Thread by @LongCovidKids

1) One family shares their story in their own words. They are still in hospital, our thoughts are very much with them.
"In this covid obsessed world, you would never imagine your child being affected to the point where you believed there was a possibility you may lose them.

2) We are constantly told our children are not really at risk and unfortunately, this is what we believe.
So after we took Marley to hospital with possible tonsillitis and appendicitis symptoms there was a lot of confusion to what was wrong. A few days later he was rushed to the

3) @EvelinaLondon in an ambulance to intensive care and diagnosed with Paediatric Inflammatory Multisystem Syndrome (PIMS) caused by covid in children.
⚠️I want to make people aware of how serious this actually is.
⚠️Marley went from laughing about teddies on his blood test

4) plaster to his body barely being able to pump its own heart. He's got a long road to recovery ahead of him and nobody knows what long-term effects it may have on his little body.
We have to take one day at a time and we know our little fighter will beat this and come home

5) smiling soon.
Please take the time to read about PIMS, be aware of the symptoms and how quickly they can deteriorate, don't ever take things for granted as you never know what's around the corner.
evelinalondon.nhs.uk/our-services/h…

6) We were home for 1.5 wks after an Ecg, with results of enlarged arteries & Marley still not being able to move around we were admitted back to the hospital.
We have been back in hospital for 4 days now and he seems to be responding to steroid treatment for joint swelling

7) however, we are still awaiting CT results for his ❤️. The @EvelinaLondon is currently forced to cancel paediatric #LongCovid appointments due to lack of funding. @MattHancock @JimBethell we desperately need these services funded 🙏🏼 #longcovidkids
longcovidkids.org