Have you ever shared a pink, red, or blue ribbon or donated during an awareness campaign? Did most of your friends already know about that disease? /1
And if they’ve never heard of it, it’s hard to have sympathy/empathy, and this hard for groups to generate funding for research.
- fewer people to start and run organizations,
- fewer friends, families, and companies to donate,
- fewer dollars to fund treatments and cures.
There MAY be 5-10 boys with Hunter Syndrome in your entire STATE. Some may be undiagnosed. Some may be at end of life.
And those people are exhausted caring for a child who is slipping away from them physically and mentally day by day.
Could you take 7 min to watch and share this video, on this, our biggest day of the year?
vimeo.com/269426914