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#ParkinsonsProblems #DoctorProblems #NurseProblems #HospitalRules #Pain #MedicationRules

Wednesday I went to the ER because of pain and found out that I was passing a kidney stone. Because of the size of the stone the doctor had me admitted to the hospital.
One of the problems I had with my hospital stay was they wanted to control the times that I take my Parkinson’s medication. Unfortunately those times would’ve been 30 or more minutes off when I’m supposed to take my meds. I have a card from the Parkinson’s foundation. It says:
Important Medical Information for Healthcare Professionals

• To avoid serious side effects, Parkinson’s patients need their medication on time, every time — do not skip or postpone doses.

The words “on time, every time” are bolded and italicized to show their importance.
I am supposed to have a dose six times a day starting at 7 AM every 2 1/2 hours and 2 extended release tablets at 11 PM before going to bed. I have suffered those serious side effects before, I’m not interested in doing it again.

On the other side of the card it says:
Pain Medication

Most are safe to use, but narcotic medications may cause confusion/psychosis and cause constipation. I can tell you from past experience that I become confused.

Sorry I was shaking too much to get a clear picture of the other side of the card.
The ER doctor gave me Toradol via IV for pain and told me that that was the go to drug for people passing kidney stones. The admitting hospital doctor would not give me Toradol, IV or otherwise because it may harm the kidneys.
Since Tylenol doesn’t do anything for me regarding pain, the only choice they gave me was a narcotic. See above why that’s a bad thing. I ended up not taking anything and being in pain the whole night because the doctor didn’t know.
The urologist I saw the next morning told me what the ER doctor said was true and wrote me a prescription for Toradol. Even though I was in pain they did not give me another Toradol in the hospital. I had to drive to my pharmacist and wait 30 minutes and take it then.
I called the hospital & suggested that they need to change their drug procedures for Parkinson’s patients & why. They called back today & said that they were going to give training to the physician & get the drug procedure change for Parkinson’s patients.
Hopefully what I did will help future Parkinson’s patients who have to stay in that hospital.

The ER was great, hospital stay so so. Between the pain and drug issues and food designed to cause a diabetic to go into a coma I was not happy with the hospital.
I was very nice to everybody and realized that because I was in pain I might come off grumpy so I made sure I thanked everybody for everything and modulated my voice so that I didn’t sound angry even though I was angry. It took a lot of effort. I also told lots of jokes.
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