Well that was a slap in the face. We were falling ill, dying or developing #LongCovid despite washing our hands till they bled. I was saying #COVIDisAirborne- why wouldn’t a respiratory virus be? Nobody around me listened at the time. The droplet lobby’s narrative persisted 1/n
I caught #Covid_19 in Nov 2020 working on a respiratory ward with a surgical mask & flimsy apron. There was no shortage of airborne #PPE at the time. But of course we had to be slaves to guidelines, no matter how idiotic they were. 1500 HCW & social worker deaths in the #NHS 2/n
Now the govt recognises airborne transmission. Apparently though in healthcare facilities the virus decides not to behave this way. @NHSEngland@UKHSA@DHSCgovuk@MFTnhs nothing short of MANDATORY airborne PPE for confirmed or suspected #Covid_19 cases is enough. Get it? 3/n
It’s my #COVIDversary this weekend. I’m much better having forked out thousands for HELP apheresis in Germany but work & any semblance of family life is a long way off. I still have #POTS#PEM & have to lie down frequently to get blood to my head 4/n
THREAD: I’m going to let you in on a little secret. In March 2020 millions of people across the globe- including a disproportionate number of healthcare workers like me- got in touch with each other and signed a pact. We all decided to fake a new illness.
We started exhibiting a bewildering array of seemingly disconnected symptoms reproducible between individuals. Chest pain, fatigue, breathlessness, brain fog. Blood tests, x-rays & ECGs were usually normal. #MedTwitter take note. This means it’s in the head.
Some of us were able to make our pulse rate, blood pressure and oxygen saturations fluctuate wildly, foxing doctors. In fact, some got so good at this game that we could fake damage to heart muscle on MRI & produce weird rashes & antibodies on demand.
@gezmedinger and I just had a phenomenal discussion with @dysclinic about #POTS in #LongCovid. Key message- symptoms are real & disabling; physical illnesses can’t be treated with psychological therapies; any doctor can do simple objective tests & start treatment.
THREAD
The #LongCovid community can learn a lot from those suffering with #MECFS. We should welcome their attempts to reach out- it’s in our interest to collaborate. And if #MECFS patients end up getting the recognition & care they deserve due to #LongCovid research- good I say!
I’m not saying the two conditions are identical. LC is heterogenous- however there is a subgroup of LC sufferers with fatigue who exhibit PEM, the cardinal feature of ME. Both conditions can be associated with #MCAS#POTS sensory overload, stimulus hypersensitivity & severe pain
ME suffers have been stigmatised, ignored & abused by the medical profession, media & wider public. The poorly conducted, discredited #PACE trial recommended Graded Exercise Therapy (GET) & CBT- this has harmed and disabled countless sufferers by its inclusion in ME guidelines.
Recommendations for the Management of Long Covid; @bmj_latest rejected (apparently we did not consult the correct experts- there are none, doctor-patients are the closest) & @TheLancet has declined as well. Preprint here- please publicise papers.ssrn.com/sol3/papers.cf…