THREAD

So Monday I was informed that a PT would be coming today. I ceased being able to get in-home PT at the end of March 2020 when the country locked down. I was not allowed to change the day (Tuesday is a deadline day for me).I asked for late afternoon and was told no.
1/🧵
I was told the latest visit would be 2pm and that the PT would be here then. I organized my work day around that time, which was very difficult, and rescheduled some work for Wednesday morning. It has been stressful and energy-depleting.
2/🧵
It is now nearly 4pm. The PT has not arrived nor called. I have been in stasis for two hours, unable to do work that involved interviewing because what if the PT shows up? Also, their day ends at 5pm, so the "two hour intake and session"won't be happening, either.
3/🧵
I am super frustrated since this feels like yet another episode of acting like the time and energy of disabled people is utterly meaningless and our lives should be built around making those of non-disabled folks more comfortable.
#DisabilityTwitter
4/🧵
The medical establishment has us trapped. We desperately need these services, so we have to be accommodating. But we are treated so shabbily and with such disdain and lack of concern for our well-being. It's frankly shocking. And very defeating to deal with daily.
5/🧵
UPDATE: PT came at 4pm and was very lovely. I voiced my frustration and that going forward I needed an actual appt time and a text if she was going to be late; she agreed. We talked about how badly #disabled people are treated by the system. So I was heard. But>>>
6/🧵
>>>I challenge authority for a living. So I couldn't help but think about people who don't feel able to do that. Who is speaking for those folks? #Disabled people are inculcated to be compliant. I don't speak for them, but I absolutely fight for them.
#DisabilityTwitter

7/🧵

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More from @VABVOX

22 Sep
I've been writing about this for a few weeks--and, as an immuno-compromised person--living it throughout the pandemic. This piece has open access. Read it.

Hospitals overwhelmed by covid are turning to ‘crisis standards of care.’ What does that mean? washingtonpost.com/health/2021/09…
"Physician Kristen Solana Walkinshaw told The Washington Post last week that her team had four patients who needed continuous kidney dialysis and only two machines available."
washingtonpost.com/health/2021/09…
"The resource crunch could also force healthcare workers to give beds or ventilators to those most likely to recover. If resources become tight, they can consider universal DNR orders for hospitalized adult patients who go into cardiac arrest."
washingtonpost.com/health/2021/09…
Read 5 tweets
19 Sep
THREAD:
If 1 in 500 people have died of COVID, close friends and family members *of someone* *have* died of it. This is a shockingly off-key comment from Ross Douthat, who had COVID himself. Yet the quote in the piece is much worse than this as he says no one*he*knows died.
1/🧵
This is a badly--even bizarrely--argued piece that contends that the number of dead is a Goldilocks number: just right. Not as many as some predicted, but enough to be a big number. Douthat--who is much smarter than this piece--says that mostly people in nursing homes died.
2/🧵
And while Douthat says it's not good that so many people (he forgets about disabled people) died in nursing homes, but...well...shrug. Douthat seems not to know any POC. POC--young folks--have died disproportionately. And even though he had it,he also shrugs off #LongCovid.
3/🧵
Read 5 tweets
14 Sep
After 12hrs of grueling work, the #MetGala is the coolest of cool drinks.
#MetGala2021
Such gorgeousness and elegance.
#MetGala
#MetGala2021
My favorite #MetGala2021 dress. AOC looking fabulous.
#MetGala
Read 4 tweets
8 Sep
AOC is doing a good job of supporting Democrats and Biden's expansive bill that includes the #GND, while also calling out "fossil fuel lobbyists who brag about having members of Congress on speed dial." She is calling out Manchin by his actions. "We have to choose the science."
AOC says members of her community have had to remove bodies of people who died in basement apartments during flash floods and that this cannot continue. She cites the stats on how the overwhelming majority of Americans are ready to.address #ClimateCrisis.
Asked about Greg Abbott's comments on rape, AOC says she finds his comments "disgusting," and that "he doesn't understand biology 101," that it's six weeks before a menstruating person knows they have missed a period.
@AC360
Read 4 tweets
5 Sep
#THREAD
This disgraceful headline is evocative of the inhumanity many Americans have adopted during the pandemic. Politicizing grief, be it Biden's for his beloved son, or that of the 640k families who lost someone--including young children--to #COVID, is itself pandemic.
1/🧵 Image
Too many are bored by grief and impatient with suffering. We call it "empathy fatigue," but how have we come to a point where we tire of being compassionate? After 4yrs of a self-absorbed narcissist who felt nothing for anyone else, shouldn't Biden's raw humanity be welcome?
2/🧵
Trump could not have cared less when Americans died. He famously was shocked to discover from Bob Woodward that it was the thousands of dead that mattered in the COVID crisis, not the stock market. Biden was gutted by the Kabul massacre and what it meant for the families.
3/🧵
Read 8 tweets
3 Sep
#NEW
Some personal news: I just had a two-hour in-home visit from my spectacular nurse practitioner who I last saw at the end of March 2020 when everything shut down. She's a specialist in chronically ill patients with serious health issues. She is a remarkable
healer.
🧵1/
There's no substitute for hands-on healthcare. She was able to go over every physical issue from the decompensation brought on by lack of physical therapy to how much worse my lungs are due to my 2020 COVID experience. Full work-up including mental health discourse. Crucial.
🧵2/
She also spent time talking to my wife about caretaking and balance. And she will be arranging for me to get physical therapy again, which is fantastic. Since we have been working together for 5yrs, we have a trust relationship. This is essential to all healthcare.
🧵3/
Read 5 tweets

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