Personal "data #ownership" - "pure" or otherwise - is a #misnomer, and #rights frameworks clearly struggle when predicated upon notions of #DataSubjects - and when the #value (to others) of information about us lies largely in its #relationships (to others').
I'd unpack @martintisne's first point a bit further; the impacts we experience are of course based in the way we are #discriminated (for or against) by those who treat us as members of a #class by virtue of shared #characteristics on which they pass #judgement - but is that...
..."more" about "other people's #data" or more about the #judgements, and who's making 'em?
While I share concerns around 'purely' individual(istic) rights - "every woman for herself"! - the perils of #GroupRights lie in the degree to which they can undermine what must remain...
The threats arising are indeed #societal/#cultural AND #personal ("natural" or "accidental") in origin and the complexities of BOTH must be addressed in tandem.
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Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...
To be clear, 30 individual NHS Trusts* are using #Palantir#Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals...
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?
And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController...