I wanted to share some comments by #parents whose children have #pancreatitis. As I have shared before, the #pain care for these kids is NOT adequate. Their #pain is often not being addressed. I have asked parents to start writing up their stories to share. When #pain is not 1/
addressed it causes trauma, not only for the child/youth but parents. We know unaddressed #pain can lead to #chronicpain. I absolutely believe in #biopyschosocial approach but what we are seeing is a #psychosocial approach being utilized and #bio aspect missing. This leaves 2/
#parents and #patients feeling angry & abandoned. One of the reasons I started getting involved in #advocacy is that my kids #pain was dismissed, they were labeled. This leads to #trauma, #chronicpain & distrust of #physician. What HCP need to understand is that when this is 3/
done these kids often are ‘done’ at 18. They often stop addressing health issues, stop attending appointments, struggle with trusting physicians which leads to poorer health AND higher #healthcare costs. It’s an absolutely vicious cycle When transitioning to #adult world 4/
these youth are often labeled; difficult, non-compliant, drug seeking, resistant, borderline personality disorder, ‘drug addict’, frequent flyer. We need to effectively address #pain for kids, particularly kids that have #chronichealth issues. 5/
Just a few comments more coming along w complete stories 6/@GhanaboyPharmd @ChadDKollas @aander1987 @tal7291 @NIHPainResearch @CDCDirector @CDCInjury @Ritaagarwal6 @national_pain @PainPtFightBack @speakingabtpain @ibdgirl76 @LelenaPeacock @StefanKertesz @HappyWarriorP 
A mother just shared this with me and gave permission to share. Her daughter was in hospital for #pancreatitis. Child given IV Tylenol which was not touching the #pain.
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