Phil Booth Profile picture
Jul 20, 2020 12 tweets 11 min read Read on X
A [Thread] on @CDEIUK's "Addressing trust in public sector data use" report:

gov.uk/government/pub…

(Likely in bursts)

1/x
Good point on #evaluation. So why aren't ALL public sector & Government contractors under #FOI, and #required to provide such data? Hiding behind 'commercial confidentiality' shouldn't be allowed.

"Sharing" is a two-way activity!

/2 Image
While it may be implicit, any 'sharing' of #PersonalData must above all be #lawful - which means #necessary (for a particular, specified #purpose) and #proportionate. Individual #consent may provide one lawful basis; the notion of "public consent" is rather more hazy!

/3 Image
In our experience, since Thomas-Walport and before, framing citizens' #rights and legal #safeguards as "barriers" is PART OF THE PROBLEM! (As have been all of the Gov't & public sector data initiatives - care.data being just one - that ignored public #trust.)

/4 Image
People. Should. Know. How. Their. Data. Is. Used!

If you're not willing to tell them, then you aren't #trustworthy. And if you don't tell them, when people DO find out (generally after you've screwed up) then #trust isn't just "tenuous" - it collapses.

/5 Image
These points aren't wrong, but don't forget consistent #misinterpretation & #misapplication of technical measures (e.g. trying to pretend #pseudonymised data isn't actually #PersonalData) is even more toxic to #trust, cf. theysolditanyway.com

Plus, "important" to who?

/6 Image
Hmm. Yet another report? Rather than asking the same questions in the hope of getting the answers you want, how about putting forward some concrete proposals? Or #implementing what can already be done?

(N.B. the law is actually pretty clear in this area; try abiding by it?)

/7 Image
Don't misconceive/muddle #rights & #interests!

Strong, transparent #PublicInterest & #PublicValue tests are OK, but one can only exceptionally override individuals' human & other rights (cf. s251 support in health) & opt-outs are essential.

"Society" doesn't have rights.

/8 Image
Umm. What exactly does @CDEIUK
think it is?!

Determining "system level governance structures" is Parliament's job, and statutory '#SafeHavens' already exist, e.g. @ONS & @NHSDigital. What other types of data do you want?

TIRED: "anonymised"
WIRED: #SafeSettings & #FiveSafes

/9 Image
Use cases are good; they let people know what you want to do, and what you expect the outcome(s) to be. They are testable, and provide focus.

Just make sure your "partners" aren't exclusively focused on their own narrow interests. That hasn't worked out so well before...

/10 Image
[Holding tweet]

That's enough for now. (N.B. I don't propose to go through the whole report paragraph by paragraph like this!)
I highly recommend @peterkwells' commentary on the @CDEIUK report:



(Noting that it's often what's NOT considered that's the most revealing...)

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More from @EinsteinsAttic

Dec 29, 2022
Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...

england.nhs.uk/coronavirus/wp…
To be clear, 30 individual NHS Trusts* are using #Palantir #Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:

palantir.com/uk/healthcare/

*Though @NHSEngland won't say which ones...
The timing (and placement) of the piece is, however, quite obvious - with the tender for @NHEngland's "#FederatedDataPlatform" imminent.

And the #FDP - whether awarded to #Palantir or otherwise - is most definitely something people will have concerns about, especially given...
Read 5 tweets
Nov 13, 2022
This headline 👇 will be no surprise to anyone who's been following @NHSEngland's plans (and actions) for a while.

But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...

theguardian.com/society/2022/n… Controversial £360m NHS Eng...
First, and possibly most significantly, is @NHSEngland officials' confirmation that its '#FederatedDataPlatform' will incorporate patients across England's #SharedCareRecords: Health officials confirmed ...
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...

__
*#IntegratedCareSystem explainer here:

kingsfund.org.uk/publications/i… Map 1: The 42 integrated ca...
Read 21 tweets
Nov 1, 2022
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…

gov.uk/government/spe… I will unite our country, not with words, but with action.
Earlier today we got a bunch of detail out of @NHSDigital’s Board papers and services performance pack - what of that will continue post-#merger?



N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?

Read 31 tweets
Nov 1, 2022
While the chaos of '#AcceleratedCitizensAccess' to #GPrecords continues to unfold:



...we've come across some perturbing items on the agenda for @NHSDigital's Board meeting this afternoon 👇 which I'll pick up on in this [Thread].

nhs-prod.global.ssl.fastly.net/binaries/conte…
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals... 1 Executive Summary  NHS England are directing NHS Digital t
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?

And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController... Whether you are a controller or processor depends on a numbe
Read 25 tweets
Oct 30, 2022
Hmm. Why would @ukhomeoffice choose to announce this today:

gov.uk/government/new…

...making explicit reference to "the findings from the Independent Review of #Prevent, led by William Shawcross", WITHOUT PUBLISHING THE REVIEW?
It's not like publication of the #PreventReview wasn't long overdue *nearly a year ago*...

independent.co.uk/news/uk/home-n…

From December 2021: Review of Prevent counter-e...
...and yet, despite having been submitted to @pritipatel in April 👇, and #leaked in May 2022:

theguardian.com/uk-news/2022/m…

...and then #teased in September:

telegraph.co.uk/politics/2022/… The findings of the report,...
Read 5 tweets

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