The U.S. Department of Labor is asking YOU the important questions!

Please Vote For Us & Our Recommendations!
longhauler-advocacy.org/c-19lap-recomm…

Recommendations put forward for the #LongCOVID community came from your participation over the last 2.5 years! Please help elevate those needs! Image
You do need to register to vote which you can do here
longcovidatwork.ideascale.com/a/register

We have put together a video " C-19LAP: Navigating the Department of Labor (DOL) Long COVID Online Dialogue" which you can also find here!
If you feel @C19LH_Advocacy should be involved in informing stakeholders,we need you to go vote for us! Unfortunately, votes will be considered, and we do want to ensure we have a seat at the table to advocate for you! bit.ly/C19LAPDOL1 Image
The @C19LH_Advocacy ensures comprehensive advocacy for the #LongCOVID community, which means acknowledging all of it's associated conditions & building partnerships with those orgs, researchers, physicians & communities to ensure we work collaboratively. bit.ly/C19LAPDOL2 Image
The level of disability seen in Long COVID & Associated Conditions (LCAC) is largely underestimated & we see a misguided focus on workplace retention, when many are well past that threshold, & it is not being recognized or planned for accordingly. bit.ly/C19LAPDOL3 Image
Capturing dynamic disability is essential for all forms of assistance. A large portion of the #LongCOVID community & those with its associated conditions suffer from dynamic disabilities. It is time to recognize & implement help for this population. bit.ly/C19LAPDOL4 Image
@C19LH_Advocacy data shows nearly 30% of #Longhaulers are #Firstresponders, #HealthcareWorkers, & #Educators. They're being failed by workers comp & turned away from care & pay. These aren't your typical "replaceable" jobs & are in already stressed fields. bit.ly/C19LAPDOL5 Image
#BIPOC communities, single parents & caretakers, pediatrics & independent contractors are only some of the communities overlooked in data collection & planning. We have 9 special pop's chapters that help us better understand some of the issues faced. bit.ly/C19LAPDOL6 Image
There is NO EXCUSE as to why we do not yet have National Public Education & Awareness Campaigns on #LongCOVID at 2.5 years into the pandemic. As we have before, we're calling for accurate, national, commercials, billboards, ads & more to educate the public bit.ly/C19LAPDOL7 Image
Employers should implement long-term employee safety policies. Investing in the long-term health of employees is in the best interest of the employer & the employee. We lay out a comprehensive approach of what that may look like. bit.ly/C19LAPDOL8 Image
A National Dashboard to report non-compliance & submit evals would help inform guidance. Many employees do not feel safe asking for revisions to accommodations, making complaints about coordinators, nor do they have time to wait for EEOC responses. bit.ly/C19LAPDOL9 Image
Many #Longhaulers are now about to lose their licenses & certifications due to being out of work & unable to physically obtain them. Employers can help employeers by supporting legislation that supports our shared goals & offering other help to employees. bit.ly/C19LAPDOL10 Image
Register longcovidatwork.ideascale.com/a/register & then follow the steps below, or watch the video

Vote
longhauler-advocacy.org/c-19lap-recomm…

We hope that we have captured the communities needs in our recommendations! Thank you for your support- @C19LH_Advocacy Leadership Image
Motivated to get more involved in issues like these & more?

JOIN OUR ADVOCACY TEAMS!

docs.google.com/forms/d/e/1FAI…
If you don’t vote, these ideas don’t make it onto the list.

Only ideas w/ the most votes will be considered from what we gathered, so please don’t just like this post, VOTE 🗳 ❗️

We recognize this takes some time & love but we have days to make a lifetime impression on policy!

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More from @C19LH_Advocacy

Jul 8
This month, we’re celebrating #DisabilityPride, recognizing how far we’ve come & also how far we have left to go to secure justice & equity for all people with #PWD in the U.S. Join us all month long to learn more & to celebrate the ADA anniversary later in July! #ADA2022 #C19LAP
This month, we’re celebrating the rights promised by the ADA & reflecting on what more must be done to make its promises a reality. 32 yrs later, disability remains a cause & consequence of poverty in the U.S. It’s time to secure economic justice for all disabled people! #ADA2022
According to polling from @TCFdotorg @DEJCollab & @DataProgress, 8 in 10 voters across the political spectrum support updating Supplemental Security Income’s outdated asset limit to help more people w/ disabilities thrive. Learn more: tcf.org/content/commen… #ADA2022
Read 9 tweets
Mar 2
Tonight, millions of #Longhaulers were hoping that @POTUS would become a champion for #LongCovid by utilizing his platform to create more awareness & educate the American people about the sheer devastation Long Covid has caused & will continue to cause for decades. He didn't.
1/
We hoped @potus would continue to emphasize mitigation efforts being essential in our battle against #COVID19 & #LongCovid. Instead, Americans were told they could remove their masks as we move back towards a "safer normal" & that those vaccinated & boosted are protected.

2/
For #Longhaulers, there is no "return to normal." We also know that people can still get infected with #COVID19 even if vaccinated. While vaccination helps prevent severe disease during acute infection, we KNOW that #LongCovid most commonly occurs in mild-moderate cases.
3/
Read 18 tweets
Feb 28
Please check out our piece on @NBCNightlyNews tonight!

Awareness & education are key in propelling the #LongCovid & #chronicillness community forward. #Longhaulers in the millions are being failed in healthcare & social supports.

Options have run out. #LongCovidActionNow
1/5
We want to thank @NBCNightlyNews @CynthiaMcFadden & @KitRamgopal for highlighting the struggle #longhaulers face trying to access benefits.

We hope to see @POTUS address the devastation of #LongCovid in the upcoming #SOTU address & take immediate action to help millions.
2/5
Our founder & president (featured in the story @K_Bishof ) can be reached at admin@Longhauler-Advocacy.org or you may check out & contact us through our website longhauler-advocacy.org or on Facebook facebook.com/groups/c19lap/
3/5
Read 5 tweets
Jan 27
We want to thank MN Governor @GovTimWalz for his latest supplemental budget recommendations which include approximately $3 million per year to establish a permanent state office for #LongCOVID!

🧵1/
We are unsure if this is a result of a request we and 2 other orgs sent a few months ago, but we are eager to collaboratively work together on this and help educate those who will be involved, once this budget is approved and the program is in place.

2/
In order for it to go into effect, the Minnesota state legislature must pass an authorizing bill and appropriate money during it's 2022 legislative session,which runs from January 31 to May 23.

PLEASE CONTACT YOUR MN LAWMAKERS URGING THEM TO SUPPORT AND PASS THIS!

2/
Read 7 tweets
Nov 17, 2021
For those who asked, this study is accepting those hot local to Miami whether you are still in Fl or are willing to travel to participate
(see parts 2-5 for more info)
Mention my name when reaching out (Karyn).
1/5
#FBLC #LONGCOVID #LONGHAULER #PASC #RESEARCH #STUDY #UofMiami
For those new to this. This is my myocarditis doc at university of Miami doing this study.
-Covid attacks our endothelium, which we have in every aspect of our body. We complain of blood pooling, bad veins, easy brushing, poor circulation, hr and bp issues.
2/5
A lot of this is likely from endothelial dysfunction which I believe *may* be the trigger of pots or dysautonomia in many of us.
- I only grew 1 of 6 tubes back showing endothelial dysfunction.
3/5
Read 5 tweets

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