Discover and read the best of Twitter Threads about #abledsareweird

Most recents (9)

#TodayIFoundOut that disability advocate/hashtag queen @Imani_Barbarin blocked me.
As in the woman who coined #AbledsAreWeird, #DeliveringAbleism, #PatientsAreNotFaking, among others. Crutches&Spice (wheelchair emoji)<br />
@Imani_Barbarin<br />
<br />
@Imani_Barbarin blocked you<br />
<br />
You are blocked from following @Imani_Barbarin and viewing<br />
@Imani_Barbarin’s Tweets.
I honestly don’t know why (and I don’t have to), and I’m not here to slam her, but perhaps it might be because:

* I tweeted about the death of [“rapist”] Kobe Bryant probably since we are/were BOTH Catholic
(which I found out about from a tweet by Disney CEO @RobertIger),
* My desire to address the CT @March_for_Life
on April 15, where I’d address how the pro-life movement needs to FIGHT the image of being racist/sexist/ableist/etc by, with God’s grace, we can care for ALL life, in and out of the womb
Read 6 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
So I'm at a physics conference this week in Lecce, Italy. Some of you wonder how that works given that I'm Deaf and probably don't know Italian Sign Language. Well... 1/N #deaf #interpreters #asl #access #physics
In most cases, I can just request ASL interpreters (yes, American Sign Language interpreters) months in advance. Who pays for it? Good question. That's something I've fortunately been mostly kept out of the loop on, rather than the discussions that happen at the conference! 2/N
But so we get terps set up months in advance, great. They're ASL, because I've barely had the chance to pick up any other language and it's my secondary mode of communication. ASL terps are hard to find in non-English speaking countries... UK too! UK uses BSL primarily. 3/N
Read 18 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
@misskeelahrose @readingquietly @threadreaderapp This is nothing short of atrocious. I just did a search to see what lead up to Keelah's bigoted attack on this person.

twitter.com/search?f=tweet…

There was no interaction between them until 14 hours ago.
@misskeelahrose @readingquietly @threadreaderapp Let's archive this

web.archive.org/web/2019081718…

and then do a slightly more advanced search. Did @readingquietly ever write anything about Keelah?
@misskeelahrose @readingquietly @threadreaderapp A search says no.

twitter.com/search?l=&q=%4…

web.archive.org/web/2019081719…

No mention of her by said user. This looks like an unprovoked attack. An unprovoked bigoted attack.



This is blatant. #AbledsAreWeird
Read 21 tweets
Let’s talk bodies, self, and the ethical use of biotechnology. A thread on what a human is, the differences between individuals, and autonomy as the bedrock principle of the biotechnological age. 1/x
Here’s the previous discussion on science, legitimacy, and social capital if you missed it
I’m a molecular biologist. I work with the bits and pieces of biology that are shared by every single living thing on this planet - DNA, RNA, and protein. 3/x
Read 40 tweets
Three weeks ago I was abruptly informed that my internship would be ending early as a result of the "unpredictable nature" of my chronic illness/disability...

Hold tight, y'all. This is gonna be a thread. 1/?
Even tho there is only one month left in the semester.
Even tho my clinical skills are consistently referred to as excellent.
Even tho I was the first social worker and first intern to present at Grand Rounds in my department and my recommendations are already being implemented.
But apparently my track record for pushing back against oppressive policies matters more than my skills. And my disability is an easy target.
Read 11 tweets
One time, I was invited to give a talk at a university about sign language studies. I gave the talk in ASL with the interpreters. After 45 minutes, my first question was "how did you get here?" It implied I couldn't get to the university without help. #AbledsAreWeird
When I was a first year student, my head resident advisor called me to dinner. During our conversation, he told me that he didn't occur to him that deaf people could go to school, work, drive, talk, have children, and etc. Hmm "Deaf" and "dead" spell differently. #AbledsAreWeird
At airport after I've landed, an attendant waits for me with a wheelchair. I as a deaf person need communication access. To them, the default accommodation is a wheelchair. I am not sure how it helps with communication but I ?appreciate? the effort. #AbledsAreWeird
Read 15 tweets
Diagnosed with PTSD and severe depression in my mid-20s. Extensive medical treatment. A very long journey. In no particular order, common offerings from well-meaning people:

-- Have you tried thinking positively?
-- Everyone is sad sometimes.
-- Exercise!

#AbledsAreWeird
The lack of knowledge about mental health disabilities is especially frustrating because you can tell so many people really do want to be helpful as long as it means not putting any more effort into said help beyond describing things that help them relax. Incredibly frustrating.
And it's not that things like yoga, exercise, a good diet, sleep hygiene, etc. can't be helpful to negotiate symptoms. It's when these things are presented to us 1) as though it's the first time we're hearing them and 2) as substitutes for therapy and meds that it's frustrating.
Read 3 tweets

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