Journalism & #ME
and related diseases
There is nothing that can reproduce or describe this nightmare.
By that I don't just mean the torture in the body or the desperate enduring of symptoms, the torture, which a healthy person cannot imagine at all.
1/x
and related diseases
There is nothing that can reproduce or describe this nightmare.
By that I don't just mean the torture in the body or the desperate enduring of symptoms, the torture, which a healthy person cannot imagine at all.
1/x
All this fighting for treatment, for recognition, this constant humiliation...
...and then these desperate messages that you exchange with other affected people, and I don't mean the ones that you can read here, but that you exchange DIRECTLY,
2/x
...and then these desperate messages that you exchange with other affected people, and I don't mean the ones that you can read here, but that you exchange DIRECTLY,
2/x
this daily confrontation with death, every new treatment attempt - Russian Roulette ...while people are discussing out there whether it is appropriate to invest in research etc. or to educate.
3/x
3/x
When a sack of rice falls somewhere, it's in the newspapers, everywhere, when thousands and thousands, millions worldwide are humiliated because they have the 'wrong' disease, society, politicians & media seem to be perfectly fine with that.
5/x
#FridayAfternoon
5/x
#FridayAfternoon
#ME #MEcfs #POTS #MCAS #Inflammation #MitochondrialDamage #VascularDamage #LongCovid #Lyme #SmallFiber #BigPain #FluorchinoloneToxicity (#BlackBoxWarning) #PostVac #CCI #EDS #ConnectiveTissueDisorder #NotRecovered #IgnoredByHealthCareSystem #ForDecades 6/6
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