@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd So much truth - IMO this flip to consumerism WITHOUT full participation of both clinical experts and patient community leaders in creating health literacy resources for humans is root cause of much "I did my own research" nonsense now driving medical misinformation online. @ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd What I mean by that is "the academy" (in this instance the @AmerMedicalAssn who I give fish-eye to on the regular over their K St lobbying in service of status quo in US healthcare spend, but I digress) has missed eleventy-million-and-five opportunities to ... /2

I don't know who needs to hear this, but if you're raising a daughter, and there's any chance that daughter might be driving cars in her lifetime? Teach that daughter how to do basic car maintenance stuff.
🧵/1 My own dad, despite being Top Gun Navy jet-jock, was notoriously not Mr. FixIt, at all, so he bought me a AAA membership when I turned 18yo. I went on to self teach, b4 the web (looong b4), how to do lotsa stuff re car maintenance.
/2

@janoldenburg @RealCedricDark @jeremyfaust oh, happy to share!
A Watergate "I vas dere, Cholly!" 🧵
First, there was actual break-in. No family involvement there, thank gawd.
Then there was slow-rolling reveal on all of the things via WaPo reportage, which I saw in wire stuff in SFChron, where I lived.
/1 @janoldenburg @RealCedricDark @jeremyfaust This was back in day of three TV channels.
In my Haight apt I had old Admiral b&w massive piece of furniture w/tiny TV screen that was 1st fam TV before I was even born.
What I watched Watergate hearings on.
Mostly nightly news packages, then
THERE'S A SURPRISE WITNESS!
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Considering that every email I get from @statnews includes a "sponsored by @PhRMA" banner, seeing this does not surprise me. Nor does PhRMA's willingness to lie about their true purpose: shareholder value outstrips human life.

https://twitter.com/PhRMA/status/1184848671327899649

Also high on @PhRMA to-do list is making sure only T1Ds with $$, Hep-C patients ditto, and CF patients too. And let's not forget cancer patients, including children, who find themselves on the receiving end of shortages - yes @TevaUSA I'm looking at you - or straight up cut-offs.

@dmccallie @HealthPrivacy @rickybloomfield @CommonWell Oh, my dude. So "nope" on that. If provider-provider solutions were either (a) present or (b) possible as solutions, woulda happened by now. But we're still in the clutches of Capt. Click, were dropdown menus proliferate but actual data/work flows are frozen sludge /1 @dmccallie @HealthPrivacy @rickybloomfield @CommonWell Dirtiest of dirty secrets in this arena is that there's no money in interop. Duplicative processes, rabbit holes where handoffs should be, all in service of preserving ever'body's revenue flow. NO ONE wants to give up their slice of ... /2

You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights

My input on #HIPAA2019 = from cheap seats. RFI commentary, in snips. Doctors and other clinical providers SHOULD NOT be required to release patient information to other doctors WITHOUT THE EXPRESS PERMISSION, per case/per data set, of the patient whose PHI is being released. /1 Information about mental health care, or genetic screening/testing, received by a patient SHOULD NOT be shared WITHOUT THE EXPRESS PERMISSION, per case/per data set, of the patient whose PHI is being shared. /2

In case @hmkyale + @drjrums wonder why I got so shirty about JAMA article calling for #SDOH mining from social networks like, say, Facebook (shirty evidence here: threadreaderapp.com/thread/1075892…) allow me to expound. #cyberwoke First, ICYMI, Facebook's treachery against patient + #MeToo communities in wake of Cambridge Analytica cock-up reveal. PHI revealed in what members thought were walled gardens? NOPE. cnbc.com/2018/07/11/fac… #HBOC #cyberwoke

OK. So there's a piece (no paywall) on @JAMA_current today by Freddy Abnousi (head of #healthcare @facebook), @hmkyale, +@DrJRums "Social Determinants of Health in the Digital Age: Determining the Source Code for Nurture." jamanetwork.com/journals/jama/… #cyberwoke /1 Before you think this is any kind of good news, remember that @Facebook has successfully incinerated democracy in several places, in the process turning all of us into meat puppet data cash machines (we don't get the cash) and now ... #cyberwoke /2