Dr David Strain, a medical lecturer at the University of Exeter who runs long Covid clinics, says he is “seeing more and more cases of children who’ve got long Covid” and thinks the prevalence in children is probably underestimated. #longcovidkids
"There is no easy definition of long Covid. It’s “a bit of a hotchpotch”, says Strain, University of Exeter. “Although we talk about it as if it’s one disease, it’s very clearly multiple pathologies affecting different people differently"

#longhaulers #longcovid @thetimes
@DocStrain 🙏🏼💚

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Keep Current with Long Covid Kids 🧡💙🧡 #LongCovidKids #FBLC

Long Covid Kids 🧡💙🧡 #LongCovidKids #FBLC Profile picture

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More from @LongCovidKids

25 Apr
1) Welcome to all our new followers 🤗
#LongCovidKids runs on goodwill and support, so thank you for being here. #gratitude
What does LCK do though? If you are new, you might be wondering, so we thought we would a tweet thread might help!
We started ⬇️
2) This brought lots of #longcovidkids families to our door, so we set up a place to connect & now support over 2000 families all facing the same challenges. Since December we have been welcoming about 100 families, often with multiple #longcovid kids.
facebook.com/groups/longcov… Image
3) We realised #longcovidkids was different to #longcovid so we set up the #LongCovidKidsStudy with @PeopleWithApp to learn more & support researchers & Drs.
Download the app to get involved & select Long Covid Kids to be involved.
Read 15 tweets
31 Mar
💈WOW 🤩

This school rocks!
We need to reduce #Covid_19 in transmission in schools.

Great to see this headteacher taking a proactive approach to #makeschoolssafe and going beyond the inadequate @educationgovuk guidelines.

We don't want your kids to share our story.
The only way we know how to reduce #longcovid is to avoid #COVID
Download your school pack to understand more about #longcovidkids & how to reduce risk in your school.

#LCKSchoolpack #LCKMaskHeros
Read 5 tweets
30 Mar
💈THIS ⬇️⬇️⬇️ is what happens after a 'mild' dose of #COVID19 .

Who is following up on the 'mild' cases?
Who is giving these kids support?
Who cares that they have been stripped of opportunities?
Who cares that parents are losing their jobs while caring for their children?
💈Who is giving guidance to school attendance officers who issue fines?
Who is creating a clear child-focused awareness campaign to help families and carers identify asymptomatic infection?
Who is funding CO2 monitors to reduce transmission?
💈Who is arranging financial support to a parent unable to work they are now a full-time carer?
Who will change the questions on the @GOVUK 'book a test' website to inc kids symptoms so parents don't have to lie?
Read 9 tweets
14 Mar
💈One Year On. Our scrapbook.

Kids do get #COVID19
Kids can be #Asymptomatic or #Atypical.
Kids can have a mild infection, or get #PIMS
Kids can get #LongCovid

2000 kids NOT yet better.
Families disbelieved.

⚠️Contains graphic images.

longcovidkids.org #MothersDay
The numbers of children with #LongCovid are rising with every #COVID19 infection.

⚠️1 in 8 primary age children will get Long Covid
⚠️1 in 7 secondary age children will get Long Covid.

It appears to makes no difference if a child has a pre-existing condition or not.
Tragically children can die.

Thankfully the numbers are low compared with adults.

Every family that has lost a child will be devastated, the fact the numbers are low will have no bearing on their grief.


#LongCovidKids #MakeSchoolsSafe
Read 6 tweets
14 Mar
Happiness is when your beautiful babies make breakfast in bed and handmade earrings. ❤️
At a young age, I was told I might not be able to have children, so I started my family young and was blessed with two girls.
#MothersDay #LongCovid
I had a rainbow 🌈 baby who is in my heart.

I can’t see my Mum today but I am truly lucky to have a mother who raised me to have the strength and resolve. I can’t wait to hug her again.

I have a Grandmother watching over me who taught me empathy, compassion and kindness.
Her presence is felt every day. I miss her hugs.

I have supported women who hope to become mothers, mothers to be, mothers that have lost, mothers whose children have children of their own & women who chose not to become mothers.
It’s a privilege to support women, it’s been
Read 4 tweets
24 Jan
1/4 Meet 14 year old Abi. This photo was taken before #Covid in Nov.
She lost her sense of smell & taste & had a couple days of flu like symptoms & was left a bit fatigued.
Dec 8th she went to bed as normal, Dec 9th her Mum couldn’t wake her & started CPR until the 🚑 arrived.
2/4 She was rushed into resus & put into a medically induced coma, unable to breathe for herself. She remained unconscious for 4 hours, then spent 5 days in hospital before being sent home. She started having seizures which the DR days is bought on by anxiety. They have no
3/3 Pattern. She has lost mobility, after seizures she looses speech, is confused & has rashes, fast HR, sore tongue, hair loss, poor cognitive function. The DRS are dismissing #Covid_19. Abi used to be captain of her football team & now her Mum is trying to get a stairlift to
Read 4 tweets

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