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At @RepJudyChu & @RepWalorski could you please provide additional information on the congressional caucus held on July 24 on #chronicpain? The invite for this indicated that individuals that have #chronicpain are responsible for current #opioidepedemic. Even with 1/
#patients with #chronicpain being ripped of opioid pain meds, with the number of prescriptions at all time low, SUD & overdoses continue to rise. This is NOT caused by those w #chronicpain. Respectfully, we have been harmed by such rhetoric used in your invitation 2/
The language in your invitation perpetuates the stigma those with #chronicpain face which impacts access to care. Meet my family (older pictures) My husband & children had/have #hereditarypancreatitis #PRSS1. A rare condition in whic one of symptoms is horrific pain 3
My husbands #PRSS1 progressed to #pancreaticcancer. He died. My children underwent a transplant in attempts to improve #qualityoife & reduce chances of their disease progressing to #pancreaticcancer. Sadly, their transplants lead to multiple complications & #chronicpain 4/
As I mother I tried every option I could to assist in eleviating some of their #pain in order to improv QoL. The only treatment that has provided some QoL is #opioidPainMedication. My husband, my children were NOT & are NOT the cause of the #opioidepdemic. They HAVE 5/
been greatly harmed by the #CDC guidelines, directives coming out of #CMS provided to the states as well as other powerful entities that are awarded a seat at the decision making table. Those in pain deserve better care, more compassionate care. Pain care in USA 6/
is in accessible for many. I agree with having multiple options, treatments and strategies. Care must be individualized. Until a more effective treatment is found, opioid pain meds MUST be on the table. My kids, now young adults deserve access to treatment that benefits them. 7/
to say that my family members are/were cause of #opioidepdemic is incredibly disrespectful & hurtful. They deserve access to the opioid pain meds that provide increase quality of life. 8/
My husband is my hero, my kids are my heroes. My kids work so hard to engage in life. They continually face barriers, and overcome them. Please, I can provide you a list of treatments, tools & strategies we used to assist in decreasing pain. Some have caused harm others caused /9
financial devastation. I & my kids are more than happy to share our journey with you. My husband, my kids as well as others with #chronicpain are NOT the cause of this epedimic. 10/
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