A long thread:

Reflecting on my hospital day procedure, through a #traumainformed lens.

Yesterday I had a #gastroscopy with full sedation.

I’m also a survivor of child abuse & years of coercive psychiatric treatment, so it was a scary prospect.

Here’s my experience.

1/22
Leading up to the procedure, I was scared that somehow I’d end up with an unwanted psych consult. What if I cry too much or they just make assumptions based on my history?

This was a big fear. I almost cancelled. Thankfully, it didn’t happen.
2/
One thing I forgot to consider was that the last time I’d been in hospital was when my Dad died, about 8w ago in January.

The second I walked into the hospital I realised, and the tears started flooding.

I didn’t plan for grief or thinking about death, but I should have.

3/
At the admissions desk, I wanted to ask if I was getting sedation. Given my trauma history I was worried that I might have to be awake for the procedure.

But I didn’t feel OK to ask because there was no privacy.
4/
The admissions desk was in an open area full of people. We were all masked & talking through screens, so everyone talked loudly.

It felt exposing enough to have my name, address & procedure loudly announced while strangers listened.

Is privacy considered in these areas?

5/
I was taken to the ward.

Being day surgery, we had recliner chairs rather than beds and we were about 3m apart.

I had a man next to me, & two men opposite me. As I sat down I realised one guy opposite had his genitalia on full display. He was in a gown, but still. WTAF.

/6
I moved my tray table and propped up my bag to block the ‘view’. Eventually I pulled the curtains.

I wish I’d said something, but I was busy being tearful and grieving and worried.

/7
A nurse asked screening questions. Again I wanted to raise my trauma history & ask about sedation, but there was still no privacy. I especially didn’t want ‘dick guy’ to hear. And the nurse was rushed. I was tearful but she didn’t enquire about it. This was a production line.
/8
Then they brought the dreaded gown. I said I was worried about it fitting, given my weight.

She brought me a different one and said ‘it will fit or it won’t.’

What did she mean by that?

I pulled the curtains closer and tried to put it on...
/9
Of course, it didn’t fit. It was on, but tight, cutting into my chubby arms. I cried again. A stream of hateful self-talk. I felt ashamed, disgusting & unsafe. With just a thin papery curtain for privacy. I asked for a blanket to cover myself better.

Why is this good enough?
/10
I waited. And waited. I was the second last person to go off to surgery. I tried to do a crossword but mostly I cried quietly. There were no tissues in my cubicle so the few from my bag were in a pretty tragic, threadbare, soggy state.

I wish I’d been more grown-up & stuff.
/11
It was a relief when they took ‘dick guy’. I opened my curtain a crack. I could see another woman all the way on the other side of the ward.

We caught each other’s eye. I think it was a moment of solidarity. We shared something special in a brief, wordless connection.

/12
Finally, off to surgery. I met the anaesthetist. Finally I asked about sedation. Yes, of course, she said.

I wanted to say again that I have a trauma history, but then more people arrived. Another doctor, a specialist, a crowd & urgency to get going.

I’m scared, I said.
/13
I’m on the table, in the cold room with bright lights. There are about 7 people.

I say I have bad veins. Oh we’re good at this, they say.

Suddenly I have an anaesthetist on each side, poking in needles over and over. Oh, that one burst. Oh, your veins are small.

/14
I’m wiggling my toes. Trying to leave my body.
Trying not to freak that I’m mostly naked in a room of strangers sticking painful things into my body.
This is a survivor’s nightmare.
I’m shaking with tears but they need me to be still.

There must be a better way than this.
/15
One nurse is so kind. She tells me to follow her voice. She holds my hand and tells me to squeeze. To breathe out.

I’m sorry, I say to her.
No darling, she says. No need. You swear out loud if you want to. She tries to soothe me. I’m so grateful to her. She saw me.
/16
I’m so desperate to be unconscious.

I ask them to hit me over the head. One anaesthetist stops & smiles. And how would you like us to do that, she laughs.

Just drop a piano on my head please.

Everyone laughs, even me. Humour in dark moments.
Thank goodness for that.
/17
They get an ultrasound machine. 2 more tries and they finally get a deep vein. I can feel blood run down my arm, but I don’t care.

They put something in my mouth to bite on. Oh this is not good....

is my last thought...

/18
Morrison is a PRICK!
Porter is a PRICK!
Laming is a PRICK!

I am yelling, and I open my eyes and I’m in recovery.

Wha... disoriented. A nurse is grinning at me.

Oh, did I just yell that...
It’s all fine, she says. I take a moment to be impressed by my subconscious mind.

/19
From here, it’s pretty dull. My arms hurt. There was no jelly. Exhausted, but I was clothed & out within 2 hours.

They found some issues. I don’t think they’re major but I may need surgery. Back in 2 weeks.

