Thread by @angryhacademic

Many #PostVacSyndrome patients stayed silent for quite some time (~9 months in my case)

We stayed silent because we didnt what to spread vaccine hesitancy

We didnt know we were not the only ones

How did this pan out? 🧵

#vaccineinjuries

Many spent months feeling isolated, everyone else getting vaccines seemingly with no problems (sometimes because they werent talking about side effects either), feeling like there is something uniquely wrong with themselves

Doctors who meet their first post vac syndrome patient had no knowledge that possibly their other patients are suffering similar. Thus repeatedly we hear "its rare", and theres nothing that could help

Lack of guidelines = inappropriate tests = incorrect/incomplete diagnoses = inaccurate vaccine safety monitoring

Scientists for the most part didnt know what was happening so the few good eggs who are willing to explore it are only just now starting to get their teeth stuck into the biomedical research. Such delays are costing lives and quality of life

Because of historical silencing of all vaccine injuries, we didnt know these side effects were even a possibility; neither did most Dr's it seems

Whenever someone speaks out we're called liars & misinformation spreaders

People demand to see our medical records only to dismiss them as "just your dr's opinion"

This all makes many of us continue our suffering in silence

Because of the above, and more, many patients lose trust in medicine, science, governments, public health bodies, etc

Because of the above, and more, when patients find a support group or fellow patient, there is immense relief.

Us speaking about our experiences has saved lives.

Yet when we speak out, we are called irresponsible.

If you perceive us speaking out as a threat to vaccines, that is YOUR bias that YOU need to work on.

We are evidently the most "pro" vaccine people on the planet; we stayed quiet to not fuel hesitancy; we want safer vaccines; we want biomedical research into vaccine reactions

Ask yourself: what do YOU want?

If YOU got harmed by a vaccine, how would YOU want to be treated?

I know if i could go back, i would change a lot about my approach to vaccines. I had to learn the hard way that many of my assumptions were exactly that.

A wise person learns from their mistakes; a wiser one learns from other peoples mistakes

One thing i have learnt is that not having open, honest, curious discussions actively fuels conspiracy; the way many scientists and doctors act now is actively causing the thing they hate and try and prevent.

Think about that.