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Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
@LCKScotland
Sep 3, 2021 • 6 tweets • 8 min read • Read on X
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🏴󠁧󠁢󠁳󠁣󠁴󠁿 Schools back for 3 weeks 🏴󠁧󠁢󠁳󠁣󠁴󠁿

#DeltaVariant is ripping through schools.

From 16th Aug - 2nd Sept inclusive: 💥26,836 cases age 0-19💥

💔~1% will be hospitalised (268)
💔~14% will be #LongCovidKids (3757)
💔~0.01% - 0.03% will die (2 - 8) 😢

#LongCovid #COVID #BackToSchool
Some schools in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 have already been forced to close due to staff absence from #COVID19

Some classes are are half empty as children continue to pass #DeltaVariant between one another.

🛑On 16th Aug 🏴󠁧󠁢󠁳󠁣󠁴󠁿 recorded 477 new child cases
🛑On 2nd Sept 🏴󠁧󠁢󠁳󠁣󠁴󠁿 recorded 2596 new child cases
Local Authorities and @scotgov continue to reassure us that children are not transmitting #Covid19 in schools.

Apparently school pick up/drop off is the culprit.

Do we think that is true? Does #DeltaVariant have such high intelligence that it refuses to enter school buildings?
With 5 more week of term to go, how many more kids will have to suffer until we do something?

How many teachers?

How many will develop #LongCovid and potentially suffer a lifetime of disability?

#DeltaVariant #BackToSchool #COVID #MakeSchoolsSafe #MaskUp #ScotEdu #TeachersDay
Many Local Authorities failed to #MakeSchoolsSafe

👎Inadequate ventilation
👎Lack of CO2 monitors
👎Windows that don't open

We intend to repeat the FOI process in Oct to monitor the progress of risk mitigations implemented in schools.
#LongCovidKids

“We are no longer seeking to suppress Covid to the lowest possible level. Now we have vaccinations, the restrictions required to suppress Covid could not be justified" @JohnSwinney

Kids are not eligible for #Vaccination. How are they to be protected?

news.stv.tv/politics/swinn…

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More from @LCKScotland

Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
Jun 1, 2022
Can anyone help this family in Dunfermline, Fife?

Courtney, 13, had #Covid19 in March '20 (+ve PCR in hospital) and developed #LongCovid.

She had #COVID19 again in March '22 and her condition has significantly worsened.

The family have no support. Can you help?
#LongCovidKids
"The paediatrician told me she'd recover fully within 6months, then it was 12 months, 18 months, and on 11th May he tells us there's no cure & no treatment & she's as good as she can be. But after 2nd #covid infection she's worse than what she was."
#LongCovidKids #LongCovid Image
"She had a trial medication, which made no difference. Her mobility has seriously decreased. I get no help from @FifeCouncil. She's already registered visually disabled & we have nobody to help her. I'm on my own with her."

#LongCovidKids Image
Read 6 tweets
Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
Sep 24, 2021
🏴󠁧󠁢󠁥󠁮󠁧󠁿 "updated" their testing prerequisites. Sort of. Not really.

We have a similar issue in 🏴󠁧󠁢󠁳󠁣󠁴󠁿

📚HYPOTHETICAL STORYTIME📚
I'm a 10yr old with a sore tummy, runny nose & headache. My classmate just tested positive for #COVID19. I'm not classed as a close contact. LFD is -ve.
But I feel poorly & I sit on table close to +ve classmate. Prob best to PCR, right?

Mum goes to book PCR on @scotgov NHS Inform & runs into a problem. My symptoms of sore tummy, runny nose & headache are not listed, I'm not a "close contact" & LFD -ve.

#LongCovidKids #LongCovid
So mum continues through the questionnaire and answers truthfully.

Oh. I can't get a PCR & told to LFD again. Even though I don't feel well, have symptoms of #COVID19 #DeltaVariant (that are not on the website) and have been close to a +ve case.

#LongCovidKids #LongCovid
Read 4 tweets
Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
Sep 22, 2021
We are concerned @jasonleitch feels that parent advocate groups for either side of the argument are extremists.

~It's either the "UsForThem lot" shouting to give kids their freedom & open up, or the other ones shouting 'stop letting the virus spread, you're killing our kids.'~
@jasonleitch The difference is that we are parents of #LongCovidKids. We see first hand how #COVID19 has affected our children.

There are ~4000 children in our group & very few have recovered. The majority of them have now passed the 12 month mark & are still debilitated.
Here are some of the children in our group who are suffering daily symptoms. Symptoms that are not in the least bit trivial. Their lives have been turned upside down as they now attempt to live with #longcovid. We don't know if/when they will get better.

Read 10 tweets
Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
Jul 4, 2021
Brilliant easy to read article 👇👇👇

TL;DR
👉~14% of people who catch covid-19 end up with lasting symptoms: ~25 million people worldwide.
👉Could be big underestimate - less than 10% of infections detected - true figure could be nearer 250 million.

sciencedirect.com/science/articl…
👉No universally agreed definition.
👉NIHR divide #LongCovid into 4 groups: those with after-effects of ventilation; those with organ damage caused by #SARSCoV2; those with post-viral fatigue syndrome; miscellaneous group that the authors call those with long-term covid syndrome.
👉One puzzling feature: those most prone to long covid aren't those most likely to get sick from the initial infection.
👉women 30% more likely to get it than men
👉35 to 69-year-olds are the age group most often affected (ONS)
👉WHO working to agree a clinical case definition.
Read 7 tweets
Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Profile picture
Jul 2, 2021
Several children in our group have had a diagnosis #PANS triggered by Covid infection.

💙PANS = Paediatric Acute-onset Neuropsychiatric Syndrome💙

A sudden onset of:
👉 OCD symptoms and/or severe eating restrictions
👉 Cognitive, behavioural, neurological symptoms (at least 2)
😢"It’s like my child woke up as a
completely different person!"😢

#PANS kids display a dramatic personality
change, some #OCD, tics or issues with
food, together with a number of other symptoms
usually following some kind of infection.

panspandasuk.org
In very young children, #OCD can display as intense anxiety or fears.

Symptoms can be extremely alarming:
👉Anxiety/depressive moods
👉Aggression and/or irritability
👉Severely oppositional behaviour/regression
👉Sensory & motor abnormalities
👉Hallucinations and/or psychosis
Read 5 tweets

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