Discover and read the best of Twitter Threads about #rare

Most recents (22)

I continually see research papers and presentations given on how #childhood #trauma relates to likelihood of #chronicpain.

While I do not dismiss this may be a factor, I am very frustrated at the lack of introspection by many #physicians where #medicaltrauma due to care that 1/
was dismissive, shaming, manipulative and lacked transparency does a great deal of harm leading to PTSD & I would postulate the worsening of #pain & or #disease. It’s as if the model, is backwards. Don’t get me wrong I absolutely believe #trauma can have long lasting impacts 2/
impacts that impact multiple areas. What I don’t understand is how many physicians don’t understand how care for children & youth w #rare or #complex #health issues or/and ones that include #pain can lead to #MH issues (not always be the cause). Why is it difficult for some 3/
Read 7 tweets
Decades before world champion Viswanathan Anand powered the India's chess story, it was Sultan Khan who gave India its first hero in the sport. #Chess

#SultanKhan #Sultan #India #BritishChessChampionship Image
“Even if the world that #SultanKhan inhabited seems distant, he should be remembered as the first Asian to break through into the upper echelons of the international chess scene,” wrote #Anand about Sultan Khan in the foreword of Grandmaster Daniel King's biography on #Sultan
#Sultan won the #BritishChessChampionship three times -- in 1929, 1932 and 1934. Interestingly, he could not read, write, speak or understand English. This meant that he was not well-versed with the vast amount of #chess theory that all his opponents knew almost by heart.
Read 6 tweets
The first topic in the #Taliban Cheif Justice, Abdul Hakim Haqqani's book on the Islamic Emirate& its governance, is the #type_of_government. According to him, there are two main types of governments in the world:
1. A state& government whose Motto is collection of revenue/taxes. Image
2. A state& government whose Motto is Guidance (Propagation of Virtue& Prevention of Vice).
According to the author of the book, there is no need to give examples of Tax Govts, as they nowadays make majority or almost all of the world govts.
But governments of guidance are #rare. Image
According to Sheikh Abdul Hakim Haqqani, the 3 #pillars of the #government_of_guidance are as following:
1. Independent #Judiciary
2. Islamic #Army
3. #Sharia_Law
He also mentioned 7 reasons for rejection of man-made laws, which are based on what the God or his Messenger said. Image
Read 8 tweets
It is nice when you see a brain #MRI and instantly jump to a unique diagnosis in your mind.
A #tweetorial about #CLIPPERS Chronic Lymphocytic Inflammation with Pontine Perivascular enhancement Responsive to Steroids. #Neurology #NeurologyRF #NeuroRad #MedEd #NeuroTwitter ImageImage
CLIPPERS is a #rare #disease being increasingly recognized. We saw a case here @UHhospitals @cwru @CwruNeuro
(The coronal brain MRIs in this tweetorial are from a published case report other than but similar to our patient- I chose to use here instead given better quality)
Middle age patient presenting with emotional liability, subacute bilateral lower extremity weakness/numbness/spasms, ataxia and pan-sphinctric dysfunction over 4 months #NeuroRad ImageImageImage
Read 10 tweets
#Vaisakha #Sukla #Chaturdasi is reckoned as Sri #Nrusimha Jayanthi the day Bhagawan #Vishnu manifested in a very ferocious, rare, unique and fascinating form #NARASIMHA;

Specific purpose of this avathara was,

protection of his devotee #PraHlada from his demon father #Hiranyakasipa;

#establish a point & to make true the words of his devotee " existence (#omnipresent) of God everywhere"

> Prahlada’s episode proves that, God is #Bhaktavatsala; +
To kill the demon Hiranyakasipa, Lord Vishnu had to take this rare form in order to counteract/provide an antidote to the boons Hiranyakasipa had.

The boons were; ++
Read 13 tweets
Today @GeneticAll_UK is launching a new report, ‘Good Diagnosis:Improving the experiences of #diagnosis for people living with rare conditions’.

Read the full report…
Over a third of people living with a #RareCondition
will wait for more than five years to obtain a
definitive #diagnosis, often receiving a number of
#misdiagnoses along the way

The ‘diagnostic odyssey’ is a term used to describe the time taken between a patient first developing #symptoms and receiving a correct #MedicalDiagnosis. This can be a long and eventful journey.

