Discover and read the best of Twitter Threads about #EndometriosisAwarenessMonth

Most recents (10)

For almost 15 years #endo compromised my social, professional, personal life and mental health. I’m more than lucky to have found great professionals along my way, but it’s never over. It’s a daily struggle that has no cure #MoreThan1in10 @Endofound @SWHR #EndometriosisAwareness
In my case, #endo represents almost 15 years of fatigue, excessive bleeding, visits to the ER in the middle of the night, tons of painkillers, multiple failed treatments, thousands of $ spent and endless sleepless nights in pain #morethan1in10 @Endofound @SWHR
2022 was the year I went to my doctor’s office and told him I couldn’t it anymore, I needed stronger painkillers. His answer: “you’re already taking the strongest pain relievers, the next thing would be opioids and I won’t let you go there”. @SWHR @Endofound #morethan1in10
Read 12 tweets
#EndometriosisAwarenessMonth what does endometriosis feels like ?
1️⃣ Back feels like fire. Cigarettes being out all over your back.
2️⃣Feels like the skin on your tight being peeled over and over
3️⃣Feels like your uterus will be burst anytime or being blown like a balloon
4️⃣ Feels like bags of rice being place on your back or half of your body from your waist downwards is being replaced with bags of cement
5️⃣ feels like they’re grilling your back in the oven or someone is stabbing you in the uterus.
Read 9 tweets
In honor of Endometriosis awareness month I’m shedding light on a disease that affects more than 10% of women around the world.
Not many people know but in February of 2020 I was diagnosed with stage 4 endometriosis after years of suffering and doctors dismissing my concerns. Before I was diagnosed I didn’t know anyone with this condition
This past February, I had my second laparoscopy surgery and through it all I thank God and am super appreciative of all the support I received from friends and family during my recovery process.
#endometriosis #endo #endometriosisawareness
Read 14 tweets
In honor of #EndometriosisAwarenessMonth: This is for the #MedTwitter community - especially #OBGYNTwitter - with the hope that it will help at least 1 future endo patient have a better experience than I did. A long 🧵: 1/?
3 weeks ago, I had an 8+ hours-long endo excision surgery that resulted in a unilateral #salpingectomy, an #appendectomy, & a partial #BowelResection. The thing is, it didn’t have to be this way. 2/?
I’ve had horribly painful periods since I was a teenager. Doctor said it was normal, just start taking ibuprofen a couple days early. By 18yo, oral contraceptives were recommended to manage it. That ‘worked’ for about 10 years? 3/?
Read 14 tweets
New bill alert! @SuzeMorrison & I just tabled a bill in the Legislature to formally recognize March as #EndometriosisAwarenessMonth in Ontario.
Read on to learn why it's so important. 🧵1/4 Image
Endometriosis is very common but rarely discussed.
1 in 10 women, Trans, non-binary and gender diverse menstruators of reproductive age have endometriosis.
It causes terrible symptoms such as extreme pelvic pain and nausea. 2/4
But because of stigma associated with talking about what is a normal period and what is not, many menstruators suffer for years without diagnosis or treatment. And even if they do seek help, they can find their concerns ignored. We need this to change, now! 3/4
Read 4 tweets
Hoy 14 de marzo es el #DiaMundialdelaEnfometriosis, una enfermedad que sufren en silencio el 10-15% de las mujeres y que afecta no solo a su salud física, sino también a su salud mental.
Pero, ¿por qué apenas se sabe nada de esta enfermedad? Dentro 🧶👇🏻…
1️⃣Afecta exclusivamente a mujeres, ya que está relacionada con el aparato reproductor. De hecho, ha estado ligada a los dolores menstruales, provocando que tanto pacientes como especialistas hayan llegado a normalizar el dolor, a veces incapacitante, que sufren estás pacientes.
2️⃣Es una enfermedad sistemáticamente ignorada por nuestro sistema de salud. Las pacientes de #endometriosis tardan una media de 7 años en ser diagnosticadas, aunque en muchas CCAA el diagnóstico se queda en eso, ya que no se les hace seguimiento alguno.
@sanidadgob @SanidadCLM
Read 14 tweets
I know some women with #Endometriosis have had bad experiences with male OB-GYNs, but it was a male physician who finally suspected endometriosis when I ended up in the emergency room in so much pain. The several women OB-GYNs I had seen prior did not take my pain seriously. /1
I saw my first female OB-GYN not long after I started menstruating, because I was in enormous amounts of pain every time I had my period, curled up in the fetal position, unable to function, missing school. I was told this was "normal" and given anaprox. /2
Anaprox didn't help much. I'd end up spending hours in a hot bath in a vain attempt to control the pain. My periods were also extremely heavy and very irregular. I was told that was "normal" - things would settle down in time. The first OB-GYN I had seen then retired. /3
Read 14 tweets

Le mois de Mars est le mois de lutte contre l'Endométriose.
Cette maladie qui touche 1 femme/10 à travers le monde.
Nous allons profiter pour faire un Thread pour mieux informer et éduquer sur cette maladie. ⬇️

L'endométriose, décrite pour la première fois par #KarelRokitansky en 1860, est une maladie gynécologique globalement incomprise.
#Rappel_Anatomique (voir 📷)
L’endomètre est la muqueuse qui tapisse l’intérieur de l’utérus. ⬇️

À la fin du cycle menstruel, s’il n’y a pas eu fécondation, une partie de l’endomètre (qui se renouvelle constamment) est évacuée avec les menstruations (règles).
L’endométriose se caractérise par la formation, en dehors de l’utérus, de tissus formés de cellules endométriales. ⬇️
Read 23 tweets
🌟From Lily Williams: My 14-year journey with the illness, in comic form
Endometriosis is so much more than a bad period

But the biggest question is: why aren’t women believed: both from myopic male drs. & judgemental women M.D.s, it’s pervasive throughout the medical community.
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
🌟From Lily Williams: My 14-year journey with the illness, in comic form

⁉️Why aren’t women believed?
Read 23 tweets
I’m taking advantage of a pain-free moment during my period to say: March is Endometriosis Awareness Month. Endometriosis (and its cousin, adenomyosis) are common, affecting >10% of women aged 15 to 44.
Endometriosis is a condition where the lining of the uterus grows somewhere outside the uterus (adenomyosis involves endometrial tissue invading the uterine wall). It behaves just like regular endometrial tissue—it builds up and is shed, causing swelling and scarring.
Symptoms of endo/adeno include extremely painful and/or heavy periods, pain outside the period (including during intercourse or bowel movements), infertility, nausea, constipation, abdominal heaviness and bloating.
Read 13 tweets

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