Beth Steckler (she/her) Profile picture
Oct 1, 2020 5 tweets 2 min read Read on X
I can’t.
Do they not realize that pulling individuals from #opioid medications also causes suicide ideation and attempts?
#Paincare in the US is awful. Maybe there are pockets where quality care can be accessed but as a caregiver and advocate for many w #hereditarypancreatitis 1
it’s inadequate, stigmatizing and traumatic. I am tired of waiting. I witnessed the traumas my husband and kids went thru and my hope was to raise awareness that others would not have to suffer the same. The #CDC as well as other entities imo has put the horse 🐎 b4 2/
the cart. Why not look at developing options have less risks instead of trying to gaslight those that have found relief and QoL thru LTOT. Quite honestly it’s a ‘cluster’ and not getting better. I understand that there are wide variances of pain and intensities 3/
and I support wholeheartedly research on every front to be better able to support each person ind based on their needs. Yet there are those that have attempted mult treatment and therapies to find LTOT provides the best QoL. I continue to see trauma at the hands of 4/
the medical community for not acknowledging this. I am tired of pontification I want change. I want the harm and suffering to stop 5/

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More from @purplemamabear

Jan 18
Care for those in #pain often infuriates me because they get very little, none and often labeled. There may be pockets where actual quality care occurs but more often than not I hear stories of #trauma. #HereditaryPancreatitis is a very painful disease. I have watched all my 1
family members struggle with this. It’s gut wrenching. It’s hard for adults but watching a child in such pain is indescribable 💔. I regularly talk to parents or am contacted by parents who are struggling to access pain care for their child with pancreatitis. Just heard from 2
a parent whose child with #hereditarypancreatitis - who is a toddler - NOT joking - was labeled a #drugseeker. Those were the words the mom stated the physician used. A #drugseeker at three. We need access & better quality of care. This only layers trauma on child & family. 3
Read 9 tweets
Nov 1, 2023
I just want to let out my frustrations w the #healthcare system & how assembly healthcare does NOT work. I think back about programs my kids went to. One being a renowned #painprogram. My focus was to assist in developing tools they could utilize in life to deal w #chronicpain 1
& their #illnesses. I wanted a #balance, I wanted a plan that was based on their individual needs. Their #pediatrician at 1st stated she had concerns w #program & not an #option for them. The #clinic called #pediatrician back saying they’d modify it for my kids. There really 2
were not a lot of options. The program promised individual care so off we went.
Nope started #titrating all #painmeds to align w time of #program vs Ind need. Then denied my daughter right to go to walk in #clinic when she was having issues saying this is what youth did 3
Read 10 tweets
May 24, 2023
Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
how this can impact #pain
➡️ Not identify or understanding impact of #MalabsorptionSyndrome
➡️Assumption that removal of #pancreas should immediately ‘solve’ issue of #ChronicPain
➡️ #GastricEmptying issues
➡️ Age of my kids (too young to have #pain)
➡️ Lack of 2
understanding & identification of #MedicalTrauma
➡️T3c #Diabetes
➡️ Impact of #NASH on #pain & options for #care

There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
Read 8 tweets
May 24, 2023
Reviewing some #NorthDakota information surrounding #prescribed #opioids.
#OpioidPrescriptions #declined 34% from 2006 to 2020

Statement in poster ➡️ ‘Since 2007 every state has been working to address the #opioid epidemic & best practices are now understood’

Are they? 1
In the #Conclusion
➡️ nothing that addresses the #harm of #patients that struggled with #chronicpain. #Nothing re #outcomes of those #abandoned by #physicians & removed from #prescribed #opioids. Nothing about the looming disaster of last #physicians that #prescribe in 2 Image
#NorthDakota leaving. #Patients having no recourse. #NorthDakota absolutely has growth in area of serving those w #SUD yet in their pursuit to do this, they have #harmed those w #chronicpain & continue to exclude them in discussions or acknowledge these #harms. @hhsndgov 3
Read 5 tweets
May 24, 2023
#Apologies can be steps towards assisting in #healing #medical #trauma. When my daughter was in @SanfordHealth for 2 months, virtually #secluded bc of accusations by #hospital administration that she causes her diabetic crisis a #hospitalist & #diabetic counselor accused 1
her of ‘stashing’ #Insulin in room. All visitors searched. No items in room unless searched - camera in room 24/7 YET she is accused of injecting #Insulin. My daughter again attempted to educate on post #TPAIT. After additional days, the #Diabetic #Counselor came back & 2
#apologized acknowledging how hard it was to control her #diabetes. It’s hard control when she is at #Baseline but if she is sick nightmare. That #apology meant the world 🌎 to my daughter. She continued to work w this #counselor throughout stay & after. YET #PatientRelations 3 Image
Read 4 tweets
May 24, 2023
#Pain is nuanced
The difficulty with articles such as below example, is nuances not recognized.
For example, I could identify as someone with #chronicPain I have a few conditions that are accompanied by #pain.
My #pain is NOT unrelenting, it’s there ‘hovering’ in the 1 Image
background. I do #yoga 🧘‍♂️ & #meditation & for ME, for the #pain I experience, it provides benefit.
However, take my kids; NASH, kidney disease, gastroperisis, T3, scar tissue neuropathy etc. #mindfullness #meditation is not going even touch it. Not in anyway
2 example of 2
#pain experiences.
It’s understandable that many in nation that are not in #medical profession struggle w the #nuances
What I struggle w & what I believe #harms those w #ChronicPain is the generalization of #pain by #medicalprofessionals & lack of individualizing care based 3
Read 4 tweets

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