Can anyone help this family in Dunfermline, Fife?

Courtney, 13, had #Covid19 in March '20 (+ve PCR in hospital) and developed #LongCovid.

She had #COVID19 again in March '22 and her condition has significantly worsened.

The family have no support. Can you help?
#LongCovidKids "The paediatrician told me she'd recover fully within 6months, then it was 12 months, 18 months, and on 11th May he tells us there's no cure & no treatment & she's as good as she can be. But after 2nd #covid infection she's worse than what she was."
#LongCovidKids #LongCovid

🏴󠁧󠁢󠁥󠁮󠁧󠁿 "updated" their testing prerequisites. Sort of. Not really.

We have a similar issue in 🏴󠁧󠁢󠁳󠁣󠁴󠁿

📚HYPOTHETICAL STORYTIME📚
I'm a 10yr old with a sore tummy, runny nose & headache. My classmate just tested positive for #COVID19. I'm not classed as a close contact. LFD is -ve.

https://twitter.com/LongCovidKids/status/1441296435614404609

But I feel poorly & I sit on table close to +ve classmate. Prob best to PCR, right?

Mum goes to book PCR on @scotgov NHS Inform & runs into a problem. My symptoms of sore tummy, runny nose & headache are not listed, I'm not a "close contact" & LFD -ve.

#LongCovidKids #LongCovid

We are concerned @jasonleitch feels that parent advocate groups for either side of the argument are extremists.

~It's either the "UsForThem lot" shouting to give kids their freedom & open up, or the other ones shouting 'stop letting the virus spread, you're killing our kids.'~

https://twitter.com/EliEsDes/status/1440745824317698051

@jasonleitch The difference is that we are parents of #LongCovidKids. We see first hand how #COVID19 has affected our children.

There are ~4000 children in our group & very few have recovered. The majority of them have now passed the 12 month mark & are still debilitated.

🏴󠁧󠁢󠁳󠁣󠁴󠁿 Schools back for 3 weeks 🏴󠁧󠁢󠁳󠁣󠁴󠁿

#DeltaVariant is ripping through schools.

From 16th Aug - 2nd Sept inclusive: 💥26,836 cases age 0-19💥

💔~1% will be hospitalised (268)
💔~14% will be #LongCovidKids (3757)
💔~0.01% - 0.03% will die (2 - 8) 😢

#LongCovid #COVID #BackToSchool Some schools in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 have already been forced to close due to staff absence from #COVID19

Some classes are are half empty as children continue to pass #DeltaVariant between one another.

🛑On 16th Aug 🏴󠁧󠁢󠁳󠁣󠁴󠁿 recorded 477 new child cases
🛑On 2nd Sept 🏴󠁧󠁢󠁳󠁣󠁴󠁿 recorded 2596 new child cases

Brilliant easy to read article 👇👇👇

TL;DR
👉~14% of people who catch covid-19 end up with lasting symptoms: ~25 million people worldwide.
👉Could be big underestimate - less than 10% of infections detected - true figure could be nearer 250 million.

sciencedirect.com/science/articl… 👉No universally agreed definition.
👉NIHR divide #LongCovid into 4 groups: those with after-effects of ventilation; those with organ damage caused by #SARSCoV2; those with post-viral fatigue syndrome; miscellaneous group that the authors call those with long-term covid syndrome.

Several children in our group have had a diagnosis #PANS triggered by Covid infection.

💙PANS = Paediatric Acute-onset Neuropsychiatric Syndrome💙

A sudden onset of:
👉 OCD symptoms and/or severe eating restrictions
👉 Cognitive, behavioural, neurological symptoms (at least 2) 😢"It’s like my child woke up as a
completely different person!"😢

#PANS kids display a dramatic personality
change, some #OCD, tics or issues with
food, together with a number of other symptoms
usually following some kind of infection.

panspandasuk.org