.@canada_pain @NitaGhei & I direct @headsUPmigraine. I think your report is the most successful thing I've seen patient advocates do in response to rx limits. I would love to know more. I've been home w/ daily migraine for 15 yrs, so I work REALLY slowly. No rush in reply needed!
I've been a p/t Canadian since '03, but my advocacy is focused in the States. Nita & I are both academics & we're writing a paper to ground our advocacy in peer-reviewed research. I think we need stats to answer stats, since saying "This policy is killing people" hasn't worked.
What survey platform did you use? Did it cost you a lot of loonies? Did you use the same 1 for your Covid & CP surveys? If we did a US CP survey, could we use yours as a basis? We would credit you, of course, & direct any press or legislative attention we got to your work too.
Any other advice, info, contacts you could send our way would be terrific--and did I mention how slowly I work? I always learn a lot from your site, both info & strategy. Count us fans. Stay well.
.@headsUPmigraine gives a big thumbsUP to the #Canada #ChronicPain Association. Give @canada_pain a follow & check out their website. I bet you'll agree. #PainGang #PainPeeps #cpp #opioids #migraine #spoonie chronicpaincanada.com
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