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Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
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11 Nov, 11 tweets, 18 min read
1 What does Long Covid look like?
Where do symptoms occur?

🆘🆘Anywhere 🆘🆘

#Arms
#LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid ImageImageImageImage
2 #LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#Legs ImageImageImageImage
3 #LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#Rashes ImageImageImageImage
4 #LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#face ImageImageImageImage
#LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#feet ImageImageImageImage
6 #LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#Mobility ImageImageImageImage
#LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#pain ImageImageImageImage
8 #LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#hands ImageImageImageImage
#LongCovidKids #LongCovidKids #LongCovidKids
#Longcovid
#Neurological #NeuropsychTwitter
10 #LongCovidKids #LongCovidKids #LongCovidKids
#LongCovid

and many, many more....

11 Avoid #LongCovid by avoiding #COVID19.

We offer support, signposting, and guidance with a friendly hug, 🤗 so you don't have to go through this alone.
#LongCovidKids
longcovidkids.org/long-covid-kid…

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More from @LongCovidKids

Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
14 Nov
Group Post

“9year old had #covid in September and had continued to have dizzy spells and back pain. this week his lung has completely collapsed and needs major surgery...has anyone had this happen?”

#LongCovidKids
Group Post
it is so sad to read how many children are suffering right now.

After mild COVID my S has

Extreme tiredness (able to stay awake for 4 hrs at a time)
Conjunctivitis x 2 (antibiotics)
Tonsillitis x 3 (antibiotics)
2 bouts of Gastritis (with acid reflux) & sickness.
Group post.

My 9 yo tested + mid sept. She didbt have typical #covid symptoms....had tummy pains, nausea, headaches, extreme fatigue. Was fine to return to school after 10days but still bit tired. Week later had bad cold virus along with bad tummy pains and nausea. Dr thought
Read 15 tweets
Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
1 Nov
1/3 At least 14% of children who get #COVID19 will get #LongCovid.
All children are exposed to #COVID19 & are likely to get infected.
The @UKHSA has not provided a #COVID symptom list.
Families are confused when to isolate or test.
Without a +test it is very difficult to
2/3 get medical care & support (it shouldn't be but it is).
Without a diagnosis, children are "pushing through" symptoms which we know has a detrimental effect.
The best option is to avoid infection, but this isn't available to CYP who have to attend school by law.
So as you
3/3 can see, a list of symptoms would be very helpful in reducing the overall impact on pediatric health.

@sajidjavid this is a crisis altering the lives of children.
The @CDCgov has a list, why don't we?

⬇️These are from the #nhs website & are NOT the main symptoms in kids
Read 4 tweets
Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
31 Oct
Group Post

“My teen D just broke down 😢 shes had thoughts about self harm. She can’t take #LongCovid anymore, she feels empty. She has been keeping it from me as she didn’t want to bring me down as I’m still ill too. We are so broken and I can’t help her”

#LongCovidKids
Group post

“5 year old and 7 year old. Cried in pain with there stomachs every night for a year. Had to sit out of pe, give up there active hobbies. Always tired can’t run around like normal children. Doctors and pediatrician can’t help”

#LongCovidKids
Group post

“#LongCovid has stolen two years from us ..... that sums it up.”

This is living with #COVID19

#LongCovidKids
Read 10 tweets
Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
31 Oct
Group Posts.

“Only 6 weeks in & I take my hat off to all of you as I’m at breaking point
She has no taste, smell, continued head & eye pain untouched by painkillers, breathless, tight chest, fatigue.
Admitted to hospital in week 3, treated for #PIMS then decided it wasn’t
that and that it’ll be ‘long covid’ and dismissed.
Gp won’t help as he said it’s got to be 12 weeks”
Group Post

“16 year old daughter. Covid contact at start of September but tested negative. Been progressively getting sicker. No taste so struggling to eat, extreme fatigue but can't sleep, headache that she can't get any relief from with painkillers, body aches, dizziness,
Read 10 tweets
Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
2 Oct
1) Pre results from hospital's medical examiner indicate that Jorja had Covid myocarditis from #COVID19
#Sept10❤️
We wrote to @hantsconnect to ask why schools were refusing to put donated CO2 monitors in schools -7th Sept -Ticket ID 104074873
#longcovidkid
thesun.co.uk/news/16308491/…
2) On the 10th of Sept we received an email stating our enquiry had been passed to the "Assistant Director – Education & Inclusion"
We have yet to receive a response.

Our heart breaks for Jorja, her family & her community.
THIS IS #LIVINGWITHCOVID @TheSun
#Sept10❤️ #hampshire
3) We are aware of a #Hampshire school that refused the donation of #CO2monitors in favor of waiting for the same brand to arrive from @educationgovuk
😫MADNESS 💔
They also told the family that their daughter would be "exposed to #COVID19 the same as all other viruses"
Read 5 tweets
Long Covid Kids HQ 🧡 #LongCovidKids Profile picture
30 Sep
Webinar 3 underway. - Real time Indoor Air Monitoring

Pollutants and sources.

#longcovidkids @better_indoors

#ProtectTheKids #makeschoolssafe
#BetterAirInSchools @SafeEdForAll_UK Image
What are we constantly exposed to?

Indoor Pollutant Thresholds

Those who warn about pollutants Without mentioning indoor the context of ambient or indoor air quality are scaremongering.

Real time monitors provide visibility.
We can’t see what we breathe.
#longcovidkids Image
We are constantly breathing levels of ozone.

Oops I missed the figures. Watch the video on YouTube later to catch them. 😬
Read 8 tweets

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