1/🧵Real World #LongCOVID: listen up
 
Words from a #LongHauler (shared w perm): “It’s been a year, Dr. Wes, & my hand tremors are getting worse. I don't have them all the time, but some days, for some reason, my right hand & my legs want to just shake…

bit.ly/3afyE3k Image
2/ The tremors trigger me knowing it's going to be a tough day, so I try not to work on tasks such as like invoicing or complicated emails. If there's a fire I need to put out, I get someone to help me with it because my mind is just shot…

#brainfog 🧠 Image
3/ Today is a good example. After I got out of the hospital, I got a lot better for a few months, but then the #LongCOVID stuff started and I’m declining. I’ve never left my phone at home when going to work, and now I’ve done it 3 times. Misspelling simple words,…
4/ Using words in my mind incorrectly. Like we may be having a conversation & you'd say, "Oh gosh, I see a blue cloud." Well, if I write it down, I could spell it B-L-U or like the water, S-E-A. Simple words that you learn in kindergarten how to spell…
5/ but I'm using them in the wrong context, even thinking sometimes. I have to read my emails 3 and 4 times before I send them to be sure that I'm using the correct words, that I'm not using incorrect spelling. And I have a pretty big job…
6/ I help manage a $15 million contract, and since #COVID, I've had some of the duties taken away from me just for the simple reason that there were too many mistakes and it could turn into a very costly situation. And that's difficult, because that's my livelihood…
7/fin
“Fortunately, I’ve been here 14 yrs & they won’t fire me…yet…Doc, I cancelled all my regular appointments because all the tests are negative anyway. My family now is the @CIBScenter support group. They get me.”
 
@WHO clinical def #LongCOVID: bit.ly/3ljLpQK

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More from @WesElyMD

11 Nov
1/🧵A patient told me he lost hope. A spouse got mad at me for being too direct. I needed #compassion & truth to restructure #hope toward what was possible. These tools can be taught, learned & modeled.

A story for you, placing compassion & hope side-by-side… Image
2/ Compassion and Hope must be modeled for students to learn…and must be part of every interaction with patients.
 
In my end-of-life conversations, while always remaining kind, I avoid providing false hope. Image
3/ I was once explaining to a daughter that her mother was dying on the ventilator, a conclusion I had come to over five days as, despite everything we had done, no reprieve was in sight. The once-placid daughter slammed her fist on the table, then raised it at me as I recoiled.
Read 7 tweets
10 Nov
1/🧵 End-of-Life: Thoughts
 
I was explaining to others how the end of my patients’ lives is often such a beautiful experience. They looked back at me with utter confusion. I could tell they thought I was crazy.

Since then, I’ve been thinking of what I should have said…
2/ I should’ve explained that too often in life I feel like I hold on to things I need to let go of. That sometimes I try and force solutions in relationships and all sorts of situations when I simply need to let go.
3/ I watch my patients often try and carry the weight of circumstances way past when it’s obvious the burden is too great bear. The only logical solution is to let go of the rock that is drowning them. To let life flow and take its natural course.
Read 13 tweets
8 Nov
1/🧵 #Coronavirus Words 📕
 
Words matter!

These 4 new words were added to the @MerriamWebster dictionary last month…
 
📍Breakthrough medical infection
📍super-spreader
📍#LongCOVID
📍Vaccine Passport
 
Defined below…
 
bit.ly/3H38mkb
2/ Breakthrough medical: infection occurring in someone who is fully vaccinated against an infectious agent — often used before another noun (as in “breakthrough cases” or “breakthrough infection”). Image
3/ Super-spreader: an event or location at which a significant number of people contract the same communicable disease (as in a “super-spreader event”). The term super-spreader originally referred only to a highly contagious person. Image
Read 6 tweets
8 Nov
1/🧵 #Wisdom in 2 little words: Over & Next
 
@rachelnpr on @NPR asked Norman Lear at 99 y/o (“All in the Family” game) how he’s persevered?
 
Lear’s answer is both simple and mystic! Read on…💥
 
n.pr/3mC0VZ1
2/ “Two little words we don’t pay enough attention to: Over & Next. When something is over, it is over. And we are on to next. I like to think about the hammock in the middle of those two words.”
 
I’m going to rest in the hammock today…what do this mean for me?
3/ “That’s living in the moment. That’s the moment I believe I’m living as I complete this sentence. And it couldn’t be more important to me.” #NormanLear
 
I’m reminded of this next quote… Image
Read 8 tweets
22 Oct
1/🧵For months I’ve been grappling with what seemed like a real gap in conversations about #LongCOVID.

Here in @STATnews, I introduce you to 30 references & 3 #COVID survivors – Ray, Pam, and Carolyn – who taught me a lot. I hope you think so, too…

bit.ly/2Zb9S2J
2/ "I feel like I'm getting the silent treatment & it's killing me," #LongCOVID pt Pamela Bishop confided in me about her months-long interactions as she tried to get answers about a strange array of symptoms that have plagued her since recovering from #Covid19.

Pam then & now…
3/ Up to1 in 3 COVID survivors report experiencing #longCovid symptoms 3 to 6 months later. Their stories give me an extreme case of déjà vu because this is playing out similarly to the problem of long-term survivorship after non-COVID critical illness.
 
bit.ly/3vzcIdn
Read 26 tweets
21 Oct
1/🧵 Dozens of #Ivermectin lawsuits now filed trying to FORCE doctors to give a worm & parasite drug to people infected with a VIRUS!

If you saw a movie with this tag-line, you’d say, “That is so stupid.” And yet…read on…
 
bit.ly/2Z6QJ1o
2/ There has been a mix of results in state courts. Some judges have refused to order hospitals to give ivermectin. Others HAVE ordered medical providers to give the medication, despite concerns it could be harmful.
3/ NY State Supreme Court Judge Porzio wrote: “This court will not require a doctor to be placed in a potentially unethical position committing medical malpractice by administering a medication for an unapproved, alleged off-label purpose.”
Read 9 tweets

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