDnews @dedocORG 13/n
#dedoc° symposium -What we wish you knew and why:
'Peer support gave #PwD power. We passed on the info we gathered to the community without media access using the "Smoke Signal Media". We became family ❤️'
-@salih_hendricks #diabeticamputees

#EASD2022 @EASDnews @dedocORG 14/n
Dedoc° symposium -What we wish you knew and why:
'I'm not a number. I'm a person. I have #diabetes.'
-Tom Dean @welshy_89

THIS 👆

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy
@EASDnews @dedocORG 15/n
Dedoc° symposium -What we wish you knew and why:
'I was embarrassed. I was scared what people would think. I just wanted to be normal.'
-Tom Dean @welshy_89 #diabeteschat

Why have we all been there? Why?

#EASD2022 #dedoc°voices #PwD
@EASDnews @dedocORG 16/n
Dedoc° symposium -What we wish you knew and why:
'#diabeteschat - every Monday at 8PM GMT on Twitter - brings people together to share lived experience, connect and not feel alone.'
-@welshy_89

Again, why have we all been there ?

#EASD2022 #dedoc°voices
@EASDnews @dedocORG 17/n
Dedoc° symposium -What we wish you knew and why:
'Find you tribe. Love them hard.'
-@tadorna quoting @RenzaS ❤️❤️❤️

#EASD2022 #dedoc°voices #nothingaboutuswithoutus #diabetesadvocacy #EASD
@EASDnews @dedocORG 18/n
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More from @1derfultype

Oct 18
🧵 Adult care perspective on interventions for macrovascular complications in #T1D -D Mauricio

⬆️ CVD risk
⬆️ Large gap in CVD outcomes: morbidity + mortality
⬆️ Excess mortality ⬆️ when early onset
⬆️ Years lost consistently proven

#ISPAD2024 #dedoc° @ispad_org @dedocORG #PwD Adult care perspective on interventions for macrovascular complications (how early to intervene) -D Mauricio
Image
Image
Image
🧵 Adult care perspective on interventions for macrovascular complications in #T1D -D Mauricio

🫀 Excess CVD risk (average in T1D):
⬆️ Morbidity: 🚹x2.4-3.6 & 🚺 x3.0-7.7
⬆️ Mortality: 🚹x2.6-8.8 & 🚺 x2.7-24.7 😨

Early T1D onset next ⤵️

#ISPAD2024 #dedoc @ispad_org @dedocORG Adult care perspective on interventions for macrovascular complications in #T1D -D Mauricio: Excess CVD risk
@ispad_org @dedocORG 🧵 Adult care perspective on interventions for macrovascular complications in #T1D -D Mauricio

🫀 Excess+ #CVD risk in early T1D onset:
⬆️ Morbidity: x11.4 if <10yo & x3.8 if >26yo
⬆️ Mortality: x7.4 if <10yo & x3.6 if >26yo

⬆️⬆️⬆️ for 🚺

#ISPAD2024 #dedoc° @ispad_org Adult care perspective on interventions for macrovascular complications in #T1D -D Mauricio: Excess+ CVD risk in early T1D onset
Read 18 tweets
Oct 16, 2022
🧵How can #HCP assist people who chose to use #DYIAID?

The @OPENDiabetesEU ⤵️
▶️ Katarina Braune is a co-founder
▶️ Patient-led
▶️ 2/3 of the international team live w/#T1D
▶️ #OpenSource #AID data

#ISPAD2022 #dedoc°voices #wearenotwaiting @dedocORG @ispad_org 1/n
How can #HCP assist people who chose to use #DYIAID?

#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 2/n
How can #HCP assist people who chose to use #DYIAID?

International consensus statement on #OpenSource automated insulin delivery ⤵️
✅ Published in @TheLancetEndo on Nov 13 2021
▶️ thelancet.com/journals/landi…

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n
Read 22 tweets
Oct 16, 2022
🧵#AI based decision support systems:

✅ Improves clinical outcomes
✅ Higher access to care
✅ Provides precision medicine
-Revital Nimri

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n
#AI based decision support systems:

'Is the quality of care improving?
No, it isn't.
We must do better.'
-Revital Nimri

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n
#AI based decision support systems:

✅ Self-management tools
✅ Diagnosis, screening, prevention of #diabetes
✅ Prediction tools
✅ Clinical management
-Revital Nimri

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG @ispad_org 3/n
Read 6 tweets
Oct 16, 2022
@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG 1/n
@lifeforachild /@ispad_org survey - shifting responsibility:
'Task-shifting & task-sharing: moving a task on from one #HCP to another & where staff from different discipline split the tasks. We are very interested in task-shifting in #T1D'
-Emma Klatman ❤️

ISPAD2022 #dedoc° 2/n
@lifeforachild /@ispad_org survey - shifting responsibility:
'We want to document the level of task-shifting and understand who from the clinical team is doing what. We established en survey in 2021 in many languages.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc° @dedocORG 3/n
Read 8 tweets
Oct 15, 2022
The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

Missed T1D diagnoses are legion 💔

1⃣9⃣8⃣7⃣ Sydney: a 15yo boy passed away because of misdiagnosis as he'd just had chicken pox

#ISPAD #ISPAD2022 #dedoc°voices @lifeforachild @ispad_org 1/n Image
The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

1⃣9⃣9⃣6⃣ Phnom Penh: no child alive with T1D in Cambodia then.
A boy had a late diagnosis, had had a dose on #insulin, but no fluid yet. He passed away 💔

#BG: 105mmol/1890mg

#ISPAD2022 #dedoc° 2/n Image
The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

2⃣0⃣1⃣5⃣ Ghana: an 18yo girl was misdiagnosed with ectopic pregnancy because of acute abdomen, died during theatre where T1D diagnosis was made 💔

#ISPAD2022 #dedoc°voices @lifeforachild @ispad_org 3/n Image
Read 13 tweets
Oct 15, 2022
🧵Digital health for improving self-care and mental health in youth with T1D:

Benefits of tech:
▶️ scalable particularly in mental health interventions
▶️ reduce stigma
▶️ accessible 24/7
▶️ taylored tools
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°@dedocORG @ispad_org 1/n
Digital health for improving self-care and mental health in youth with #T1D:

Challenges of tech:
▶️ access
▶️ literacy
▶️ security
▶️ clinicians awareness
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°voices
#diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n Image
Digital health for improving self-care and mental health in youth with #T1D:

Challenges of tech:
▶️ engagement matters
▶️ make sure to include users during development
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°voices
#diabetesadvocacy #payitforward @dedocORG @ispad_org 3/n Image
Read 8 tweets

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