1/🧵A patient told me he lost hope. A spouse got mad at me for being too direct. I needed #compassion & truth to restructure #hope toward what was possible. These tools can be taught, learned & modeled.
A story for you, placing compassion & hope side-by-side…
2/ Compassion and Hope must be modeled for students to learn…and must be part of every interaction with patients.
In my end-of-life conversations, while always remaining kind, I avoid providing false hope.
3/ I was once explaining to a daughter that her mother was dying on the ventilator, a conclusion I had come to over five days as, despite everything we had done, no reprieve was in sight. The once-placid daughter slammed her fist on the table, then raised it at me as I recoiled.
4/ She stormed out, & I finished the conversation w her sister. A surprised med student asked me how I remained poised & hadn’t appeared agitated. I told her I believed the daughter had reached a personal ceiling of grief & was not acting like herself due to the immense stress.
5/ Moments later, when I went into the room to sit with her at her mother’s bedside, we unpacked what had happened. I asked what her mom would want at this stage. She said her mom loved poetry, so we started with Emily Dickinson…
6/fin #EmilyDickinson: “Hope’ is the thing with feathers - That perches in the soul - And sings the tune without the words – And never stops - at all -.” There was hope even in the face of death. It was a restorative moment for all of us.
By the way, @StephenTrzeciak is a gift to medicine and as author of Compassionomics, put the science and data behind teaching this talent to all health care professionals! TY 🏆
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I was explaining to others how the end of my patients’ lives is often such a beautiful experience. They looked back at me with utter confusion. I could tell they thought I was crazy.
Since then, I’ve been thinking of what I should have said…
2/ I should’ve explained that too often in life I feel like I hold on to things I need to let go of. That sometimes I try and force solutions in relationships and all sorts of situations when I simply need to let go.
3/ I watch my patients often try and carry the weight of circumstances way past when it’s obvious the burden is too great bear. The only logical solution is to let go of the rock that is drowning them. To let life flow and take its natural course.
2/ Breakthrough medical: infection occurring in someone who is fully vaccinated against an infectious agent — often used before another noun (as in “breakthrough cases” or “breakthrough infection”).
3/ Super-spreader: an event or location at which a significant number of people contract the same communicable disease (as in a “super-spreader event”). The term super-spreader originally referred only to a highly contagious person.
2/ “Two little words we don’t pay enough attention to: Over & Next. When something is over, it is over. And we are on to next. I like to think about the hammock in the middle of those two words.”
I’m going to rest in the hammock today…what do this mean for me?
3/ “That’s living in the moment. That’s the moment I believe I’m living as I complete this sentence. And it couldn’t be more important to me.” #NormanLear
2/ "I feel like I'm getting the silent treatment & it's killing me," #LongCOVID pt Pamela Bishop confided in me about her months-long interactions as she tried to get answers about a strange array of symptoms that have plagued her since recovering from #Covid19.
Pam then & now…
3/ Up to1 in 3 COVID survivors report experiencing #longCovid symptoms 3 to 6 months later. Their stories give me an extreme case of déjà vu because this is playing out similarly to the problem of long-term survivorship after non-COVID critical illness.
2/ There has been a mix of results in state courts. Some judges have refused to order hospitals to give ivermectin. Others HAVE ordered medical providers to give the medication, despite concerns it could be harmful.
3/ NY State Supreme Court Judge Porzio wrote: “This court will not require a doctor to be placed in a potentially unethical position committing medical malpractice by administering a medication for an unapproved, alleged off-label purpose.”
2/ I fully believe in #LongCOVID, and patients must be validated as the experts of their own narrative. BUT, absence of a billing code sent a terrible message to clinicians & pts.
This legitimizes the #PublicHealth catastrophe & facilitates pts being HEARD & SEEN 👁.
3/ Docs “believe” better when they can charge for testing & get pts covered, too. This also allows databases to track & analyze epidemiology of #LongCOVID. That means research can be carried out to answer questions, improve care & prepare for future pandemics. Read an anecdote👇