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Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

15 Jul

@NHSuk

😢 💔 ☠️
1) Every single time a child gets infected with #COVID19 their symptoms must be believed & their treatment must be prompt.
Currently that is NOT happening , and 🔜 more kids will be at risk.
😷 🏫👨‍👩‍👧‍👧👩‍👧👨‍👦👨‍👨‍👧‍👧
@NHSuk @sajidjavid @GavinWilliamson

newschannel10.com/2021/07/12/mom…

2) Simons returned home after a 10-day hospital stay, but her recovery was short-lived.
“I started noticing she didn’t want to come down the stairs,” Reevey said. “She started complaining, she was feeling weak.”

100’s of families see the same in #longcovid

3) Reevey booked an appointment with a specialist, but Simons wouldn’t make it. She died on June 28.

She gave me a hug, and I went to go lay down, and I came in the morning and she was already passed away,”
#MISC #PIMS

Read 4 tweets

Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

14 Jul

@NHSuk

GROUP POST ON EXERCISE
1)"My 15 yr old son is 16 months into LC. It took 15 months to be diagnosed. He has still not received any professional advice or support about eg how to #pace; how to manage ongoing symptoms.
@NHSuk @JimBethell @sajidjavid

2)He has improved slightly in the last couple of months but is still very ill with fatigue, dizziness, chest pains, migraines. His paediatrician has "prescribed" exercise via the local leisure centre. They are not mentioning GET, but the programme is not being

3)delivered via medical professionals. I am terrified that this is going to do more harm than good, so was planning to ditch it. He is already experiencing boom and bust with everyday activities- ie doing a small activity at the weekend and then taking the week to recover.

Read 4 tweets

Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

6 Jul

https://twitter.com/Dr2NisreenAlwan/status/1410977653788659713

What do we know about #LongCovidKids ?

We know that at least 8% of secondary age & at least 7% of primary age kids who get #COVID19 will get #LongCovid.

A quarter of children hospitalised still have symptoms at 8.5 mths

#LongHaulers

https://twitter.com/Dr2NisreenAlwan/status/1410977653788659713

We know that #longcovidkids often report feeling brighter after 2-3 wks post #COVID19 infection & then develop #longcovid symptoms wks 4-6.
With the longest gap between infection & symptoms reported at 8mths.

Kids 🤒 in March 2020 are still reporting new symptoms.

What else do we know about #LongCovidKids ? We know that the top 10 symptoms reported in our survey are;

🚨 Gastrointestinal Issues
🚨 Chest Pain
🚨 Headaches
🚨 Fatigue
🚨 Joint / Muscle Aches Pain
🚨 Sore Throat
🚨 Dizziness
🚨 Rashes
🚨 Mood Changes
🚨 Nausea

#Kids

Read 7 tweets

Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

4 Jul

🚨If you care for/about children, today's newsletter is a must read🚨

Fully referenced, understand the latest about children & COVID

longcovidkids.org/so/a3NfclaEw?l…

@Zubhaque

Shout out & heartfelt thanks to @Zubhaque @Kit_Yates_Maths @dgurdasani1 @jneill @SafeEdForAll_UK and all grassroots parenting groups fighting for children on the front line

@Zubhaque

@Zubhaque @Kit_Yates_Maths @dgurdasani1 @jneill @SafeEdForAll_UK @IndependentSage @LckUsa @LCKCanada @LongCovKidsScot @ConcernedofBri1 @PenderynDic @grahamja51 @trishgreenhalgh @chrischirp @FrancesorFran @Parents_Utd @TigressEllie @DrRedmile @OneVoice_Group @Telegraph @MailOnline @Independent @carolecadwalla @guardiannews @theAliceRoberts

Read 5 tweets

Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

23 May

🛑7 months ago a mum started a group🙏 Add 1 co-founder🌷 and 2 other mums☀️☀️10 000 Twitter followers later, a support group for 3000 children, published research and fundraised CO2 monitors for schools, they work with these amazing groups as the voice for forgotten 🌈children🌈

Long Covid Kids (LCK) is currently supporting projects with;
Long Covid Kids Canada & Long Covid Kids USA
NIHR Long Covid Committee
NHS - National Health Service Long Covid Task Force
NIHR - National Institute for Health Research Expert Group

A number of leading children’s hospitals around the UK, and infectious disease pediatricians. Fundraising CO2 monitors for schools with Safe Ed For All. Sunday newsletter and FREE 64 page Awareness Pack here including comprehensive sectn ventilation

longcovidkids.org/resources

Read 5 tweets

Long Covid Kids Official HQ 🧡 💙🧡 #FBLC #FBLCK

@LongCovidKids

22 May

1) One family shares their story in their own words. They are still in hospital, our thoughts are very much with them.
"In this covid obsessed world, you would never imagine your child being affected to the point where you believed there was a possibility you may lose them.

2) We are constantly told our children are not really at risk and unfortunately, this is what we believe.
So after we took Marley to hospital with possible tonsillitis and appendicitis symptoms there was a lot of confusion to what was wrong. A few days later he was rushed to the

@EvelinaLondon

3) @EvelinaLondon in an ambulance to intensive care and diagnosed with Paediatric Inflammatory Multisystem Syndrome (PIMS) caused by covid in children.
⚠️I want to make people aware of how serious this actually is.
⚠️Marley went from laughing about teddies on his blood test