Dedoc° symposium, What we wish you knew and why:
'It's the 1st ever #dedoc° symposium at #EASD2022'. This is what I had in mind 10y ago - a panel of advocates at the world largest #diabetes conference.'
Dedoc° symposium -What we wish you knew and why:
'The #dedocvoices are at the ❤️ of everything #dedoc° does. Our scholarship brings about 150 #diabetesadvovates from around the world to conferences like this.'
- @tadorna
Dedoc° symposium -What we wish you knew and why:
'Prof. Chantal Mathieu, President of #EASD, has made this happen. Thank you @professorcm ❤️'
- @tadorna
#dedoc° symposium -What we wish you knew and why:
'Welcome to the most important members of the team, people living with #diabetes. Now, you are where you should be & you need to speak up 📢'
- Prof. Chantal Mathieu
#dedoc° symposium -What we wish you knew and why:
'When Covid started the #DOC worked on how we could remain connected though so much had already been done. Peer support & peer to peer learning is life saving & life changing.'
-@RenzaS
#dedoc° symposium -What we wish you knew and why:
'Even b4 the Covid pandemic hit, #PwD had a couple of decades of building & expanding their peer support online. But not everyone is online.'
-@AndreaLimbourg
#dedoc° symposium -What we wish you knew and why:
'FB groups & community support have been instrumental on how to build & use #DIYAID. Groups grew exponentially from local to international level.'
-@AndreaLimbourg
#dedoc° symposium -What we wish you knew and why:
'The #DOC enables us to find people like us all over the world. #diabetes is hard & can be quite isolating but we don't have to do this alone.'
-@AndreaLimbourg
#dedoc° symposium -What we wish you knew and why:
'We are on our own 99.98% of the time.
"The person w/#diabetes who knows the most lives the longest" remains true today.'
-@JeffHitchcock59@cwdiabetes
#dedoc° symposium -What we wish you knew and why:
'More adults with #T1D are at @cwdiabetes now than kids. Thay have found their tribe and a place where everyone knows the beeps.'
-@JeffHitchcock59
#dedoc° symposium -What we wish you knew and why:
'We never knew that #Covid would actually bring us together. Online peer support in 🇿🇦 brought the comforting realisation that you are not alone ❤️'
-@salih_hendricks
#dedoc° symposium -What we wish you knew and why:
'Peer support gave #PwD power. We passed on the info we gathered to the community without media access using the "Smoke Signal Media". We became family ❤️'
-@salih_hendricks#diabeticamputees
Dedoc° symposium -What we wish you knew and why:
'I was embarrassed. I was scared what people would think. I just wanted to be normal.'
-Tom Dean @welshy_89#diabeteschat
Dedoc° symposium -What we wish you knew and why:
'#diabeteschat - every Monday at 8PM GMT on Twitter - brings people together to share lived experience, connect and not feel alone.'
-@welshy_89
How can #HCP assist people who chose to use #DYIAID?
#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.
@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️
@lifeforachild /@ispad_org survey - shifting responsibility:
'Task-shifting & task-sharing: moving a task on from one #HCP to another & where staff from different discipline split the tasks. We are very interested in task-shifting in #T1D'
-Emma Klatman ❤️
@lifeforachild /@ispad_org survey - shifting responsibility:
'We want to document the level of task-shifting and understand who from the clinical team is doing what. We established en survey in 2021 in many languages.'
-Emma Klatman ❤️
The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:
1⃣9⃣9⃣6⃣ Phnom Penh: no child alive with T1D in Cambodia then.
A boy had a late diagnosis, had had a dose on #insulin, but no fluid yet. He passed away 💔