Read 53 tweets
High value symbols stay on #Theme , arriving in the form of buffalos, leopards, elephants, #rare #BlackDay rhinos and a lion, where landing three or more of the same symbol triggers payouts worth up to 20x the bet.… Money symbols can lead players to big jackpots, while three or more Scatter symbols activates the Free Spins feature, with the different values of Money symbols having an impact on the size of wins.… The Ultimate 5 arrives hot on the heels of recent releases Colossal Cash ZoneGates of Valhalla™ and Rock Vegas™, residing amongst a collection of over 200 HTML5 titles in Pragmatic Play’s award-winning games portfolio.
Read 7 tweets
Time to #Giveaway / #Concours avec @TheCryptomasks

Gagnez l'un des 555 #NFTs dessiné à la main par l'artiste @8thproject1

Un projet français fondé par @TheCryptomath avec pour objectif de fédérer une communauté afin d'évoluer dans la crypto.

Thread, Conditions & Tirage 👇 Image
@TheCryptomasks est une collection de 555 #NFTs sur la blockchain #Ethereum.

L'objectif ? Réunir dans un même groupe : les débutants, les confirmés et les experts pour s'entraider et avancer ensemble dans l'écosystème #crypto.

Mais non, ce groupe n'est pas restrictif ! Image
C'est un groupe #Discord ouvert à tous et toutes ceux qui veulent apprendre, #partager, créer, construire et s’encourager.

Les #NFTs sont là pour donner quelques divers avantages que je vais vous dévoiler de suite pour ne pas faire durer le suspens. Image
Read 9 tweets
[Thread] : Mes premiers pas sur #Sorare

Il s'agit d'un projet qui signe la plus grosse levée de fond de la #FRENCHtech 🇫🇷 pour un montant de 680 millions de dollars

Toi, passionné de #foot, des #NFT ou simplement curieux de découvrir ce jeu je t'invites à dérouler ce thread🧵⤵️
Étape 1 : L’inscription 💻
Pour bien commencer ton inscription, il est important d’utiliser le lien de #parrainage
Il te permet de bénéficier d'une carte offerte par #Sorare après avoir remporté seulement 5 enchères
C’est par ici :
Très important : cbeertech « Veut jouer au Fantasy Football global avec toi » doit être mentionné pour gagner ta carte
Ainsi, je serai ton parrain pour t'accompagner dans cette nouvelle aventure 🤝
Read 8 tweets
NEVER USE Cotton bud, Broom stick, Biro, Needles, etc to remove EARWAX INSIDE YOUR EAR.

#DON'T, I repeat DON'T!

Earwax may may seen dirty but it has several functions in our body.


A Thread 👇
Your ears usually do a good job cleaning themselves & Don’t need any Extra care.

The only reason you should clean them is to soften or remove earwax from the outside of your ear canals. And if you’re going to do that, you’ll need to know how to do it carefully.


- The Ear produces a substance called CERUMEN (Earwax). It’s NORMAL for your body to produce it, and it actually helps PROTECT and LUBRICATE your ears.

- If you didn’t have earwax, your ears would probably be ITCHY and DRY.

Read 10 tweets
@tari has hit a home-run with Yats based on the appeal of universal aesthetics, ease of entry into the #NFT space for #creators, and a viable model of scarcity #economics. Lastly, they are good fun!

#Yats are modern hieroglyphs. Visual communication is ancient, and crosses all language barriers. The best Yats will capture human experience without being overly complex. Simplicty means mass appeal.
#NFTartist will find #Yats an easy medium to work in. The 4/5 string Yats are going to yield the best return for artists on a budget bc these can be created for $4-$8, and offer more room for expression.
Read 8 tweets
Thanks to the @CEPIvaccines @WHO @EuWHOEurope #Covax and others, 24,000 doses of #AstraZeneca vaccines arrived in 🇲🇪 last week, and this is just fantastic! But as in other European countries, there is a lot of hesitancy and fear related to this vaccine. 👇🏻 (🧵)
The ministry of health @MinZdravlja made the #AstraZeneca vaccine available to all 65+ old citizens, and this is great news as they are the most vulnerable group that was not eligible for @sputnikvaccine and #Sinopharm vaccines given in previous weeks to people 70+ 👇🏻
The main fear from what I understand is related to the inconsistent recommendations about the appropriate target groups and recent reports of #thrombotic events recorded in several EU countries now. Let’s address the issues one by one 👇🏻
Read 18 tweets
How #American #Elections Work: A Thread👇

The #TrumpCampaign and its allies have filed #lawsuits to try to block some key states from certifying #Election2020results results that show #Democrat @JoeBiden defeating President @realDonaldTrump.
After #ElectionNight , certifying the #results is a step #states take so that winners can be officially #confirmed. The @AP and other #media outlets on Saturday declared @JoeBiden the #WINNER of the #PresidentialElection2020
after analyses concluded that @RealdonqldTrump couldn’t gain enough votes from remaining ballots to surpass @JoeBiden.
Read 24 tweets
Strange cause for #cirrhosis
Maybe very #rare #MedEd
53yrs man, voice change, recurrent headaches, male breast enlargement. Stops socialising. Has bleed one day, #endoscopy varices, #biopsy fatty liver cirrhosis
No metabolic syndrome.
MRI Brain done. #livertwitter #radio
1/3 Image
What is the diagnosis?
In patients with cirrhosis, always try to find the cause in those who present early. There is no idiopathic, no cryptogenic. Its all 'missed' cirrhosis.
2/3 #liverpath
#MedTwitter #pathology #radiology #MRI #brain #Neurology #Endocrinology #NeuroTwitter Image
#diagnosis: #fatty liver related cirrhosis due to #pituatory macro adenoma with high prolactin, high GH, low #thyroid function. #clinical examination, acromegaly features with central obesity. #Examine 1st, then investigate. #MedicalStudent #medicine #MedStudentTwitter
Read 4 tweets
I started playing #guitar in college. Some of my friends back home played, so I thought I'd learn. It's been years since I kept up with it. With no job and an empty house, I had time. Plus, I could crank up my amp. Ava would have hated it. All the more reason to do it.
Strumming a few chords or playing a riff through a loud amp usually makes me feel better. It's more of a distraction this time. My amp is a little old. Even a #ragpicker might pass on it. "If you're not going to play it, sell it," Ava nagged. Life always got in the way.
Or I got in the way. Not even ten years ago I kept getting sick all the time. Painful stomach cramps would radiate weakness throughout my body. I learned how to wash it away like healing #rainwater. That's when I really started to figure out who I was and what I could do.
Read 1098 tweets
February 29th is the #RareDiseaseDay! A special day for 13 million Brazilians with rare diseases like #idiopathic #pulmonaryfibrosis #ipf #cpfe, #systemicsclerosis #SSc #SScILD #ymphangioleiomyomatosis #lam
  and so many others!
A day to remember that the disease can be #rare, but NOT the #diagnosis ! After all, the #rare just wants #support, #care & be #welcome like all of us!
But they need all of us to be listened and respected in other to continue moving forward with #hope & making the world a better place for all ! " :) #rarediseaseday2020
Read 3 tweets
Inicio un hilo en el que iré incluyendo los videojuegos que vaya terminando este año 2020. Seguramente haya muchos que habré comenzado el año anterior, e incluso antes, pero lo importante es cuando se termina. ✌️

¡Vamos allá! 🎮🎮🎮
World of Illusion - Mega Drive Mini

Lanzado en 1992 para la consola de #SEGA, este cartucho de #MegaDrive fue probablemente el primer videojuego cooperativo que jugué en mi vida. Y qué mejor forma de comenzar el año rejugándolo y recordando viejos momentos de mi infancia. 🙂 Image
Luigi's Mansion - Nintendo 3DS

Original de #GameCube en 2001, #Nintendo nos sorprendería con una subsaga del universo #Mario que introduce nuevas mecánicas fuera de las plataformas. La verdad es que lo he disfrutado mucho y con ganas de continuar la saga. 😌 Image
Read 125 tweets
Welcome to the #Pennsylvania Member of Congress Tracking Report for the week ending 09/15/19. This is where you'll find all the votes and quotes from our 18 House members as well as @SenBobCasey and @SenToomey.
#MoCTrack 1/26
@SenBobCasey @SenToomey The folks at @538Politics have you covered if you want to assess what percentage of the time your MoC votes along with the Trump Administration’s agenda. And we collect all of that for our 20 PA MoCs all in one place for you.
#MoCTrack 2/26
@SenBobCasey @SenToomey @538politics The biggest vote this week saw the House choosing to protect #ANWR from energy exploitation!
#MoCTrack 3/26…
Read 26 tweets
Read 819 tweets
🇨🇦 🇺🇸 🇨🇳 🇮🇷 #Canada arrests #Huawei’s global chief financial officer in Vancouver – The Globe and Mail…
A gauge of #technology shares on the MSCI #Asia Pacific Index slid as much as 3 percent before paring some losses - Bloomberg
🇺🇸 #SPX ⬇ as much as 1.9% from Tuesday’s close, before paring some losses. Selling pressure early in the session was so intense that it forced CME Group to intermittently pause trading, according to a spokesperson for the exchange - Bloomberg
Read 736 tweets

Don't bring a coat if you're willing to wear the one Apple gives you or the weather indicates you don’t need one.

(San Jose isn't nearly as cold as San Francisco.)
There are lots of restaurant options along N San Pedro St between W Santa Clara St and W Saint John St.

Its a short walk from the convention centre and nothing like accidentally walking through the Tenderloin in SF.

In the San Jose Convention Center it's a lot more difficult to look over or through the crowd to see and recognize people (compared to Moscone West).

The pillars obstruct the view *a lot*.

The stairs to the lab (assuming the same layout as last year) are better.
Read 28 tweets

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