Honestly #medtwitter why is it so damn had to have a consistent plan in place for #patients w #complexhealth issues when person necessitates hospital frequently?

Also, why get upset with #patient when lack of coordination between #medicalprofessionals, assumption of #patient 1/
goals as well as often your own biases result in care that is subpar & harmful & leads to said hospitalizations 🤦🏻‍♀️. I understand you all are in a difficult position yourselves but you definitely have much more #power than #patient. 2
Also, why does it seem so difficult for #hospitalists to pick up phone 2 specialists? I know many of you work hard to acknowledge your biases, to incorporate the #patients voice in care planning, BUT if you are not one, YOU are harming #patients. #HealthcareInAmerica 3/
*hard

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More from @purplemamabear

Oct 18
I continually see research papers and presentations given on how #childhood #trauma relates to likelihood of #chronicpain.

While I do not dismiss this may be a factor, I am very frustrated at the lack of introspection by many #physicians where #medicaltrauma due to care that 1/
was dismissive, shaming, manipulative and lacked transparency does a great deal of harm leading to PTSD & I would postulate the worsening of #pain & or #disease. It’s as if the model, is backwards. Don’t get me wrong I absolutely believe #trauma can have long lasting impacts 2/
impacts that impact multiple areas. What I don’t understand is how many physicians don’t understand how care for children & youth w #rare or #complex #health issues or/and ones that include #pain can lead to #MH issues (not always be the cause). Why is it difficult for some 3/
Read 6 tweets
May 20
After years of my daughter receiving care at our local #hospital that is often based on #bias & is often subpar I have begun to reach out to different state agencies. The experiences that my daughter has had to experience over the last several years has been surreal 1/
I’ve attempted many times to engage with #patientservices w various staff in attempts to implement a plan which is based on her needs, recognizes the #medicaltrauma she has experienced & how it impacts her. I’ve attempted to explain how her diabetes works (to the extent I even 2
understand. Type 3 is brittle, it can shoot up or down for numerous reasons. I’ve tried to explain her complications based on her #AITTP but instead assumptions have been made and that what care has been based on. In reviewing her chart it’s truly horrifying their utter lack 3
Read 25 tweets
May 18
#MedicalBiases #CompromisedCare #DenialofRights
This ⬇️
many may not believe this. They may find it unbelievable. I don’t. I have watched my daughter deal with the exact same abuses bc she is prescribed #opioids, bc she also has complex #medical conditions & PTSD. 1
I never know when she has a medical crisis and needs the hospital IF she will need to interact w a personnel or professional whose #biases interfere with care. These incidences can be shaming, demeaning or they can put her life at risk. My daughter has had hypoglycemic crises 2/
at @SanfordHealth where the nurses refused to check her #bloodsugars because ‘it is anxiety’ or ‘she just ate’. Even when I intervened over phone & pleaded, nurses refused to point I had to reach out to #housesupervisor. While I’ve reached out multiple times to @SanfordHealth 3/
Read 11 tweets
Apr 30
Thread 🧵: Reflections of a Parent/Caregiver After Six Years Implementation of CDC Guidelines (warning long but I am very interested in feedback)

Since babies, my kids, have intimately known #pain. At one time their #pain was intermittent & #acute. Sadly, they now struggle 1/
#chronicpain & are young adults. Our kids 1st 13/16 years of life, our family had a #safetynet, their #pediatrician. He was highly intelligent, compassionate, he challenged the system & in the most authentic sense #partnered with families. #Pain was not a major concern when 2/
the kids were under his care. The nature of their disease often brought us to the ER & hospitalizations. The hospitalizations resulted due to inability to manage #pain, dehydration, & other issues caused by a flare in their #disease. My husband & I attempted to minimize the 3/
Read 45 tweets
Feb 10
@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/
@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/
@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/
Read 6 tweets
Feb 10
#Criminalization #SocialServices #WeNeedToDoBetter #Trauma
As someone that has worked in the system this infuriates me. I don’t understand how we think criminalization and involvement of #socialservices in this situation will do anything BUT further #traumatize this family. 1/
On FB I read ‘pearl clutching’ comments that this had occurred two times already. We are in a surreal time, most of us trying to get by. I wonder 💭 how many of those making judgmental comments have struggled to access necessary resources and been placed in a situation where 2/
either option ☝🏼 has is concerning. This sister may struggle with immense guilt, same as with the mother, the family may be separated, she may now lose job, more and more #trauma. Wouldn’t it be amazing if instead assistance is provided 2 mom to access necessary resources so 3/
Read 6 tweets

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