Thread by @TerriMe3

Update: My doctor lowered my pain meds AGAIN last month KNOWING how poorly I am tolerating this forced wean. Despite being forced off my meds they made me see the "#addiction doctor" to assess my "risk" of addiction & that appt was yesterday.

During that visit he actually said "I need to just get used to the #pain & I'll be fine", he said " everyone's going this #opioid free route & you have to deal with it" & a few other absurd things. I was literally in tears the entire appointment...

He asked if I wanted to "see someone & possibly get meds" because I was in tears from pain, feeling afraid, unheard & ignored, to which I explained that this is NOT an emotional or mental issue that it's purely a horrific pain & suffering issue... I politely declined the help.

I explained that I am not able to eat properly, I go up to 5-6 days without food, can't sleep more than 40 minutes bc of pain, that I went from a functional good life to a life that I am no longer able to function. I also explained that I'm not having any withdrawal symptoms &

while I was on my normal dose I was stable & my pain was liveable.. He had me fill out the opioid risk assessment questionnaire which scored I was at low risk. Duh! But after reviewing my after visit summary today he actually noted that...

I was #catastrophizing my symptoms because I said things like "I'm no longer functional", "I can't concentrate on anything except my pain", " if I was stable I would be fine". Honestly I was LIVID when I read he felt I was catastrophizing my pain.

He noted that I now have a diagnosis of Adjustment Disorder with Depressed Mood [F43. 21]. That also made me FURIOUS! He noted #OARRS review showed NO reviews to date were concerning. #UTox & #PMP all appear appropriate.

He failed to tell me this during the visit but he noted his recommendation- Patient Plan For Pain was for me to see another care provider for the pain. Unless you live in under/untreated pain of any type & are not functional you have absolutely NO idea how quickly your life can

be taken from you. Its beyond frustrating for pain patients to be ignored, belittled, not taken seriously, dismissed, labeled, judged, misunderstood etc. I see my pain doc next week & I plan on speaking up because I cannot take it anymore. This is beyond cruel & disgusting to be

so abused by the medical system. I really am just over it all. Anyhow sorry I've been MIA, I haven't been doing good at all. My pain is so bad that I wasn't able to wash my hair for 3 1/2 weeks. I can't touch anything on my face, scalp without feeling like I'm

being stabbed with an ice pick lined with shards of glass & dipped in boiling acid. My pain is 100% REAL & I don't catastrophize any part of the suffering I am now forced to live with. Walk in my shoes for a day & then tell me how you would feel. (speaking to the docs). It SUCKS!

#PainCrisis #StopTheSuffering #PainDiscrimination #PainPatientsDontLie #WalkInMyShoes #NESVoid #PainHysteria #cpps #opioids #ChronicPain #MedTwitter #PainLivesMATTER #PROP #CDC #AMA