Good point on #evaluation. So why aren't ALL public sector & Government contractors under #FOI, and #required to provide such data? Hiding behind 'commercial confidentiality' shouldn't be allowed.
"Sharing" is a two-way activity!
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While it may be implicit, any 'sharing' of #PersonalData must above all be #lawful - which means #necessary (for a particular, specified #purpose) and #proportionate. Individual #consent may provide one lawful basis; the notion of "public consent" is rather more hazy!
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In our experience, since Thomas-Walport and before, framing citizens' #rights and legal #safeguards as "barriers" is PART OF THE PROBLEM! (As have been all of the Gov't & public sector data initiatives - care.data being just one - that ignored public #trust.)
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People. Should. Know. How. Their. Data. Is. Used!
If you're not willing to tell them, then you aren't #trustworthy. And if you don't tell them, when people DO find out (generally after you've screwed up) then #trust isn't just "tenuous" - it collapses.
Hmm. Yet another report? Rather than asking the same questions in the hope of getting the answers you want, how about putting forward some concrete proposals? Or #implementing what can already be done?
(N.B. the law is actually pretty clear in this area; try abiding by it?)
Strong, transparent #PublicInterest & #PublicValue tests are OK, but one can only exceptionally override individuals' human & other rights (cf. s251 support in health) & opt-outs are essential.
Determining "system level governance structures" is Parliament's job, and statutory '#SafeHavens' already exist, e.g. @ONS & @NHSDigital. What other types of data do you want?
In anticipation of the much delayed #digitalIDcards "#NationalConversation", here are some questions on consequential issues that any good #consultation would cover...
[N.B. It ain't a conversation if you stick your fingers in your ears, go la-la-la, and ignore certain topics!]
1) What decisions can be made by those aged 13-16?
ID Minister @darrenpjones already admitted it'll be a #lifelong #IDscheme – for ONE baby to have a #digitalID, the system must be architected for ALL to have one – but when will children be required to *use* them, and for what?
@darrenpjones 2) Will the #IDcard (or an entry in the federated* ID database) describe the holder’s #genitals?
*There won't be a monolithic National Identity Register like @ukhomeoffice built last time – instead your details will be spread around government, linked by your unique #IDnumber...
Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...
To be clear, 30 individual NHS Trusts* are using #Palantir#Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals...
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?
And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController...