Discover and read the best of Twitter Threads about #caregivers

Most recents (24)

#mnleg #mngov agreement on Hero Pay/Frontline worker recognizes the 600k+ Minnesotans who put their own lives at risk to keep all basic activities running; here are some key details for LTC #thread
There's always a give & take in the #Mnleg process; final text provides $500m in bonuses for workers employed 120 hrs+ during 3/15 to 6/30/21 revisor.mn.gov/bills/text.php…
Workers with direct COVID-19 patient care must have incomes under $350k (married)/$175k (single); all others have incomes under $185k (married)/$85k (single) #thread
Read 10 tweets
Looking forward to what should be an interesting conversation on the impact #UniversalBasicIncome could have on how we may rethink the world of work - and, in particular, the work done by 🚺 #LondonMetResearch
Dr @JessieJWL opens her presentation nothing that #UBI is still very much a "hot topic" amongst policymakers, particularly on its effectiveness on improving women's working lives #LondonMetResearch
Bustillos defines #UBI as "a regular cash income paid to all on an individual basis, without means test or work recruitment". Also notes it has been called a "citizen's wage", "existence income" or "guaranteed universal subsidy" #LondonMetResearch
Read 33 tweets
@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/
@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/
@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/
Read 6 tweets
I was minding my business last night, reading tweets about the Bills vs Chiefs game when the below tweet caught my attention.

It's been a while since I've done a faith-based Twitter thread, but Greg Locke's comments have compelled me to speak up. Put on your seatbelts! 🧵 1/14
Greg Locke’s comments are the very reason why I started @AutismFaithNet. His statements are HIGHLY OFFENSIVE to me as a Christian AND mom of TWO sons with autism, with one that also has a rare form of epilepsy. 2/14
My boys mean EVERYTHING to me. It would be easy to write a post about how amazing they are, assuring everyone that neither one of them has a demon. But I think it’s more important to highlight another point… 3/14
Read 14 tweets
🗣️Reminder, we'll be starting our conversation on the impact of the #Omicron surge on family #caregivers in 10 mins! Follow us @EthnicMediaSvc to join the discussion. @CalAging @blackvoicenews
Welcome to this important conversation about the impact of the #Omicron surge on family caregivers and the importance of #vaccinations. We open with a prayer and to give thanks for those who bring us together to hear these stories.
#Vaccines are a key weapon against the worst ravages of the #COVID19 virus, helping to mitigate the sense of isolation and fatigue, says Moderator Cheryl Brown.
Read 23 tweets
The number of children infected with #Covid-19 is less among all other age group in the global population. How about the #psychological, #social impact in on #children? Researches suggests social and psychological impact in this group were mostly severe.
To find some answer and have idea let's take a closer look at the researches and figures provided by the United Nations Children's Fund (UNICEF), which shows the magnitude of the pandemic’s #impact on #children. Image
As families lose their sources of #income and home environments are turned upside down due to the socioeconomic impacts of Covid-19, #children find themselves more vulnerable to #poverty and likely to be deprived of their basic needs. Image
Read 26 tweets
#PathologizingPain
#ChronicPain is the most prevalent health issue for Americans, yet, there is a lack of acknowledgment of the impact of pain on individuals QoL as well as access to quality options available. The last several years we have seen a proliferation of 1/
psychological strategies be touted as solutions for both #chronicpain & #acutepain. This has been fostered by the #CDC guidelines as well as various independent groups. As an individual who works in the area of mental health I am alarmed at the amount of #gaslighting that 2/
to those with #chronicpain & the belief by many physicians & professionals that psychological strategies will alleviate #chronicpain as a stand-alone strategy. I DO believe that psychological strategies CAN be of benefit addressing pain, but, how #pain is being #pathologized 3/
Read 11 tweets
I am perplexed how #RogerChou can not only sit on the #CDCOWG but is a lead author. He recused himself at the #CDC meeting due to #COIs bc of his work as ‘expert witness’ in Purdue litigation but is lead author 🤷🏻‍♀️ @CDCDirector @CDCInjury could you explain how this is ethical? 1/
Listening to the #CDCOWG from perspective of #caregiver & advocate was disheartening. For me @CDCDirector assurances that #patients voices were heard was meaningless. She may say that we’ve been heard but then how are so many feeling as we haven’t been? Why are the #legislation 2
of these guidelines continuing? Why are those who have benefitted from #opioid #pain medications being removed, shamed & stigmatized? Why is care not individualized? It’s very clear our #voices have not been heard. There is nothing that was said that eased my concern for 3/
Read 19 tweets
I can’t remember who said this, so I apologize, but the app -lication of #healthcare is not the answer to magically transforming the system. So many applications, portals, surveys…. They can assist but first a true cultural shift must be made in #healthcare. For this to be 1/
those working in system need to be supported. Currently our #healthcare system lays the burdens of the broken system at feet of #patients, #caregivers & healthcare professionals. So much must change. It must not be a system based on vulturism (I know not a word) of entities 2/
focused on making millions of dollars of the backs of those who are vulnerable. We have allowed this, we must change this. One persons voice I appreciate is @RepKatiePorter but others must understand the harm occurring. Our system is not functional. For some reason those 3/
Read 4 tweets
I posted this yesterday with parents permission. I wanted to expand on this video a bit.

1st, a big part of me feels very uncomfortable with posting. Just like a big part of me felt uncomfortable about posting about my kids experience (w permission). It feels exploitive. 1/
Yet, when I share experiences of #caregivers & or #patients (who had given me permission to share) those experiences were/are often questioned or I’ve been excused of exaggerating. Or like many others called a #shill for #Pharmaceutical companies. I am a mother, who 2/
witnessed first hand the harms of pain ignored, not treated, under treated or labeled as #psychosomatic. I remember very vividly how my kids would arch their backs in pain & scream. How helpless I felt. I have seen the repercussions of this #harm & am absolutely obsessed 3/
Read 15 tweets
Today, our family followed through on the decision to move dad to a long-term facility in Mississauga. He's been on a dementia journey for about 8 years alongside a cancer one that has him also receiving palliative care. /2
The script flipped for me was a few years back when his conscientious nature had him scaling an aluminum ladder in a rainstorm to check that the eaves were clear ensuring we wouldn't have any flooding. Both his physical and mental capacity at the time put him at risk. /3
Read 20 tweets
1/🧵 Imagine 2 people, madly in love & married 28 years, in an impossible situation, both lives on the line & separated by different hospitals. Then imagine 2 sets of #nurses & #doctors separately determined to overcome ⛰ of obstacles…
(shared w perm)

#MedTwitter #NurseTwitter
2/ Last night this is what happened…

NOTE: the family wants to share their story to offer a glimpse of love ❤️ on all levels

For 3 years, Mark took care of Sharon, his #bride, as she battled breast #cancer. It relentlessly spread to her bones. He never stopped giving.
3/ She could tell he was spent and getting sick himself. “Mark, let’s get you to the doctor!” “Not until you are well, Sharon.” He remained laser focused on her every need. As she became weaker, he took her to get admitted yesterday.

#marriage #life #caregivers
Read 13 tweets
#PatientCentric care, #PtExperience #Tokenism, #HoldingSpace #WeAreBetterTogether ⚠️ long thread.
Recently I attended a meeting of an organization whose focus is in improving #healthcare. This is a highly respected organization. One ☝🏼 of their founding principles is the 1/
engagement of various #stakeholders including #patients and #caregivers. This was not the 1st meeting of this org. I have attended. I walked away from this particular meeting sad, frustrated & a bit angry. The topic was on #patientcentric care. A topic that is near & dear 2/
to me. The caliber of individuals involved was spectacular; academics, researchers, consultants. As I scrolled through participants as well as listened to the conversation and watched the comments come across the screen I was enthralled with the dialogue however 3/
Read 21 tweets
Okay, I love @POTUS #CaregiverInChief but lowering drug prices is a complicated economic web — healthcare isn’t something that you pay for like a new car, it’s mediated by a third party 1/x #drugprices #pharma #medicare #medicaid
Take International Reference Pricing for example. (Lost you already, haven’t I?) This type of negotiation tool ties drug prices to caps set using “QALYs” - Quality Adjusted Life Years 2/ #health #pharma #medicine #innovation #caregiving #advocacy statnews.com/2019/02/22/qal…
3/ Don’t get me wrong - #health care needs to be affordable & #accessible & costs should be accessible. But tying access to medicines based on the economic “value” of a person’s life unfairly discriminated against older #adults & ppl w/ #disabilities, see ncd.gov/sites/default/…
Read 15 tweets
I’ve continued to see a divide in #pain community, a lack of support as well as pretty blatant attacks. My position: none of us speak for the entire community. We all have are personal stories. Each is unique and sacred. Pain occurs on a continuum and there are 1/
a variety of variables involved. As a parent what I want is a wider variety of options that is paid by insurance, I want voices to be heard, I want individual care, transparency and partnership with physicians & HCP. I want accessibility in the community I live 2/
I want a coordinated approach that is patient and family centric that takes into account barriers of treatments. When I say I want a variety of strategies & treatments I absolutely mean it. My kids have utilized ACT and CBT in a variety of settings. Sadly in only 3/
Read 15 tweets
Doing this is (as a very wise hospice doctor advised me not quite 6 years ago) like piloting the Memphis Belle. The plane gets shot up, your crew takes on unpredictable injuries, resources are consumed, difficulties mount. But you've got to pilot it to the best landing you can.
When I learn of someone who is giving care to a person living with #dementia (#Alzheimers is but 1 of a 100+ causes) I tell them it's 1/3 caregiving skills, 1/3 the unique progression of the person living with dementia's illness & 1/3 luck. 2/3rds are not in a caregiver's control
What gets you through years or even decades of this? Curiosity, a willingness to learn, formulating theories or hypotheses, trial & error, flexibility, patience, resilience, some comfort with not being in control, a good sense of humor & sheer tenacity. And adjusting on the fly.
Read 33 tweets
Excited to share this new preprint biorxiv.org/cgi/content/sh…

