2 years ago today, @rachael_scar and I walked into the neurologist's office. She was carrying 4-month-old Baby Carl on her chest.
We walked out an hour later with my death sentence. ALS would paralyze and then kill me, and there wasn't anything we could to stop it.
We walked out an hour later with my death sentence. ALS would paralyze and then kill me, and there wasn't anything we could to stop it.
How would we persevere? What we do with the short time I had left? How could we find hope in the dark?
These were our personal challenges. But they became questions for the nation a month later when Donald Trump was elected president.
These were our personal challenges. But they became questions for the nation a month later when Donald Trump was elected president.
Over the past 24 months, I lost the ability to run, and then even to walk; the ability to cut food, and then even to feed myself; the ability to speak quickly, and soon even to speak at all.
And yet, this journey has been better than I feared. On most days, I am happy.
How?
And yet, this journey has been better than I feared. On most days, I am happy.
How?
I've survived thanks to an outpouring of collective love, support, and action—from my wife, my parents, our friends, and from thousands of you who I have never met.
And it turns out, our nation is surviving this moment in the same way.
And it turns out, our nation is surviving this moment in the same way.
Over the past 24 months, in the face of unprecedented attack on our dignity and welfare, millions of us have joined together in collective love, support, and action.
We retain hope in the dark. But that hope must drive us to act.
We have one month to chart a new course.
We retain hope in the dark. But that hope must drive us to act.
We have one month to chart a new course.
When I come to the end of my life, I want to look back with pride on what I've done in this heady moment.
I know that you all do, too.
Let's make it so.
I know that you all do, too.
Let's make it so.
