Cause matters when discussing illness.

Understanding the cause can help direct what tests to do, what treatments to have, and in some cases improve safety for products or pharmaceuticals

Context is essential for clinicians to help effectively
Some examples:

Having flu like symptoms can be from infection or drug withdrawal

Tremor can be a sign of neurodegenerative diseases like MS or a head injury

A rash can be from allergies to washing detergent or infection
It would be absurd to go to your healthcare provider & not mention youve been exposed to an infectious person, are withdrawing from drugs, had a recent head injury, or you notice a trend when you use different detergent

These add essential context & clues as to tests & treatment
It is therefore also absurd to go to your healthcare provider and NOT mention that your symptoms seemed to occur in line with having a vaccine.

#PostVacSyndrome #vaccineinjuries
Yet many folk have "helpfully" suggested patients to not mention they think the vaccine is a trigger to symptoms, and leave it to the care provider to make the link instead
This is unlike advice for any other condition, adds work to work out correct tests/treatments, and delays essential adverse event reporting

Imagine if VITT or GBS patients didnt mention the vaccine, that could be life threatening.
There is ofc the argument to not mention the vaccine to reduce the chances of medical gaslighting, which is a sad reflection of reality.

Hopefully soon, currently less established reactions will be better recognised

This then helps direct the healthcare provider: MCAS, POTS/dysautonomia, microclots (when theyre recognised), (neuro)inflammation, autoimmunity, etc, rather than wasting time exploring less probable pathologies
An added benefit to mentioning the vaccine link is that if healthcare providers see such reactions in other patients, they have some familiarity. This then helps new patients, raises awareness, and improves safety tracking
Bar patients themselves deciding not to mention the vaccine due to likely gaslighting, it is not only an unhelpful suggestion to not mention the vaccine, but a potentially harmful one.

So kindly stfu.

#MedTwitter

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More from @angryhacademic

Aug 25
"The only thing worse than living with a debilitating chronic illness with no known treatment is living with a debilitating chronic illness and not being believed"

Well said @Sunny_Rae1

#MedTwitter #LongCovid #MECFS
@Sunny_Rae1 "Learning to live with covid [like this] is like a car crash waiting to happen" - with the analogy that we dont view driving safety measures as infringing on our rights...so why would we let a biohazard spread free?
@drclairetaylor highlights the debilitating effects of #dysautonomia:
Quality of life in #POTS patients is about the same as heart failure patients
Read 4 tweets
Aug 25
Many #PostVacSyndrome patients stayed silent for quite some time (~9 months in my case)

We stayed silent because we didnt what to spread vaccine hesitancy

We didnt know we were not the only ones

How did this pan out? 🧵

#vaccineinjuries
Many spent months feeling isolated, everyone else getting vaccines seemingly with no problems (sometimes because they werent talking about side effects either), feeling like there is something uniquely wrong with themselves
Doctors who meet their first post vac syndrome patient had no knowledge that possibly their other patients are suffering similar. Thus repeatedly we hear "its rare", and theres nothing that could help
Read 14 tweets
Jul 29
am starting to prepare the data from our #vaccineinjuries #PostVacSyndrome survey for analysis today

just having a look at the raw data output and this stands out. most participants report no health problem that affected their day-to-day living prior to the offending vaccine screenshot of a survey question: Before getting the COVID19 Screenshot of survey question asking: "After the COVID1
after the offending vax general health was reduced to being very poor

even those who had no indication something could go wrong, who led completely unrestricted lives, had their world turned upside down after vaccination
many already chronically ill folk seem to have on their mind that they might react badly (and there was a distinct lack of chronic illness patients in trials), and indeed it seems ME and long COVID patients have a high prevalence of severe reactions (maybe around 20 %).
Read 9 tweets
Jul 28
#pwME #LongCovid who menstruate (or used to):

*BEFORE* getting ill with #MECFS or long covid, did you have particularly painful #periods?

See notes below for some clarification

#menstruation #WomensHealth
1. Post vax long covid included as long covid

2. Realise theres overlap between ME and LC, please pick what you identify with

3. If you took meds which stopped the pain but without meds your periods were particularly painful, please select "yes"
4. Because i often get DMs telling me the problems with my polls (which is why I turn comments off): its a twitter poll with max 4 options, its not perfect, you dont have to answer, and i realise this doesnt capture the full picture, etc. Im just curious is all! 😊
Read 4 tweets
Jul 27
My mean platelet volume has been elevated and was BEFORE the vaccine. This study suggests it may link to thrombosis and inflammation
ingentaconnect.com/content/ben/cp…

Maybe a predisposing factor to #PostVacSyndrome #vaccineinjuries #LongCovid?

#TeamClots
High MPV can be caused by #VitaminD deficiency, which i had BEFORE my vaccine (measured historical sample), and is now rectified.

My MPV remains elevated still. Maybe vit D initially triggered it, now the damage is hard to fix?

Maybe something else driving high MPV? 🤔
Super activated platelets have to die: sciencedaily.com/releases/2016/…

Could this mean hyperactivated platelets = shorter cell life = more young platelets = higher MPV?

#LongCovid #postvacsyndrome #TeamClots #microclots

Spitballing here, have about 20 papers to read on MPV already 😆
Read 4 tweets
Jul 22
Im watching #UnvaccinatedDocumentary and prior to having a #vaccineinjury i would have been right on board with Hannah Fry.

But theres so far been a couple things that i realise are scientific narratives that arent really true
1. Fry said the ONLY way we know something is caused by the vaccine is monitoring it to see if it occurs above expected levels

This isnt true & a mathematician shouldve been more accurate. Such studies determine whether POPULATION risk is increased (still not necessarily causal)
But do not tell us whether INDIVIDUAL harm is causal.

It actually doesnt matter at a population level for individuals, which makes risk quantification difficult.

Eg i might be the only UK vax injured with pulmonary emboli
Read 44 tweets

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