Is #caffeinated #soda bad for children's #brain development? If so, which specific intellectual capacity is affected? It is a question that many parents and caregivers are asking daily but there is no clear guideline 1/n
Using the #ABCDstudy data, we addressed the question in this work, “Daily caffeinated soda intake is associated with impaired working memory and higher impulsivity in children” 2/n
Some soda contains #caffeine (Coca Cola, Mountain Dew, Dr. Pepper, etc). The physical side effects of caffeinated soda such as obesity have been well documented and the short-term effects of caffeine consumption (mostly in adults) are well known. 3/n
Read 16 tweets
1/ Q: What can I do to support a #caregiver?

A: Caregivers need a back-up plan, a much deserved #recharge, and financial support.
2/ Caregiving during the #COVID pandemic has been further strained by disrupted child care, social isolation, unemployment, and a contagious & debilitating virus. If the caregivers fall, so does everything else.
3/ Caregivers come in many forms & are the backbone of daily life for millions of Americans. To anyone in a #caregiving role: WE. SEE. YOU. ❤️

The days are long, the worries are real, & the options in the era of #COVID19 are limited.
Read 14 tweets
This is the #DemPartyPlatform for 2020.This section is called:Guaranteeing a Secure & Dignified Retirement
Only one party has a specific plan for ensuring seniors will not retire to poverty & uncertainty..the other can’t wait to cut &slash to pay for tax cuts for the wealthy 1/8 Image
#Democrats are proud to be the party that advocates retirement security for all. We are the party that created and strengthened Social Security, and defended public and private retirement plans that provide a decent monthly income. 2/9 #DemPartyPlatform #DignifiedRetirement Image
#Democrats are fighting to make sure that all workers have the ability to save at work for emergencies and for retirement. 3/9 #DemPartyPlatform #DignifiedRetirement Image
Read 9 tweets
Addressing #PatientSafety in Healthcare:

I received a call tonight from a mother whose adult daughter was brought via ambulance to the ER. She was in the middle of #pancreas flare. She is 19 & is living with bf. He is the one that made the call. She was in the bath at time 1/
and due to pain and nausea could not get out. Paramedics took her from tub. She had no clothes on (totally understand this was emergency). During transport to ER ketamine and fentanyl were administered. Once at ER she was NOT taken back to bay, instead she was 2/
placed in the lobby on chair. She was left alone in lobby. Her bf was there but no one was monitoring vitals or reactions of medication. The young woman was disoriented. Her boyfriend unsure what to do. While they are ‘adults’ they are young 18/19. The young women 3/
Read 12 tweets
A4: We need better data on #BIPOC #LGBTQ #POC & their experience of #COVID19 - there's not enough data to mount a targeted #publichealth response to personalize our response to the #health crisis #carechat

@NA4Caregiving prweb.com/releases/natio…

1/2
A4: #carechat

It'd also be good to elevate the voices of #patientadvocacy orgs that work with people & #caregivers in diverse communities, such as:

@NMQF
@DiverseElders
@NHCOA
@NAPCA_aging
@sageusa

etc

2/2
There's also the #badass #nonprofit executives who can bring diverse discussions to #caregiving & other #health #policy issues #carechat

@NCBADC's Karyne Jones
@NHCOA's Dr Yanira Cruz
@jason_r_DC of @UsA2_Latinos
Stephanie Monroe of @UsAgainstAlz African Americans Network
Read 3 tweets
I truly believe this is why ⁦@SanfordHealth⁩ is able to get away with all it does. #DennySanford is powerful and a contributor to #republican party. Both SD and ND are red states. Money talks.
#Sanford’s first priority has NEVER been 1/ argusleader.com/story/news/202…
about #patientcare or EVEN about their employees. It has been and is about #money & #power. #Patients & #caregivers needs concerns ignored & complaints to government entities go unheard. Employees provided the worst #healthcare policies ever. #Sanford needs to 2/
truly engage with #patientadvocates if they want their imagine to change. Without his #money & #power they have less protection. Very sad and cynical thing to say but I truly believe it. 3/
Read 3 tweets
I am truly sick upon reading of this senseless tragedy. A #family #physician killed by one of his #patients in #Alberta #Canada. In the #USA we have a broken #healthcare system; #physicians overworked, they are often being dictated the care 1/ todayville.com/community-rais…
they are able to provide to #patients due to outside influences such as administrators, #insurance,#PBMs, politicians & #government. There is concern by #patients & #caregivers re care received this is particularly true w inds that have #complexhealth, #chronicillness & 2/
#chronicpain. Many #patients lives harmed due to #abandonment of care. Our #healthcare system is broken. We are seeing #physcians die by #suicide & #patients being harmed. These issues MUST be addressed! I truly believe that as a #patient #advocate it is also 3/
Read 4 tweets

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