Thread by @GraceCordovano

#MondayMorning 🧵

Repeat after me:

Patient burnout is an undocumented public health crisis. 🚨

2) #PatientAdministrativeBurden (PAB), or the work that individuals need to do to get the care they need, is of epic proportions, especially in the context of chronic illness, multiple co-morbidities, life-altering, and life-limiting conditions. 📈

#MissionImpossible #PtExp

3) Patients are buried in:
👉 piles of paperwork
👉 fragmented, manual, poorly coordinated workflows
👉 massive losses of time in waiting and navigating uncharted, unsupported care journeys
👉suffering

#PtExp #Healthcare #UnblockHealth

4) Traditionally underserved, marginalized communities and immigrant populations suffer silently in survival mode, facing too many barriers to accessing the care they need. 💔

5) Status quo response: wave a shaming finger at patients, summarize the state-of-affairs w/labels
👉 non-compliant
👉 non-adherent
👉 lazy
👉 stupid
👉 illiterate
👉 hysterical
👉 drug-seeking
👉 frequent flyer
👉 difficult
👉 demanding
👉 googling
👉 poor historian
👉 unengaged

6) We push patient behavior change as the holy grail of patient engagement, solidifying the patient is the one to blame.

#PtExp #PtEng

7) Providers discourage patients from using their portals & sending too many messages.

We scoff at patients who "do their own research" while limiting access to credible info behind paywalls & subscriptions.

It's as if we fear an enlightened patient/participant in their care.

8) It's as if we fear a level playing field.

📌 FACT: 9 times out of 10, the patient is NOT the problem; it's the ECOSYSTEM that needs the behavior change.

#UnblockHealth #PtExp

9) Reducing, if not completely eliminating, Patient Administrative Burden should be on every 👏 stakeholders 👏 priority 👏 list 👏.

Including the patient, carepartner, and caregiver perspective is critical in all design, development, and innovation life cycles. 💡

10) Diverse representation is 🔑.

11) Connecting patients and their loved one's to the tools and technology they need to make informed decisions about their care is necessary.

#DigitalHealth can pave the way to success for ALL patients.

#HealthEquity #Techquity

12) What is an example of #PatientAdministrativeBurden you have encountered while trying to get the care you, or your loved one, needed?

Sound off below 🎙️