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Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
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23 Jul, 4 tweets, 8 min read
🦋It’s a day for truth🦋

Over 40 children positive for COVID are ending up in hospital ❗️each day❗️

Vs

50 RSV admissions ❗️a week❗️

What are the COVID discharge outcomes?

How many are fully recovered /have ongoing symptoms? Are they clear from organ damage?

HT @jneill Image
@jneill @DawnButlerBrent @AdeleGroyer @grahamja51 @SGriffin_Lab @DanielGriffinMD @surf4children @BinitaKane @chrischirp @dgurdasani1 @cv_cev @MyVoiceYourVoi1 @SafeEdForAll_UK @TigressEllie @LongCovKidsScot @SickKidsNews @CanPaedSociety @deeksj @DGBassani @DrEricDing
@jneill @Emmy_ShieldUsNI @ZeroCovAlliance @Ecole_Oubliee @timspector @ShamezLadhani @AppgCoronavirus @apsmunro @adamhamdy @mdbuckley @theAliceRoberts @Zubhaque @globalhlthtwit @long_covid
@jneill

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More from @LongCovidKids

Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
26 Jul
1) More #longcovidkids are getting #FND diagnosis
What is Functional Neurological Disorder?
A problem with the functioning of the nervous system & how the brain & body sends / receives signals, rather than a structural disease process such as multiple sclerosis or stroke. FND
2) can encompass a wide variety of neurological symptoms
Motor dysfunction
• Functional limb weakness/paralysis
• Functional movement disorders; including tremor, spasms, jerky movements & problems walking
• Functional speech symptoms; including whispering speech, slurred or
3) stuttering speech
Sensory dysfunction
• Functional sensory disturbance inc altered sensation; e.g. numbness, tingling/ pain in the face, torso/ limbs. This often occurs on one side of the body
• Functional visual symptoms; inc loss of vision/ double vision #longcovidkids
Read 6 tweets
Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
15 Jul
We have been asking @NHSuk @govuk to update their symptoms since autumn 2020 to inc ones kids present with.
Both on test page & symptoms lists.
Check out the comments on @trishgreenhalgh post about testing barriers.

#LongCovidKids #testtoprotect

@NHSuk @GOVUK @trishgreenhalgh @kidsCovidGamble @GavinWilliamson @sajidjavid @SafeEdForAll_UK @allthecitizens @dgurdasani1
@NHSuk @GOVUK @trishgreenhalgh @kidsCovidGamble @GavinWilliamson @sajidjavid @SafeEdForAll_UK @allthecitizens @dgurdasani1 Page 8 of our Awareness Pack - compare and contrast USA vs UK symptom lists
Read 4 tweets
Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
15 Jul
😢 💔 ☠️
1) Every single time a child gets infected with #COVID19 their symptoms must be believed & their treatment must be prompt.
Currently that is NOT happening , and 🔜 more kids will be at risk.
😷 🏫👨‍👩‍👧‍👧👩‍👧👨‍👦👨‍👨‍👧‍👧
@NHSuk @sajidjavid @GavinWilliamson

newschannel10.com/2021/07/12/mom…
2) Simons returned home after a 10-day hospital stay, but her recovery was short-lived.
“I started noticing she didn’t want to come down the stairs,” Reevey said. “She started complaining, she was feeling weak.”

100’s of families see the same in #longcovid
3) Reevey booked an appointment with a specialist, but Simons wouldn’t make it. She died on June 28.

She gave me a hug, and I went to go lay down, and I came in the morning and she was already passed away,”
#MISC #PIMS
Read 4 tweets
Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
14 Jul
GROUP POST ON EXERCISE
1)"My 15 yr old son is 16 months into LC. It took 15 months to be diagnosed. He has still not received any professional advice or support about eg how to #pace; how to manage ongoing symptoms.
@NHSuk @JimBethell @sajidjavid
2)He has improved slightly in the last couple of months but is still very ill with fatigue, dizziness, chest pains, migraines. His paediatrician has "prescribed" exercise via the local leisure centre. They are not mentioning GET, but the programme is not being
3)delivered via medical professionals. I am terrified that this is going to do more harm than good, so was planning to ditch it. He is already experiencing boom and bust with everyday activities- ie doing a small activity at the weekend and then taking the week to recover.
Read 4 tweets
Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
6 Jul
What do we know about #LongCovidKids ?

We know that at least 8% of secondary age & at least 7% of primary age kids who get #COVID19 will get #LongCovid.

A quarter of children hospitalised still have symptoms at 8.5 mths

#LongHaulers
We know that #longcovidkids often report feeling brighter after 2-3 wks post #COVID19 infection & then develop #longcovid symptoms wks 4-6.
With the longest gap between infection & symptoms reported at 8mths.

Kids 🤒 in March 2020 are still reporting new symptoms.
What else do we know about #LongCovidKids ? We know that the top 10 symptoms reported in our survey are;

🚨 Gastrointestinal Issues
🚨 Chest Pain
🚨 Headaches
🚨 Fatigue
🚨 Joint / Muscle Aches Pain
🚨 Sore Throat
🚨 Dizziness
🚨 Rashes
🚨 Mood Changes
🚨 Nausea

#Kids
Read 7 tweets
Long Covid Kids Official HQ 🧡 💙🧡 #FBLCK#FBLC Profile picture
4 Jul
🚨If you care for/about children, today's newsletter is a must read🚨

Fully referenced, understand the latest about children & COVID

longcovidkids.org/so/a3NfclaEw?l…
Shout out & heartfelt thanks to @Zubhaque @Kit_Yates_Maths @dgurdasani1 @jneill @SafeEdForAll_UK and all grassroots parenting groups fighting for children on the front line
@Zubhaque @Kit_Yates_Maths @dgurdasani1 @jneill @SafeEdForAll_UK @IndependentSage @LckUsa @LCKCanada @LongCovKidsScot @ConcernedofBri1 @PenderynDic @grahamja51 @trishgreenhalgh @chrischirp @FrancesorFran @Parents_Utd @TigressEllie @DrRedmile @OneVoice_Group @Telegraph @MailOnline @Independent @carolecadwalla @guardiannews @theAliceRoberts
Read 5 tweets

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