I’m level 37 ✨✨✨
Celebrating that I’ve been keeping myself alive - and well - for the last 37 years living with type 1. This month marks my #Diaversay. As I don’t know the exact day of my #diagnosis - it was at the beginning of the summer break - I have decided it's July 7 🎉
I had been having the usual symptoms for some time before I arrived at my grand parents for the holidays: weight loss, unquenchable thirst, constant peeing. My grandma realised something was wrong and took me to the GP.
I thought I’d share a throwback picture to remind me how far I’ve come with living with #T1D for 30+ yrs: rigid treatments in the 1980s, denial in my teen yrs, hiding to inject my life saving #insulin, 1st pump in 2009, 1st #CGM when I was pregnant in 2010, & looping last yr 🟢
Such a long journey of ups and downs knowing that we only share the top of the iceberg of all the things we go through 24/7/365. I am #grateful I have become part of the amazing community who shares the burden of #type1diabetes. The load is so much lighter together 💙
How can #HCP assist people who chose to use #DYIAID?
#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.
@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️
@lifeforachild /@ispad_org survey - shifting responsibility:
'Task-shifting & task-sharing: moving a task on from one #HCP to another & where staff from different discipline split the tasks. We are very interested in task-shifting in #T1D'
-Emma Klatman ❤️
@lifeforachild /@ispad_org survey - shifting responsibility:
'We want to document the level of task-shifting and understand who from the clinical team is doing what. We established en survey in 2021 in many languages.'
-Emma Klatman ❤️
The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:
1⃣9⃣9⃣6⃣ Phnom Penh: no child alive with T1D in Cambodia then.
A boy had a late diagnosis, had had a dose on #insulin, but no fluid yet. He passed away 💔