am starting to prepare the data from our #vaccineinjuries #PostVacSyndrome survey for analysis today

just having a look at the raw data output and this stands out. most participants report no health problem that affected their day-to-day living prior to the offending vaccine screenshot of a survey question: Before getting the COVID19 Screenshot of survey question asking: "After the COVID1
after the offending vax general health was reduced to being very poor

even those who had no indication something could go wrong, who led completely unrestricted lives, had their world turned upside down after vaccination
many already chronically ill folk seem to have on their mind that they might react badly (and there was a distinct lack of chronic illness patients in trials), and indeed it seems ME and long COVID patients have a high prevalence of severe reactions (maybe around 20 %).
but for many who the vaccine ruined, such side effects were completely unexpected. in other words, just like #LongCovid and post-infection syndromes (e.g. #MECFS, #LymeDisease), a severe reaction could hit any of us
important for #MedTwitter: most #VaccineInjured #PostVacSyndrome patients who had another vaccine after their offending dose got WORSE.

we should NOT be recommending further #covidvaccines in this group

@P_H_S_Official @NHSScotland @UKHSA @NHSuk @gmcuk @NICEComms screenshot of survey question reading: If you have had anoth
nearly half (43 %) of those who answered this question have been off work for 6 months or more or have had to stop working completely screenshot of survey reading: How long have you had off work
this surprises me; most #PostVacSyndrome patients who responded to our survey did not get acute flu-like symptoms screenshot of survey question: Did you experience the expect
last up before i get cracking actually sorting the data:

most reactions occurred within a week, very much in line with an acute inflammatory response screenshot of survey answer: How long after the offending CO
just wanna give a h/t to @React19org in particular who have been collecting fantastic data for a long while now

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More from @angryhacademic

Jul 28
#pwME #LongCovid who menstruate (or used to):

*BEFORE* getting ill with #MECFS or long covid, did you have particularly painful #periods?

See notes below for some clarification

#menstruation #WomensHealth
1. Post vax long covid included as long covid

2. Realise theres overlap between ME and LC, please pick what you identify with

3. If you took meds which stopped the pain but without meds your periods were particularly painful, please select "yes"
4. Because i often get DMs telling me the problems with my polls (which is why I turn comments off): its a twitter poll with max 4 options, its not perfect, you dont have to answer, and i realise this doesnt capture the full picture, etc. Im just curious is all! 😊
Read 4 tweets
Jul 27
My mean platelet volume has been elevated and was BEFORE the vaccine. This study suggests it may link to thrombosis and inflammation
ingentaconnect.com/content/ben/cp…

Maybe a predisposing factor to #PostVacSyndrome #vaccineinjuries #LongCovid?

#TeamClots
High MPV can be caused by #VitaminD deficiency, which i had BEFORE my vaccine (measured historical sample), and is now rectified.

My MPV remains elevated still. Maybe vit D initially triggered it, now the damage is hard to fix?

Maybe something else driving high MPV? 🤔
Super activated platelets have to die: sciencedaily.com/releases/2016/…

Could this mean hyperactivated platelets = shorter cell life = more young platelets = higher MPV?

#LongCovid #postvacsyndrome #TeamClots #microclots

Spitballing here, have about 20 papers to read on MPV already 😆
Read 4 tweets
Jul 22
Im watching #UnvaccinatedDocumentary and prior to having a #vaccineinjury i would have been right on board with Hannah Fry.

But theres so far been a couple things that i realise are scientific narratives that arent really true
1. Fry said the ONLY way we know something is caused by the vaccine is monitoring it to see if it occurs above expected levels

This isnt true & a mathematician shouldve been more accurate. Such studies determine whether POPULATION risk is increased (still not necessarily causal)
But do not tell us whether INDIVIDUAL harm is causal.

It actually doesnt matter at a population level for individuals, which makes risk quantification difficult.

Eg i might be the only UK vax injured with pulmonary emboli
Read 44 tweets
Jun 14
We did the right thing. We followed the science and did what doctors told us. Now the science is abandoning us and doctors are gaslighting us.
#CanWeTalkAboutIt greyscale picture of me, lo...
You all know what we're talking about. Im not going to write it in this thread. The silence is deafening & the abuse is deadly

Im participating in this to support my (new) family; we’re all suffering. If you saw my DMs you would be horrified at what some have & are going through
Many have suffered unspeakable things. Things you couldn't make up if you were writing a horror movie. This is of course not new. But there is an added layer of denial regarding the cause. I've been very lucky in my journey - no denial. This is not the case for most others
Read 18 tweets
Jun 10
my current (unoriginal) take on #microclots, influenced by lots of folk including chats with #TeamClots.

1. we need to understand the full pathway of events: what come first (upstream), what are the consequences (downstream)

2. we need to understand the best target
2a. if the upstream trigger is transient, like acute inflammation ± (quickly degraded) spike protein, then targeting the downstream effects (microclots) is the right pathway
2b. if the upstream trigger is chronic, like reactivated/persistent viruses, autoimmunity, chronic mast cell activation, or lingering spike protein, then treating the downstream effects (microclots) may not result in long-term resolution
Read 11 tweets
May 21
"Your test results are normal"

Medical professionals, please ask yourself: at which point would you stop testing?

I have put a ⛔ where I am aware many doctors have stopped with patients.

🧵

#LongCovid #MECFS #vaccineinjuries #chronicillness #TeamClots #MedTwitter
A patient goes to the dr with a range of systemic symptoms that dont neatly fit current diagnostic criteria. Symptoms started rapidly & strongly a few hours after the COVID vaccine; however, the reason for the problem isnt important for this lesson



The doctor does some tests
Hb, RBC, haematocrit, MCV, MCH, platelet count, WBC, neutrophil, eosinophil, basophil, lymphocyte, & monocyte count. Mean platelet volume is elevated but this isnt reported & is instead hidden in the lab records. “Your test results are normal” the doctor says

Read 18 tweets

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