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NotRecovered Profile picture
@Not_Recovered
May 20 • 6 tweets • 5 min read Twitter logo Read on Twitter
⚠️ 🚨 ⚠️

Many of us can no longer protest on the streets to draw attention to our situation.

That's why #NotRecovered, with the support of many other organizations, is launching the ❗️campaign ❗️

👉#LetterForLife.

Only three steps are needed to support 👇🏻

1/5 🧵
🟡Step 1

Write a postcard to @SKyriakidesEU and @GabrielMariya to raise awareness about #LongCovid, #MECFS and associated conditions and call for more research and better care. ...

Tip: Web services such as mypostcard.com, simplify the sending of postcards.

2/5 🧵
🟡Step 2

Send the postcards in the timeframe of 5 June – 9 June to @SKyriakidesEU & @GabrielMariya.

Stella Kyriakides
Rue de la Loi 200 / Wetstraat 200
1049 Bruxelles / Brussel
Belgien

Mariya Gabriel
Rue de la Loi 200 / Wetstraat 200
1049 Bruxelles / Brussel
Belgien

3/5 🧵
🟡Step 3

Share your postcard on social media to draw attention to the #LetterForLife campaign and motivate your friends and family to send a postcard as well.

4/5 🧵
Please visit our website for further Information about the #LetterForLife campaign and

👉 post cards templates
👉guide how to use mypostcard.com-service

Participate and Retweet ❗️

5/5 🧵

👇🏻👇🏻👇🏻

notrecovered.org/letter-for-lif…
NOTE this TIP👇🏻

the mypostcard-#App allows to #shedule the #shipping!

You can create and finish the postcard today and sent it later at the planned timeframe of the campaign (05.-09.06.2023) 😃 Image

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More from @Not_Recovered

NotRecovered Profile picture
Dec 19, 2022
„After my first #covid #vaccination I felt headache during and after exercise and I had to vomit. I thought I've been busy, didn't sleep well, this will pass.
But I was wrong. After the booster vaccination in January 2022 I got #heart #palpitations while exercising. …“

1/4
„It got worse also during work and climbing stairs. My heart bests raised up to 165 per min.
In March 2022 I got #covid, mild /moderate - some headache.
But heart complaints were getting worse and I got pain in my left arm and neck. Cardiologist couldn't find anything. …“

2/4
„Since March 2022 my life paused. I worked as a physicaltherapist with people who have cancer. 
I exercised 6 times a week, I sang in a band and acted for fun.
In result of rehabilitation I can walk slowly for 50 minutes again. I'm still unable to work. …“

3/4
Read 4 tweets
NotRecovered Profile picture
Dec 18, 2022
„Since #Covid I suffer from #headaches, #tiredness, concentration problems, #brainfog, #dizziness, physical problems, loss of taste and smell and sometimes tightness on the chest. I follow physio- & ergotherapy. My husband is also suffering from #longCovid …“
- @IrisdeReus

1/4
„In hospital I did several long capacities tests and blood test. These test are standard and only gave results about my bad condition. They don’t solve the long Covid symptoms. After a year being sick I’m still making small steps in the right direction. …“
- @IrisdeReus

2/4
„I tried to return to work. I joined a 1 hour meeting with a small group of colleagues at the office, then I driven back home.
I still can’t handle noise or big groups. My life has changed from doing spontaneous things to making plans for each day and pacing.“ - @IrisdeReus

3/4
Read 4 tweets
NotRecovered Profile picture
Dec 18, 2022
„#longcovid. I have had it twice now. Never recovered from first infection. I am no longer able to stand for very long or make meals for my family. I can no longer work as I continuously have #fatigue, #migraines, #nausea, nerve #pain and #brainfog. …“

1/4 Image
„I use to work full time and just started a new job with the IRS after a pause from working as a mail carrier for 12 years. I can no longer do my daily of walks of 3 to 5 miles. Or spend time hiking or kayaking. …“

2/4
„I enjoyed baking breads and pies and helping my older sister and aging parents out. I can no longer do that. I am a shell of myself. I have spent thousands of dollars and countless appts trying to figure out what was wrong with me in the beginning. …“

3/4
Read 4 tweets
NotRecovered Profile picture
Dec 17, 2022
“#Covid has left me with a slew of neurological problems that have require me to use a wheelchair. I have cut back to teaching part time as full days made me more ill. Exercise for more than a few minutes leaves me with flu like symptoms for weeks at a time. …”

1/4 Image
“Before #LongCovid, I was athletic and constantly busy manning theatre productions working with my high school students. I took aerial gymnastics classes, rode horses my whole life, and enjoyed running. …”

2/4 Image
“I now experience daily complex migraines and have been diagnosed with #POTS as well as #MECFS as a result of Covid. I have had multiple cardiac ablations for #arrhythmias that appeared a week from symptom onset, tried exercise regimens, natural approaches,… “

3/4
Read 4 tweets

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