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Phil Booth Profile picture
@EinsteinsAttic
Sep 15, 2021 • 5 tweets • 7 min read • Read on X
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More info on the @CancerPrev_KCL & @CR_UK-run NHS-Galleri™ #screening trial:

kcl.ac.uk/news/kings-lea…

cancerresearchuk.org/about-cancer/c…

Worth noting you can't #volunteer for this trial, but if you are 50-77 & haven't been diagnosed with cancer in the past 3 years, you may be #invited... Image
The NHS-Galleri™ #screening trial is a proper #RCT, which means half of the 140,000 participants WON'T be tested (certainly not in the initial phase) and NONE will be told whether they have been #tested or not.

Of course if the test indicates *possible* markers for #cancer... Image
...then you will be contacted by the trial nurse by phone, and will be referred to an NHS hospital for further tests.

So every participant in the NHS-Galleri™ #screening trial should still attend standard screening & should contact their GP if they notice any unusual symptoms: Image
The trial is an #experiment, trying to determine if @GrailBio's #Galleri™ test works for the #asymptomatic - a positive result doesn't mean you definitely have #cancer.

A separate trial, #SYMPLIFY, is being run on those who do already have #symptoms:

cancerresearchuk.org/about-cancer/f… Image
There's more information on how your information is being used for the NHS-Galleri™ screening trial here:

digital.nhs.uk/services/nhs-d…

Including the legal basis for processing patients' data so as to identify suitable participants, and what to do if you don't wish to be contacted: ImageImage

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More from @EinsteinsAttic

Phil Booth Profile picture
Dec 29, 2022
Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...

england.nhs.uk/coronavirus/wp…
To be clear, 30 individual NHS Trusts* are using #Palantir #Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:

palantir.com/uk/healthcare/

*Though @NHSEngland won't say which ones...
The timing (and placement) of the piece is, however, quite obvious - with the tender for @NHEngland's "#FederatedDataPlatform" imminent.

And the #FDP - whether awarded to #Palantir or otherwise - is most definitely something people will have concerns about, especially given...
Read 5 tweets
Phil Booth Profile picture
Nov 13, 2022
This headline 👇 will be no surprise to anyone who's been following @NHSEngland's plans (and actions) for a while.

But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...

theguardian.com/society/2022/n… Controversial £360m NHS Eng...
First, and possibly most significantly, is @NHSEngland officials' confirmation that its '#FederatedDataPlatform' will incorporate patients across England's #SharedCareRecords: Health officials confirmed ...
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...

__
*#IntegratedCareSystem explainer here:

kingsfund.org.uk/publications/i… Map 1: The 42 integrated ca...
Read 21 tweets
Phil Booth Profile picture
Nov 1, 2022
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…

gov.uk/government/spe… I will unite our country, not with words, but with action.
Earlier today we got a bunch of detail out of @NHSDigital’s Board papers and services performance pack - what of that will continue post-#merger?



N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?

Read 31 tweets
Phil Booth Profile picture
Nov 1, 2022
While the chaos of '#AcceleratedCitizensAccess' to #GPrecords continues to unfold:



...we've come across some perturbing items on the agenda for @NHSDigital's Board meeting this afternoon 👇 which I'll pick up on in this [Thread].

nhs-prod.global.ssl.fastly.net/binaries/conte…
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals... 1 Executive Summary NHS England are directing NHS Digital t
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?

And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController... Whether you are a controller or processor depends on a numbe
Read 25 tweets
Phil Booth Profile picture
Oct 30, 2022
Hmm. Why would @ukhomeoffice choose to announce this today:

gov.uk/government/new…

...making explicit reference to "the findings from the Independent Review of #Prevent, led by William Shawcross", WITHOUT PUBLISHING THE REVIEW?
It's not like publication of the #PreventReview wasn't long overdue *nearly a year ago*...

independent.co.uk/news/uk/home-n…

From December 2021: Review of Prevent counter-e...
...and yet, despite having been submitted to @pritipatel in April 👇, and #leaked in May 2022:

theguardian.com/uk-news/2022/m…

...and then #teased in September:

telegraph.co.uk/politics/2022/… The findings of the report,...
Read 5 tweets
Phil Booth Profile picture
Oct 30, 2022
Yes.
And it's far worse than some 'technical breach':

#Inhuman mistreatment *knowingly* in breach of the law:

Read 4 tweets

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