I think there’s some opportunities for day surgery to improve.

/20
Trauma-informed practice is an obvious gap.

Gender sensitivity, privacy, responding to distress, asking about trauma history or things we want them to know. Robes that fit regardless of size.

Men with their dicks out, also a thing that shouldn’t be going on.

/21
I don’t know if there’s a better approach for folks like me with bad veins. Is there? I want to know. Even if I need surgery, I’m not sure I’m willing to put myself through that again.

But thank goodness it’s over.

And that angel nurse, whoever you are, THANK YOU.

/22

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More from @IndigoDaya

20 Mar
I’ve been thinking a lot about what it means to be an ally to consumers & survivors in #MentalHealth.

Learning from my own lived experience, other survivors & consumers, and other marginalised groups.

Some thoughts...

(thread)
1. You don’t get to decide if you’re an ally. We do.
2. Good intentions are lovely, but that doesn’t make you ally. Neither does saying the right things.

Your actions are what matter.
Read 18 tweets
16 Mar
I’m not a fan of risk assessments.

But I am a fan of being able to talk frankly about #suicide followed by empathetic, rights-based support.

This thread does some good myth busting on that. And yes self-injury is different.

Here’s a few bits I’d add from lived experience...
2/ If we say we’re thinking about suicide, don’t panic.

It may or may not be a crisis. It may feel odd to you—but some of us have thought about suicide for decades, regularly.

I consider myself largely healed but I still have regular suicide thoughts.

(Don’t panic, I’m OK)
3/ It’s helpful to understand the different nuances of how we are thinking about suicide...

Are thoughts abstract or occasional... or a lot, or increasing? For how long?
&
Is it a thought (‘I could’) or a desire (‘I want’) or an urge (‘I need to’) or a plan (‘I’m ready’).
Read 14 tweets
13 Mar
CW: Rape

If you’re not from Australia,, you might be wondering what the hell is going on right now.

It’s pretty awful.

Rape allegations were made by an ex-govt policy staffer, Brittany, against a colleague. A senior minister called her a ‘lying cow’ then went on sick leave.
/1
It took a conversation with his wife, and being reminded about his daughters, for our Prime Minister to acknowledge that he should take action so women were safe at Parliament House.
2/
Now rape allegations (from the 80s) have emerged against our Attorney General, by a woman called Kate. She was diagnosed with mental illness & died from suicide.

The AG denied it & went on sick leave.

The police stuffed up or covered up. Case dropped.
/3
Read 7 tweets
27 May 20
1/8
IT’S PUBLIC!

My witness statement to Victoria’s Royal Commission into Mental Health is now available online:
s3.ap-southeast-2.amazonaws.com/hdp.au.prod.ap…
@RCMentalHealth

More info in thread👇
2/8
Thank you to @abcnews & @Zalika_R for covering the story & giving profile to people & issues that are too often ignored. (Angus, my cheeky cat, steals the show).

Online story: abc.net.au/news/2020-05-2…

Tune in to tonight’s 7pm ABC news for more coverage.
3/8
I was asked to testify on many topics, including #trauma , #recovery & the lived experience workforce.

I also testified to my own, appalling, lived experience of the #MentalHealth system.
Read 8 tweets
27 Jan 20
“Why I’m a mad activist”
THREAD 1/11

37 years ago I was a victim of child sexual abuse, by a man who abducted me.

The police did nothing.
My mother said to never tell.
So I kept it secret.

I had to make sense of it on my own. So I blamed myself, just like my abuser wanted...
2/ In my teens I reacted to the shame by being as ‘bad’ as I believed I was.

In my 20s I suppressed the shame by overachieving, until it didn’t work any more.

By 30 the shame took over and a voice told me I was evil. I tried to die. I hurt myself. Every moment was anguish.
3/ Psychiatry saw my sobbing & called it depression.

They saw my tormenting voice and belief that I was bad, & called it schizophrenia.

They saw my scars & called it personality disorder.

They never saw the trauma, the meaning behind the madness, because they never asked.
Read 11 tweets
10 Sep 19
1/7 Reflections by a survivor of suicide attempts

What made suicide more likely for me:
😥Living in despair.

What was healing for me:
💙Finding hope that change was possible.

#WorldSuicidePreventionDay
#FindHope
2/7 Reflections by a survivor of suicide attempts

What made suicide more likely for me:
😥Shame from child abuse.

What was healing for me:
💙Being heard, believed and supported.

#WorldSuicidePreventionDay
#BelieveUs #YouAreInnocent
3/7 Reflections by a survivor of suicide attempts

What made suicide more likely for me:
😥Being forced to take psych medication.

What was healing for me:
💙Finding ways to cope with and transform my pain.

#WorldSuicidePreventionDay
#EndForcedTreatment #CRPD #OPCAT
Read 7 tweets

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