Long Covid Kids Official HQ 𧑠π𧑠#FBLC #FBLCK
14 Jul,
4 tweets, 5 min read
GROUP POST ON EXERCISE
1)"My 15 yr old son is 16 months into LC. It took 15 months to be diagnosed. He has still not received any professional advice or support about eg how to #pace; how to manage ongoing symptoms.
@NHSuk @JimBethell @sajidjavid
1)"My 15 yr old son is 16 months into LC. It took 15 months to be diagnosed. He has still not received any professional advice or support about eg how to #pace; how to manage ongoing symptoms.
@NHSuk @JimBethell @sajidjavid
2)He has improved slightly in the last couple of months but is still very ill with fatigue, dizziness, chest pains, migraines. His paediatrician has "prescribed" exercise via the local leisure centre. They are not mentioning GET, but the programme is not being
3)delivered via medical professionals. I am terrified that this is going to do more harm than good, so was planning to ditch it. He is already experiencing boom and bust with everyday activities- ie doing a small activity at the weekend and then taking the week to recover.
4) What should we do?"
@LongCOVIDPhysio @Occ4LifeLtd @long_covid @LongCovidSOS @ClaireHastie1 @selkieO @NVTweeting @OneVoice_Group @LaylaMoran @GwynneMP @BBCLucyAdams @Ruth5News @MEAssociation @PhysiosForME #MECFS #LongCovid @maxwele2 @CMO_England
@LongCOVIDPhysio @Occ4LifeLtd @long_covid @LongCovidSOS @ClaireHastie1 @selkieO @NVTweeting @OneVoice_Group @LaylaMoran @GwynneMP @BBCLucyAdams @Ruth5News @MEAssociation @PhysiosForME #MECFS #LongCovid @maxwele2 @CMO_England
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