Thread by @VABVOX

THREAD

So Monday I was informed that a PT would be coming today. I ceased being able to get in-home PT at the end of March 2020 when the country locked down. I was not allowed to change the day (Tuesday is a deadline day for me).I asked for late afternoon and was told no.
1/🧵

I was told the latest visit would be 2pm and that the PT would be here then. I organized my work day around that time, which was very difficult, and rescheduled some work for Wednesday morning. It has been stressful and energy-depleting.
2/🧵

It is now nearly 4pm. The PT has not arrived nor called. I have been in stasis for two hours, unable to do work that involved interviewing because what if the PT shows up? Also, their day ends at 5pm, so the "two hour intake and session"won't be happening, either.
3/🧵

I am super frustrated since this feels like yet another episode of acting like the time and energy of disabled people is utterly meaningless and our lives should be built around making those of non-disabled folks more comfortable.
#DisabilityTwitter
4/🧵

The medical establishment has us trapped. We desperately need these services, so we have to be accommodating. But we are treated so shabbily and with such disdain and lack of concern for our well-being. It's frankly shocking. And very defeating to deal with daily.
5/🧵

UPDATE: PT came at 4pm and was very lovely. I voiced my frustration and that going forward I needed an actual appt time and a text if she was going to be late; she agreed. We talked about how badly #disabled people are treated by the system. So I was heard. But>>>
6/🧵

>>>I challenge authority for a living. So I couldn't help but think about people who don't feel able to do that. Who is speaking for those folks? #Disabled people are inculcated to be compliant. I don't speak for them, but I absolutely fight for them.
#DisabilityTwitter

7/🧵