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Apr 28 • 4 tweets • 2 min read
"Overlooked among the falling fatality statistics and high (apparent) recovery rates from #COVID19 is the recognition that “long haul COVID” or just “#longCOVID” may be a long-term consequence of a COVID infection for millions."disq.us/t/4782elp
"We now know that almost 60% of the US population (including 75% of children and adolescents) has been infected with COVID-19 (as of February 2022)." #LongCovidKids
"Treatment approaches to #longCOVID must be personalized to address the signs and symptoms of each case, as well as each patient’s preferences. While we are over two years into the pandemic, research into long COVID is just in its infancy."
"Given the number of people that will experience #longCOVID, and the potential cumulative disability in the population, the consequence of the pandemic will likely be felt for years, if not decades."

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More from @nick2155

Nick Else Profile picture
May 1
"Retha is a remarkable person who saw a need and moved forward to fill that need. After becoming ill with #MECFS she formed a Facebook support group in 2012." #fundraising
gogetfunding.com/imhopeful-reth…
"She became aware of the dire needs of patients for hope, companionship, financial assistance, medical treatment, special care facilities, and basic living necessities. She realized something had to be done for #MECFS in #SouthAfrica and founded The @mecfs_sa"
"The Foundation provides #healthcare and counselling services for people with #MECFS who cannot afford it; raises awareness of ME/CFS, and #advocates for the rights and interests of people with ME/CFS." #imhopeful
Read 5 tweets
Nick Else Profile picture
Apr 30
Things that are wrong.. I would say a lot

"Some considerations and limitations are important to discuss. First, given the nature of the intervention, double blinding was not possible. " #longcovid dailymail.co.uk/health/article…
"Second, additional measures to further characterise participants might have been useful, such as objective physical performance measures, actigraphy, breathing pattern assessment, and baseline lung function testing."
"However, the assessments included were selected with expert patient input to carefully balance the number and type of assessments of most use and importance to participants."
Read 5 tweets
Nick Else Profile picture
Apr 29
"Data on l#ongCovid, reaches from the past and further into the future, as scientists attempt to gain a better grasp of the collateral damage the virus has left in its wake after infecting roughly 60 percent of the US population in the past two years."

tinyurl.com/4pk4w2pr
" Some of those experts are still keeping tabs on cases as a general sign of the trends on the ground and because of the potential effect of long Covid to have a lasting effect in even mild cases." #longocovidkids
#COVID19's long-term consequences is on #longCovid. Such long-term symptoms after an infection have loomed large over the pandemic, inspiring fears that a mild case of Covid-19 could still end up affecting patients for months after they ostensibly recover."
Read 6 tweets
Nick Else Profile picture
Apr 29
“Patients and patient advocacy groups have brought attention to the profound disability associated with post-Covid condition” #LongCovid
tinyurl.com/yf832nxd
“Children and adults with a positive #COVID19 test were more likely to receive a diagnosis for a new condition or have new symptoms in the 5 months after acute infection compared to those who tested negative for Covid-19" #LongCovidKids
“The most striking cases are the people who were absolutely healthy, got Covid, weren’t particularly sick…and now a year later are quite disabled”
Read 7 tweets
Nick Else Profile picture
Apr 28
"Kara Gormont is the former Chief of Staff for the Defense Health Agency. She dedicated her career to helping keep service members healthy"

"Gormont developed #longCOVID in November 2020" tinyurl.com/597cs5br
"She learned first hand that the military at the time had no process to deal with it."

"I truly felt very abandoned by the healthcare system that I had at that time given 28 years of my life to," Gormont said. "And nobody believed me, nobody believed that I was sick"
"Nobody believed that I had #COVID19

"She eventually left the military"

"I feel very abandoned by them," she said. "It was traumatic. I'll just say that was a heavy, heavy trauma that I'm going to live with for the rest of my life to be alone and abandoned."
Read 5 tweets
Nick Else Profile picture
Mar 30
"In Britain, psychiatrists spent over a decade painting the disease as psychosomatic, going so far as to tamper with data in a major clinical trial published in The Lancet" #mecfs #pacetrial
tinyurl.com/3ym6b93a
"Which falsely stated behavioural therapy and a gradual increase in exercise, improved symptoms.

It took activists years of campaigning to have the trial discredited, delaying efforts to research the true cause of the disease"
"In Australia, general practitioners look to guidance issued by the Royal Australian College of Physicians (#RACP) to treat and manage their patients. The RACP clinical guidelines on #MECFS haven’t been updated in 20 years"
Read 9 tweets

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