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Alison Reiheld, PhD Profile picture
Alison Reiheld, PhD
@AlisonReiheld
Philosopher, Bioethicist. "Struggling to be brief, I become obscure." - Horace Pronouns: she/her
Nov 19, 2019 • 36 tweets • 9 min read
THREAD: Yesterday, we saw negative narratives from my #TransHealthEthicsProject interviews with #trans folks re: #healthcare. Most had a mix of both pos & neg. What does good care look like? And what are some tips/guidelines for delivering it? 1/n
#TransAwarenessWeek #bioethics Let's start w/Simon, whose negative experiences we saw yesterday, including being misgendered and outed by front office staff, especially when he sought Gyn care. I asked all participants to say what would be better--or in fact was better sometimes--than negative experiences. 2/n
Nov 18, 2019 • 37 tweets • 16 min read
THREAD: Sunday, I tweeted re: trans folks' feelings seeking healthcare: anxious, humiliated; when it works, good. Here are some narratives that help explain. We'll do negative narratives today, and positives Tuesday.
#TransHealthEthicsProject
#TransAwarenessWeek
#bioethics Paul Farmer, public health advocate and a founder of Partners in Health (@PIH) says, “stories illustrate some of the mechanisms through which large-scale social forces crystallize into the sharp, hard surfaces of individual suffering.” #narrativematters #bioethics #meded
Nov 18, 2019 • 8 tweets • 5 min read
THREAD: "What words or phrases come to mind when you think about seeking health care?" I asked #trans & #nonbinary folks in #TransHealthEthicsProject. This word cloud shows the overall sense of dismay. The individual responses are a gut punch. 1/n

#TransAwarenessWeek #bioethics "Do I have to?
Will I die if I don't?
How much is this going to cost?"
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"Embarassing. Humiliating. Judgmental."
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"Anxiety. Being discovered. Not getting the care that I need. Not being believed. Becoming an experiment."
2/n
 #TransHealthEthicsProject #TransAwarenessWeek
Nov 16, 2019 • 7 tweets • 6 min read
THREAD:#TransHealthEthicsProject interviews w/#trans folks are "thick" examples of barriers to care described generically in surveys. #doctors & #nurses often say "those patterns are terrible, but how can I know if I am doing it?" #narrativematters #bioethics #TransAwarenessWeek I used a standardized array of interview questions across 15 hours of interviews with trans folks regarding their experiences seeking health care in the United States, both POSITIVE AND NEGATIVE, to give providers #narrative examples/guidelines on what not to do, AND what to do.
Nov 14, 2019 • 9 tweets • 4 min read
THREAD: This summary of key findings from the "largest-ever study of transgender and gender non-conforming people in the United States" is essential reading for #medical and #nursing personnel. 1/n
#TransAwarenessWeek
#TransHealthEthicsProject
#bioethics
thetaskforce.org/new-report-rev… “Finding doctors who will treat, will prescribe, & will even look at you like a human being rather than a thing has been problematic. Have been denied care by doctors & major hospitals so much that... I never reveal my gender history.” — Survey Respondent 2/n